Newby to the Group

[Pumper_Sue]

Hi, I've joined the group because we found yesterday that my youngest grandson has type 1 diabetes. I know the changes to his lifestyle & the rest of the family will be huge. I am very worried about him & suppose I'm looking for some sort of reassurance that things will be ok.
Thank you

Hello and welcome to the forum, I'm sorry to hear about your Grandsons diagnoses as it must be very worrying for all the family.

If it helps you at all I was diagnoses as a 4 1/2 year old child and am now an almost 62 yo child 🙂 With no complications from diabetes and diabetes has never stopped me doing anything in life I wanted to do..

 

[trophywench]

Nobody in their right mind goes swimming let alone diving of any sort, without at least one 'buddy' - but for work on pipelines etc, it's still a safety issue - remote working in a potentially hazardous situation - same sort of considerations as on the railways I imagine - just to a different degree. The services - right logistical ****-ups during the Falklands War - no good if the gang in question hadn't all been immensely capable of yomping for untold miles with no possible expectation of food, drink or rest anytime 'soon'.

 

[everydayupsanddowns]

Welcome to the forum @Jackstar

So glad you have signed up and can ask any questions you have, pass on any snippets of useful information, or simply put your mind at rest.

T1 can be a bit of an annoyance at times, and it’s potentially very serious, both in terms of physical stuff that can happen, and also a potential ‘burden’ of managing it day to day that can build up and affects different people differently - but in the vast majority of cases it can be well managed, can be made to fit into his life in a pretty low-key way, and shouldn’t stop him doing anything he wants to do, and we have literally centuries of lived T1 experience on the forum with rich and varied lives. Many of whom have decades of T1 under their belts with few if any long-term effects.

Plus as @helli says, the treatment options and tech are improving so fast these days, with better and better outcomes being possible with less and less attention and effort.

 

[Jackstar]

Welcome to the forum @Jackstar

So glad you have signed up and can ask any questions you have, pass on any snippets of useful information, or simply put your mind at rest.

T1 can be a bit of an annoyance at times, and it’s potentially very serious, both in terms of physical stuff that can happen, and also a potential ‘burden’ of managing it day to day that can build up and affects different people differently - but in the vast majority of cases it can be well managed, can be made to fit into his life in a pretty low-key way, and shouldn’t stop him doing anything he wants to do, and we have literally centuries of lived T1 experience on the forum with rich and varied lives. Many of whom have decades of T1 under their belts with few if any long-term effects.

Plus as @helli says, the treatment options and tech are improving so fast these days, with better and better outcomes being possible with less and less attention and effort.

 

[Jackstar]

Thanks for all the info it's all very helpful. He came home on Wed with a bag full of bits and more to pick up today from the docs. He seems ok, seems to understand the seriousness but got very upset & angry at the situation when they had to cancel their holiday. He does not have to measure his carbs yet, just has 2 different levels for the size of his meals, correction injections if needed inbetween meals and a diff type of insulin before bed. This is all being monitored by the team and they may increase his night time dose because he is level is sometimes a bit high in the morning. They think he's been running on such high sugar levels that bringing his levels down is throwing him a bit he feels a bit wobbly at times but his levels are fine. Lots of learning ahead but we'll get there.

 

[Pumper_Sue]

Thanks for all the info it's all very helpful. He came home on Wed with a bag full of bits and more to pick up today from the docs. He seems ok, seems to understand the seriousness but got very upset & angry at the situation when they had to cancel their holiday. He does not have to measure his carbs yet, just has 2 different levels for the size of his meals, correction injections if needed inbetween meals and a diff type of insulin before bed. This is all being monitored by the team and they may increase his night time dose because he is level is sometimes a bit high in the morning. They think he's been running on such high sugar levels that bringing his levels down is throwing him a bit he feels a bit wobbly at times but his levels are fine. Lots of learning ahead but we'll get there.

All sounds positive and his team are also on the ball.

Holidays can be taken later when he is feeling more himself and can enjoy it 100% so well worth waiting for.