Newbie but complicated type2 need help

[BinkyJo]

Hi I am totally new to coming to terms with being diagnosed with type 2 diabeties and was also diagnosed with Addison disease at the same time after waking up in hospital a week later as I was on life support and they only gave me a hour to live, I was also diagnosed with C/Diff and non alcoholic scholarosis of the liver which is 80% damaged (but I never drink) which explains the swollen stomache when infact they had diagnosed me from the age of 11 with Chrones disease and a ulcer in my juadenam when infact I have a hyetis hernia which they also treated me for from the age of 11 also, and that's without the physical injury I sustained and put me in a wheelchair for the rest of my life as I was a UEFA B football coach and portrayed around the country for my achievements even on sky newspapers women's magazines even McDonald's tray liners. But first I need help coping with the diabetes first cannot feel my feet and my eyesight has worsened drastically I am on 2 types of injectable insulin 18mls x 3 a day and 40mls of the other insulin at night I am so scared to eat now as when My husband does the blood test before each injection it often comes out at between 15-20 sugar level any help or advice would be gratefully received I simply are afraid to eat anymore age 47 now and feel like a total letdown to my family and as a wife and mum cheers for reading Jo 😳

 

[Copepod]

Welcome to the forum Jo. As you say, you are a complicated person!
Who prescribed your insulin? I'm sure those doses are units, not ml, by the way, as insulin is measured in.units, and there are 100 units per ml (apart from very concentrated 500 units per ml).
It sounds like you are taking fixed doses of insulin, rather than adjusting dose to what you are eating. This technique is called carb(ohydrate) counting. I think that asking whoever looks after your diabetes with you, to review doses. If they are unable to work with you to improve blood results, then ask to be referred to someone who can. Particularly with the potential for other conditions to interact eg Crohns affects what you can eat, you deserve to be under care of a specialist medical team, including physician, specialist nurse, dietician, podiatrist, eye specialist etc.

 

[grovesy]

Welcome.

 

[Bill Stewardson]

Hello to you Jo and welcome to the forum.

Plenty of more experienced people will offer you good advice in here.

Good luck with everything.

 

[Grannylorraine]

Welcome to the forum.

 

[Pumper_Sue]

Hello Jo and welcome to the forum. What medication have you been put on for your Addison's HC or pred or both? Also how much are you taking?The steroids can have a major impact on your blood sugars so perhaps ask for a pump under exceptional circumstances for a type 2 unless that is you have been misdiagnosed and are in fact type1

You don't say what basal (long acting) you are on but some can be split to get a better coverage. Do you inject 30 mins before you eat as this will help as well.
Another option is to look at the older insulins like Isophane/Insultard/NPH as they have quite a peak to them and this might help if it's times with your steroid dose.

 

[BinkyJo]

I cannot believe the warm welcome and support, you truly are here for one another. Thank you so much from the bottom of my heart ,


I contacted the hospital as my GP doesn't deal with injectables only diabetes that are controlled by tablet form. I contacted the hospital today and left a message stating who diagnosed me and even just before ringing them my hubby did my sugar level and it was 19 way to high yet I haven't eaten anything today, only had some 7UP FREE with lots of ice in it as I keep being sick,


My little toe nail had fallen off yesterday there was just a few speckles of blood but I did not feel it as my feet are completely numb and feel cold.


which has frightened me for over a week now so I have been manipulating my toes up and down X 2 Daily also malnipulating my ankles also and I read on here last night about moisturising your feet daily and I must admit I did feel a little better thank god for this site,


I must have read so much even with the new glasses I purchased online that you can adjust the lenses by turning the dial on each side just until I see my optician next week as my eyesight has deteriorated drastically over the past 6 months,


I double checked today that they had diagnosed me propperley and I was reassured that I was definitely a Type 2 Diabetic and that I definitely also have Addisons Disease,


I said it was wrong that on the day of my discharge the Diabetic Nurse came to my bed with a new sugar testing monitor that she had to show me how to use there and then with a box of 100 needles for that,


She then produced what look like pens one orange and one grey, She then said right you use the orange pen X 3 daily and you turn it to 18 but turn to 2 first before to make sure that it is working correctly she then gave me another box of 100 needles for the pens and showd me how to put it on the end of the pen when she took the lid off, then she said now here you go


she put a yellow bin beside me on the hospital bed, she told me to repeat what she had told me what to turn the end bit to test and then the complete dose she then said you inject into your tummy just stick the fine needle in now press down on the end piece until it stops wait ten seconds and remove


She then said place the cap the needle came in anti turn clock wise and put it all in the yellow bin, keep the pens in the fridge and your good to go and that was it,


My hubby came up as she was finishing and was not happy at all and asked her what happens if she passes out again don't you have a emergency number we can call ?,he asked her to go through the entire thing again asking questions along the way for his own satisfaction and that I would be safe,


I have always taken my insulin after food as I didn't know until I read one of the posts above about taking the insulin half hour before food and my nighttime dose is 40units not MLS like I thought as I was just told to turn one pen to 18 X3 daily and the grey one turn to 40


My hubby does all my medication for me as there's so many different tablets I am on some of which are C/D and it's really important that he does the right dosage and that all the other tablets are also checked off so none are missed especially the steroids as they protect my major organs if I was to go into shock or became unwell they then have to be doubled up and GP called out straightaway


I get confused about it all, I also have pituitary failure due to the goal post puncturing my lumber canal sending fluid containing protein straight to my brain causing my piturity gland to fill up with tiny tumours and failure instantly the affects of this is endless, so I don't even have any immunity


I am on prednisalone or sometimes they switch to Hydrocortisone steroids which I have to double up on if I start to feel unwell sorry about spelling mistakes,


I have a appt with the endo team in sept at QE as I was under KINGS but I haven't seen them for a couple of years also my neurologist was based there also basically I have just been left.


