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If it was just a case of giving an injection before I eat and everytine was the same amount, I could deal with it perhaps more easily

That is an option @TinkV You can either do that fully (ie for all three meals) or for breakfast and lunch only and then vary your evening meal more. All you would have to do is know your ratio for that meal, chose a set amount of carbs and then inject the correct dose. Then every day you’d know to inject X amount of bolus/fast insulin and eat X amount of carbs. It is simpler in a way. Even now, decades after diagnosis, I often do that for my breakfast and lunch because it saves me thinking.

When I was first diagnosed, most people were on fixed doses of insulin and were also given carb sheets listing the carb amounts to have for each meal and snack. I still have mine somewhere. So, a perfectly reasonable option for you if you’d like it 🙂
 
I do that for breakfast and lunch...it makes for less drama, and maths, and then at tea i have pretty much whatever i want.
(In my opinion, the maths is a bigger pain than the injections. )
But yes, if it makes it feel easier to cope with, go for it!
Its YOUR diabetes, and you deal with it your way. And if, and when, you want to change how you deal with it, its up to you too.
 
If it was just a case of giving an injection before I eat and everytine was the same amount, I could deal with it perhaps more easily

That is an option @TinkV You can either do that fully (ie for all three meals) or for breakfast and lunch only and then vary your evening meal more. All you would have to do is know your ratio for that meal, chose a set amount of carbs and then inject the correct dose. Then every day you’d know to inject X amount of bolus/fast insulin and eat X amount of carbs. It is simpler in a way. Even now, decades after diagnosis, I often do that for my breakfast and lunch because it saves me thinking.

When I was first diagnosed, most people were on fixed doses of insulin and were also given carb sheets listing the carb amounts to have for each meal and snack. I still have mine somewhere. So, a perfectly reasonable option for you if you’d like it 🙂

id always need to eat the same breakfast and lunch everyday or make sure the carbs are the same value. Some foods don’t send me over? Like I can have 2 ryvitas with thinly cut cheese and some salad and maybe a few crisps and I stay within range - would I still be in range eating that when I’m classed as fully diabetic or do the figures go nuts. That’s what gives me anxiety - now the libre tells you exactly what it is, I hate seeing it sometimes. The dr said I only need to scan after 2 hours so I try my best to wait and leave the app on logbook screen so I don’t see the up to date figure, I’m imagining il have to inject b4 every meal? Generally what foods are good to eat that’s a healthy choice breakfast wise. I get bored of egg on toast! When I was pregnant I ate weetabix with fruit every morning because I thought that was super healthy for me and baby and when I was admitted they said that’s one of the worse things you can eat as it’s high in carbs! I don’t even like weetabix! Is there a limit to how much insulin you can have in one dose? Say I went out for dinner and wanted something carby like lasagne and garlic bread and then I wanted pudding! Now that feels alien to me because even writing that I feel a small amount of anxiety about what my numbers would do after eating that! But a few months ago I wouldn’t think twice!

What about when you’re unwell? I’ve read that can be dangerous for diabetics.
 
I’d always need to eat the same breakfast and lunch everyday or make sure the carbs are the same value. Some foods don’t send me over? Like I can have 2 ryvitas with thinly cut cheese and some salad and maybe a few crisps and I stay within range - would I still be in range eating that when I’m classed as fully diabetic or do the figures go nuts. That’s what gives me anxiety - now the libre tells you exactly what it is, I hate seeing it sometimes. The dr said I only need to scan after 2 hours so I try my best to wait and leave the app on logbook screen so I don’t see the up to date figure, I’m imagining il have to inject b4 every meal? Generally what foods are good to eat that’s a healthy choice breakfast wise. I get bored of egg on toast! When I was pregnant I ate weetabix with fruit every morning because I thought that was super healthy for me and baby and when I was admitted they said that’s one of the worse things you can eat as it’s high in carbs! I don’t even like weetabix! Is there a limit to how much insulin you can have in one dose? Say I went out for dinner and wanted something carby like lasagne and garlic bread and then I wanted pudding! Now that feels alien to me because even writing that I feel a small amount of anxiety about what my numbers would do after eating that! But a few months ago I wouldn’t think twice!

@TinkV You should be able to eat a normal diet as long as you replace the insulin you’re missing with insulin injections. You would eat normal things like cereal, toast, sandwiches, fruit, crisps, yoghurt, etc etc. If you wanted to keep things simple as I suggested above, you’d aim for the same carbs each breakfast. It wouldn’t have to be exactly the same food, just the same carbs, eg you might have a couple of slices of toast with poached eggs one day and a croissant and ham another day as long as the carbs were the same. Same with lunch. You would choose carbs that added up to your set amount of carbs for that meal.

