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Newish - curious about honeymoon period

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Jago

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Relationship to Diabetes
Type 1
So - long time lurker first time poster...

I was diagnosed with type 1 at the end of January ’21 (timing could have been better - I had recently become a father and was a few weeks away from finishing my employment) after a short 24hr stint in hospital due to DKA I was discharged and put on a Novorapid/Levemir program - life was...good... though filled with with serious change. Eventually I felt almost in the driving seat (at least after I got my Ketones down and got on the Libre 2) and for a few months things were tickedy-boo: I ate a relatively low carb diet and I kept my glucose levels on average week by week between 5-5.7. More importantly, i was able to keep fit ... I felt like I was ... almost... in control - and then suddenly I wasn’t.

A few days ago my BG started plummeting - no matter how many jelly babies or slices of cake I ate - now matter how much I lowered my dosage my levels refused to do anything but plummet - I freaked out - I have read about the honeymoon period and how the body (pancreas/beta cells) suddenly decides to play ball - but I hadn’t realised that the consequence would be me desperately trying to keep my sugars in the “safe” zone (made even harder at the time by a desire/need to drive - impossible!) - In the end the only solution I could see was to come off insulin ... and I was fine - for the short term at least my levels remained fairly low (is this normal?!) I was able to eat a pizza and my sugars shot up but also eventually lowered back to circa 5 - it’s weird... especially as before a couple of slices of bread (without Novorapid) would spike me...

A few days have passed, I contacted the Diabetic Nurse, who told me to dose as I thought necessary- which I have been doing throughout this journey - I have adjusted my dose based on my body; it’s needs and the carbs I consume ... but I still wonder if this is normal/ expected - especially as the DN seemed surprised that my levels were still low off insulin...

For more information: A couple of weeks ago I was jabbing circa 10[am] 6[pm] of levemir and a 1:20 ratio of Novorapid as required - and it was working... now I am on 1 [am] levemir, and having eaten a normal spread - I haven’t spiked. That said, my average sugar level for the last 24 is 7 - a little too high.... I will add a 1 Levemir dosage tonight pre bed - but I’m confused- is this a honeymoon period? And what is the best way forward - curious to hear your opinions.
 
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Hi Jago, welcome to the non lurking gang!

Could be your honeymoon mate - but as I never had a noticeable one and in any case if my BG went that low in those days, when there was no way of testing your BG at home - husband just used to call an ambulance who carted me off to hospital and they stuck me on a glucose drip whilst I slept it off on a trolley in A&E.

Sorry I can't help really - but to my experienced by medically untrained eye - sounds to me like you're doing the right things to try and keep yourself safe. Why the hell do such things always happen at weekends and bank holiday ones at that?
 
Welcome @Jago 🙂 That sounds very normal to me. I had a long honeymoon and, like you, I could eat carbs like a pizza without insulin, spike but then come down to the lower end of normal in a few hours. I never completely stopped my insulin because I was told the spikes weren’t ideal. I was also told that the insulin would help my remaining beta cells last longer. As my honeymoon lasted a number of years, I believe that worked well for me.

I cut my insulin right down and ate snacks between meals if needed. That way I could still take my little doses of insulin and remain in target.
 
This sounds like a honeymoon thing.
However, I also wonder if it is a Covid jab thing.
I have had T1 for over 15 years so definitely bound the honeymoon years. My insulin needs plummeted after my jabs and, 3 weeks after my second, I am on about 75% of my usual dose to try and avoid hypos.
Regardless of the reason (honeymoon or jab), you are doing the right thing by listening to your body and dosing accordingly.
You mentioned increasing your Levemir by 1 unit. Is it possible to get a half unit pen to give yourself more flexibility?
I know these are available for NovoRapid but not 100% sure about Levemir pens. Maybe someone else can confirm.
 
Thank you all - really useful - I hope you have a great bank holiday weekend.
 
Congratulations on your de-lurking @Jago!

I reckon this is just your diabetes’ way of letting you know how fickle, individual and stubbornly illogical it can be! o_O

We have had a few T1 members over the years who have also seen a drop-off in insulin requirements for various periods of time, not least our own ex-admin @Northerner who hasn’t taken basal insulin for several years!
 
You mentioned increasing your Levemir by 1 unit. Is it possible to get a half unit pen to give yourself more flexibility?
I know these are available for NovoRapid but not 100% sure about Levemir pens. Maybe someone else can confirm.
Yes Levemir half unit pens are available, the same as for NovoRapid. It is the NovoPen Echo. It comes in either red or blue so if you are getting half unit pens for both bolus and basal insulins, do request 2 different colours to make sure you can tell which is which and make sure that your prescription for insulin is changed to cartridges to fit them instead of disposable pens.
 
Of course it could also be the current heatwave we’re having, if you were only diagnosed in Jan you haven’t yet experienced hypos due to hot weather! It’s all go being a diabetic, no resting on laurels allowed! Sounds to me like you’ve got a good handle on it and as they say, you need what you need. Good luck and stop being a lurker get stuck in, we don’t bite. Well, not on Sundays! 😉
 
Hello and welcome. 🙂
 
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