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Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Newbie - type 1 diabetic
- Thread starter June JJ
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trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
Do you know why you need to cry June? Simply, it is one of the absolutely normal stages of grief! - and any chronic disease diagnosis can cause it. (That's chronic in the true sense of the word - which I always formerly believed meant whatever the adjective applied to was significantly worse than anyone else's diagnosis of the same medical condition, but turned out it really means 'life long' and not what I thought.)
Now - you aren't newly diagnosed, so I am bound to wonder if you have not received proper expert advice which makes proper sense to you and which you can easily accommodate, so I'm going to ask questions.
What insulins are you using, what are your blood sugar readings looking like and what HbA1c test results do you have, have you been taught to carb count and dose adjust? Have you been recommended any reading matter on the subject? What work do you do - any or none?
Now - you aren't newly diagnosed, so I am bound to wonder if you have not received proper expert advice which makes proper sense to you and which you can easily accommodate, so I'm going to ask questions.
What insulins are you using, what are your blood sugar readings looking like and what HbA1c test results do you have, have you been taught to carb count and dose adjust? Have you been recommended any reading matter on the subject? What work do you do - any or none?
KARNAK
Much Missed Member
- Relationship to Diabetes
- Type 1
Welcome to the forum June.
Lets try and help you? answer @trophywench questions? we are all here for you.
Lets try and help you? answer @trophywench questions? we are all here for you.
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
Hi @June JJ and welcome to the forum.
Sorry to hear that you have found things difficult. It does sound like you have been missing some specialist advice.
The insulins that you are using are the same as the ones i used when I was on injections and they do offer quite a lot of flexibility. Some more questions from me
- Have you been taught to carb count?
- have you been taught how to calculate correction doses?
These two things can help you to get control of your levels.
Have you been referred to the specialist team at your local hospital, or are you being managed at your GP Practice? It sounds like you need some help from the specialist team. Just ask is you have not been given access to this support. If you are already in their hands then it would be worth asking for an additional appointment. This might be via a video but worth asking for.
A book I found very useful when I was diagnosed was Type1 Diabetes in Children Adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was 53 at diagnosis. It is well worth getting the latest edition as it is regularly updated with the latest tech.
Keep in touch and keep asking questions.
Sorry to hear that you have found things difficult. It does sound like you have been missing some specialist advice.
The insulins that you are using are the same as the ones i used when I was on injections and they do offer quite a lot of flexibility. Some more questions from me
- Have you been taught to carb count?
- have you been taught how to calculate correction doses?
These two things can help you to get control of your levels.
Have you been referred to the specialist team at your local hospital, or are you being managed at your GP Practice? It sounds like you need some help from the specialist team. Just ask is you have not been given access to this support. If you are already in their hands then it would be worth asking for an additional appointment. This might be via a video but worth asking for.
A book I found very useful when I was diagnosed was Type1 Diabetes in Children Adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was 53 at diagnosis. It is well worth getting the latest edition as it is regularly updated with the latest tech.
Keep in touch and keep asking questions.
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
I am really sorry to hear how much you are struggling @June JJ
Diabetes can be a lot to get used to, and it can take some time, some effort and some support to find your feet.
Fortunately you’ve found the forum, and now you have lots of friendly folks to share the load and offer their hints, tips and experiences.
Have you been offered any kind of education or training course to meet with other people living with T1 and find out more about how to balance food, exercise, alcohol and what to do if you are ill?
Different ones run in different parts of the country - DAFNE is one, but BERTIE (another one from Biurnemouth) has an online version yoi can do at home
www.bertieonline.org.uk
Do you get seen at the hospital? or at your GPs? It is worth letting them know how difficult you are finding things.
Diabetes can be a lot to get used to, and it can take some time, some effort and some support to find your feet.
Fortunately you’ve found the forum, and now you have lots of friendly folks to share the load and offer their hints, tips and experiences.
Have you been offered any kind of education or training course to meet with other people living with T1 and find out more about how to balance food, exercise, alcohol and what to do if you are ill?
Different ones run in different parts of the country - DAFNE is one, but BERTIE (another one from Biurnemouth) has an online version yoi can do at home
Bertie Diabetes
www.bertieonline.org.uk
Do you get seen at the hospital? or at your GPs? It is worth letting them know how difficult you are finding things.
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
When are you due to next see your specialist team?
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
Good that it's so close - you'll have a lot to talk about!
Goldiebrowse
Active Member
- Relationship to Diabetes
- Type 1
Hi @June JJ you'll have a whole raft questions and answers will either further raise your frustration or give rise to more questions but forums like this are an amazing abundance of help and support. Do you have a diary, this will help you plot what foods etc cause spikes in your BG, it will also help you work out your carb/insulin ratio. I know it’s easy to say but try not to worry about the odd poor reading, these will come down with time. Everyone here is here to help and support as much as we can
thediabeticway
Member
- Relationship to Diabetes
- Type 1
So sorry you are feeling this way it's one of these things we all do and not an easy task for anyone coping with T1 glad you are also seeing a specialist team but I found to get more helpful things in forums like this and also Ground on Facebook and Twitter. The specialists can only you guide it's yourself who as to try to put these things into your own needs and well being which I ve also only found out after 50 years of T1. A good start is to lower your carb intake which by documenting things will help a great deal. There are some really helpful books too that can also be helpful in this matter! Carbs and Cals is a great one to have even in a power cut 🙂 Then after the food exercise is as much important as the food in helping keep the levels correct. Walking, Cycling is too great things in helping if you can run then great but for me running is def out of the questions 🙂 I personal don't like to get my levels over 10mmols as this makes me feel sick. Hope it goes well for you on Monday and please ask for a CGM they are needed item for all T1's as soon as you can get one on you the better.
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