Before insulin was discovered and purified, Type 1 was a terminal illness. Every single child and adult with it died, some quickly, some slowly and painfully. The only ‘treatment’ they had was a starvation diet. This was extreme. One diet was thrice-boiled cabbage (boiled three times to get out as much of the tiny amount of carbs as possible). It was utter misery and it didn’t save a single life. When insulin was finally discovered and purified, the results were absolutely miraculous. Children woke from comas, adults turned from skeletal to normal weights again. Insulin is a miracle and that’s why it’s our friend. Type 1s cannot survive without it.

So, eventually even with your sad-sounding diet, your blood sugar will go up and up gradually as your remaining beta cells die. That’s why you need insulin. Not only will the insulin allow you to eat properly - which is crucial for you as a mum of a young baby and other children - it will also take the pressure off your remaining beta cells.

For breakfast Weetabix would be fine! The only reason you were told that in hospital was because they thought you had Gestational Diabetes (related to Type 2 diabetes). You don’t - you have Type 1, which is a completely different condition. I eat cereal for breakfast every day - sometimes Weetabix, sometimes granola, sometimes porridge. There is absolutely zero wrong with it!

No, there’s no limit to the amount of insulin a person can take. They take what they need as an individual. However, you might find that if you ate a massive meal, you’d have to split the dose into two injections because the food would be absorbed over a longer period of time.

If you wanted lasagne and garlic bread, you’d count the carbs and inject for it. If you then wanted pudding, you’d do the same.

It looks like the Libre is more for your clinic than you. Don’t let it stress you. All you need to do is keep an eye on your blood sugar. If you’d prefer to fingerprick to do this that’s fine. The reason you’re seeing higher numbers is because you don’t have insulin. With insulin, you’ll be able to control your blood sugar better, eat properly like you need to for breastfeeding and your own health and recovery, and just enjoy life more, as well as ensuring your health.

When you’re ill, it can affect your blood sugar, usually making it higher, so that often needs more insulin, but normal illnesses can be dealt with at home by yourself. They have things called Sick Day Rules which tell you what to do to keep well with the diabetes when you’re ill. You can also get support from your team and your GP if you need extra advice.
 
If it was just a case of giving an injection before I eat and everytine was the same amount, I could deal with it perhaps more easily

That is an option @TinkV You can either do that fully (ie for all three meals) or for breakfast and lunch only and then vary your evening meal more. All you would have to do is know your ratio for that meal, chose a set amount of carbs and then inject the correct dose. Then every day you’d know to inject X amount of bolus/fast insulin and eat X amount of carbs. It is simpler in a way. Even now, decades after diagnosis, I often do that for my breakfast and lunch because it saves me thinking.

When I was first diagnosed, most people were on fixed doses of insulin and were also given carb sheets listing the carb amounts to have for each meal and snack. I still have mine somewhere. So, a perfectly reasonable option for you if you’d like it 🙂
I’ve emailed the diabetes clinic today and asked if they could contact me because I think I need to see them earlier. I walked quite a bit today because it’s been a busy day. I had crunchy nut cornflakes this morning with half a sliced banana and went up to 12. Lunch was fine and then dinner I had chicken and salad gyros which was 2 small focaccia with a smear of tzatziki and salad and chicken and 2 hours later I’m up to 14.8. It’s started going down but it’s made me really anxious again cos I don’t wanna go to hospital if it doesn’t come down on it’s own. I’ve had this meal before although I went up, I don’t remember being as high as that. I can’t check as I lost all my data when libre had that update and I got that white screen.

I really appreciate everyone’s advice, it’s made me quite emosh at times reading all your advice and comments and it definitely made me feel less alone. When I’m busy like today I haven’t thought about it as much but because it’s up, I’m stressing and feel super sad again wishing it wasn’t happening. Thinking about my cousin who passed in June.

Anyhow, do they give me a carb sheet? If they don’t - how do I work it out? I’m not the best at maths so need something easy.
 
I was given a carb sheet when I was diagnosed. It was really useful. They don’t tend to do that now but there are books and apps you can use, and packaged foods have the info on the label. You soon start remembering foods you eat often. Although it might sound complicated, it’s not. I remember thinking it was so strange to be looking at carbs but it becomes second nature. The supermarket online shopping websites are also great because they usually have the nutritional information on them.

I’m so pleased you contacted the diabetes clinic 🙂 Things will get easier - they really will.
 
I really appreciate everyone’s advice, it’s made me quite emosh at times reading all your advice and comments and it definitely made me feel less alone. When I’m busy like today I haven’t thought about it as much but because it’s up, I’m stressing and feel super sad again wishing it wasn’t happening. Thinking about my cousin who passed in June.

Anyhow, do they give me a carb sheet? If they don’t - how do I work it out? I’m not the best at maths so need something easy.

Good to hear you are feeling less alone @TinkV

While I completely understand your reluctance to start on insulin, I really think you’ll find things so much better once you have insulin to free up your food choices (and sort out your occasional mistakes). Those readings in the teens you‘ve been stressing about may still happen, but you’ll be able to fix them with a small correction dose (and maybe a stroll around the block to kick-start the insulin). They will be frustrating, but they won’t have to stress you out. You can sort them and move on with your day. And then learn that that meal (or whatever) needs a slightly different dose next time.

For estimating carbohydrate content of foods many here like the book Carbs and Cals which has photos of different portion sizes to help you gauge carb content. It’s also available as a subscription-app on smartphones. There are numerous ready-reckoner little books too - and smartphones mean you can search for grams of cerbohydrate per 100g. Plus there is carb information on food packaging too.
 
Good to hear you are feeling less alone @TinkV

While I completely understand your reluctance to start on insulin, I really think you’ll find things so much better once you have insulin to free up your food choices (and sort out your occasional mistakes). Those readings in the teens you‘ve been stressing about may still happen, but you’ll be able to fix them with a small correction dose (and maybe a stroll around the block to kick-start the insulin). They will be frustrating, but they won’t have to stress you out. You can sort them and move on with your day. And then learn that that meal (or whatever) needs a slightly different dose next time.

For estimating carbohydrate content of foods many here like the book Carbs and Cals which has photos of different portion sizes to help you gauge carb content. It’s also available as a subscription-app on smartphones. There are numerous ready-reckoner little books too - and smartphones mean you can search for grams of cerbohydrate per 100g. Plus there is carb information on food packaging too.
Thank you. I’m seeing diabetic dr Tuesday! Do non diabetics have readings that high when they eat does anyone know? What happens if I inject too much insulin? I’m worried my maths isn’t good enough. Last night I had chicken nachos which has huge chunks of chicken in it, Cajun sauce and obv nachos and didn’t affect my figures ar all, I stayed at under 7!
 
Thank you. I’m seeing diabetic dr Tuesday! Do non diabetics have readings that high when they eat does anyone know? What happens if I inject too much insulin? I’m worried my maths isn’t good enough. Last night I had chicken nachos which has huge chunks of chicken in it, Cajun sauce and obv nachos and didn’t affect my figures ar all, I stayed at under 7!

When you start using insulin you will need to take hypo treatments with you wherever you go, in case a previous dose (or extra unplanned activity) ends up lowering your glucose levels a little too far. On the whole ‘hypos’ are just a short term minor inconvenience (you eat 15grams of fast acting carbs then wait 15 minutes and that usually sorts it out). But very low blood glucose can be a bit more troubling and you can become confused or act strangely.

This is why @Inka said earlier that you usually start with a fairly cautious dose strategy and gradually learn how your body reacts to different foods, and which ones need insulin up front (and which are like your nachos and just beed watching for a late rise). 🙂

You’ll become your own expert in no time, and know more about your diabetes and how it behaves than anyone 🙂
 
When you start using insulin you will need to take hypo treatments with you wherever you go, in case a previous dose (or extra unplanned activity) ends up lowering your glucose levels a little too far. On the whole ‘hypos’ are just a short term minor inconvenience (you eat 15grams of fast acting carbs then wait 15 minutes and that usually sorts it out). But very low blood glucose can be a bit more troubling and you can become confused or act strangely.

This is why @Inka said earlier that you usually start with a fairly cautious dose strategy and gradually learn how your body reacts to different foods, and which ones need insulin up front (and which are like your nachos and just beed watching for a late rise). 🙂

You’ll become your own expert in no time, and know more about your diabetes and how it behaves than anyone 🙂
I’ve had a few lows in middle of night when I was feeding my baby. I just felt hungry and a little sick but I had no idea I was low. Then I had another low when I was stuck in traffic coming home from Devon and we hadn’t passed a service for lunch! Thankfully my kids had some Percy pigs do that sorted me out until I could eat quite soon after.

How long did it take you to come to terms with it all? I had my counselling session today and talking about it all has just made me real emosh all day!
 
I found it took me a few months to get over the initial feelings, then after that it gradually got easier. I never totally came to terms with it because I still get days when it makes me fed up, but that’s completely normal, I think.
 
How long did it take you to come to terms with it all? I had my counselling session today and talking about it all has just made me real emosh all day!

I think I clicked with mine fairly early - seeing it as a sort of challenge, and trying to out-fox it. There were certainly some ‘why me’ days early on, and a phase a little like grieving with the jumble of emotions that involves.

Generally me and my diabetes rub along OK these days, but there are some days where it drives me to furious rage, and others where it feels like just too much weight to continue to carry every. single. day.

It can feel a bit relentless after the first few decades. But having said that 30 years in, and I’m still fairly unscathed - for which I am extremely grateful.
 
Good to hear you are feeling less alone @TinkV

While I completely understand your reluctance to start on insulin, I really think you’ll find things so much better once you have insulin to free up your food choices (and sort out your occasional mistakes). Those readings in the teens you‘ve been stressing about may still happen, but you’ll be able to fix them with a small correction dose (and maybe a stroll around the block to kick-start the insulin). They will be frustrating, but they won’t have to stress you out. You can sort them and move on with your day. And then learn that that meal (or whatever) needs a slightly different dose next time.

For estimating carbohydrate content of foods many here like the book Carbs and Cals which has photos of different portion sizes to help you gauge carb content. It’s also available as a subscription-app on smartphones. There are numerous ready-reckoner little books too - and smartphones mean you can search for grams of cerbohydrate per 100g. Plus there is carb information on food packaging too.
Does anyone know if now the libra app shows you real time data - if you don’t scan it does it effect the time jn range data or does it know you’ve not been in range so counts it despite not scanning. If that makes sense
 
Does anyone know if now the libra app shows you real time data - if you don’t scan it does it effect the time jn range data or does it know you’ve not been in range so counts it despite not scanning. If that makes sense

Libre 2 has now become a realtime CGM. Initially the sensor would store up to 8 hours of data, so if you scanned a minimum of 3 times a day (though most will scan many more than that) you could get the full 24 hours of data.

Libre updates its readings every minute, and then amalgamates those values into (I think) plot points every 15 minutes for the graphs.

So yes, it captures the full 24 hours as long as your scans are at least 8 hours apart (eg last thing at night and first thing in the morning and then a few in between)
 
Libre 2 has now become a realtime CGM. Initially the sensor would store up to 8 hours of data, so if you scanned a minimum of 3 times a day (though most will scan many more than that) you could get the full 24 hours of data.

Libre updates its readings every minute, and then amalgamates those values into (I think) plot points every 15 minutes for the graphs.

So yes, it captures the full 24 hours as long as your scans are at least 8 hours apart (eg last thing at night and first thing in the morning and then a few in between)
Thank you. That’s super helpful.

I have my appt tomorrow. I’m wondering if it’s possible that you could have emergency insulin for back up if you go really high and you don’t come down. I’m keen to start off slow and at mo I do usually come down with no insulin.
 
People are usually started on moderate doses of insulin @TinkV and then the doses are built up gradually as needed. Sometimes people start with fast insulin for their evening meal only, for example. Even then, the amount they’re given to take is moderate (ie probably less than they need).
 
People are usually started on moderate doses of insulin @TinkV and then the doses are built up gradually as needed. Sometimes people start with fast insulin for their evening meal only, for example. Even then, the amount they’re given to take is moderate (ie probably less than they need).
Thank you, that makes me feel a little better. It’s my wedding anniversary today so we went for lunch to celebrate, I had steak, chips which I didn’t finish and a few onion rings. Brownie for pudding! Haven’t had pudding for ages!! It was lush, stayed in range all day, in fact I’ve been low 3 times today! I finished brownie at 1.45 and one only just gone up to 12 after flitting between 8 and 10 the last few hours!
 
Congratulations! I’m glad you had a nice meal.

You have options tomorrow. There are various possibilities regarding insulin regimes, eg just a small amount of basal (slow, background) insulin, limited use of fast/meal insulin as I described above, and a few others too. Every option will start small. It’s all done carefully and in tiny increments. Don’t worry about it. Have a wonderful evening 🙂
 
It’s my wedding anniversary today so we went for lunch to celebrate, I had steak, chips which I didn’t finish and a few onion rings. Brownie for pudding! Haven’t had pudding for ages!! It was lush, stayed in range all day,

Ah that‘s such lovely news @TinkV

Glad you had such a lovely celebratory meal.
 
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