My GP went of alarming about this the other day hence me receiving a letter today to see the top consultant in my local hospital where everything has been transferred seeing as KINGS has forgotten me,


Just had gastro appt this week they have doubled up on my water tablets and introduced another did blood work straight away as they want to do a liver biop and scan to see if by increasing my insulin could help My liver and the Dr wants to see me again in 8 weeks,


So I am getting somewhere abit further then I was, and by reading the posts from this morning gave me courage to keep calling the hospital until I got the right person to give me the answers


And the help pages gave me the confidence to contact the Diabetic team as I basically had given up trying


So THANK YOU so very much hugs Jo X

 

[Flower]

Hello and welcome BinkyJo 🙂

What a lot of tough stuff you've got to deal with. Best move diabetes wise is to be seen at a hospital clinic so contacting them is a positive move for you.

Eyesight is affected badly around the time of a diabetes diagnosis. The lens in the eye changes shape and swells due to the very high concentration of glucose that has been floating around your body. It will improve as soon as your blood sugar levels start to get into normal range but I know it is a very distressing thing to deal with. I'm sure your optician will confirm this and advise against buying any new glasses for a good few months until your blood sugar is getting back to normal.

The numbness in your feet may well be linked to high glucose levels affecting the nerves. Transient peripheral neuropathy can cause numbness, tingling and pain down the legs and feet and like the problems with the eyes is usually something that improves once blood sugar is under control.

Keep on at your gp and diabetes clinic for a quick appointment as you have a lot to contend with and getting the correct amount of insulin at the right times will start to help with the problems attributable to your diabetes diagnosis.

Good luck @BinkyJo and please let us know of any help, advice and support you may need. This forum is a fabulous place for all of that 🙂

 

[Pumper_Sue]

@BinkyJo please can you break you post into paragraphs please many including me can not read solid text ta very much 🙂

 

[BinkyJo]

@BinkyJo please can you break you post into paragraphs please many including me can not read solid text ta very much 🙂

So sorry that I didn't do paragraphs only I have to rush as I remember due to the short term memory loss, in future I will try and write it down before I post I am sorry.

Again Thankyou so much for the new replies and the self esteem you have given me, I was so scared and basically throwing down the gauntlet and you have given me hope and that life will get better.


I am totally indebted to your kindness, Consideration, Compassion, but mostly the hand of friendship and knowledge that you give to someone that only joined yesterday and already you have made a huge impact on my life.

Again thank you so much if I can be of any benefit to help others or the site, I have lots of time that I have to offer hugs & sincere gratitude Jo. X

 

[Pumper_Sue]

So sorry that I didn't do paragraphs only I have to rush as I remember due to the short term memory loss, in future I will try and write it down before I post I am sorry.

Again Thankyou so much for the new replies and the self esteem you have given me, I was so scared and basically throwing down the gauntlet and you have given me hope and that life will get better.
I am totally indebted to your kindness, Consideration, Compassion, but mostly the hand of friendship and knowledge that you give to someone that only joined yesterday and already you have made a huge impact on my life.

Again thank you so much if I can be of any benefit to help others or the site, I have lots of time that I have to offer hugs & sincere gratitude Jo. X

Can you edit your post Jo then I can read it an answer it for you as I have Addison's as well.

 

[Lucy Honeychurch]

Hello and welcome, sorry to hear you have so much to contend with x

 

[BinkyJo]

Hope I have done it better for you,
Sorry for being so slow hope you understand. I am not as good as I used to be.

Also gave me the chance to correct and remember some things that I had forgotten so also helped me a lot so thankyou.


Kindest regards Jo

 

[Pumper_Sue]

Hello again Jo,

Can you tell us what insulin you are on and also what you eat also how much steroid are you on and what time of day do you take it?

Hopefully with this info we can help a bit more.

 

[BinkyJo]

Hello again Jo,

Can you tell us what insulin you are on and also what you eat also how much steroid are you on and what time of day do you take it?

Hopefully with this info we can help a bit more.

Yeah hopefully I'll be able to get hubby bring up all the info you need by getting him to help me remember what time he gives me what insulin the nighttime one is always about 10.30pm that's the grey one every night along with my nighttime steroids and other meds, and what time I take my daytime meds that can vary as I don't sleep to well also sometimes he gives me my insulin as I sleep he really has been my rock,as I'm mainly bedbound at the moment he's been up and down the stairs all day with me and he's just sat down to have a cup of coffee and think of something to eat himself for the first time in nearly 2 weeks.


I just managed to eat half a lasagnes for one then I started to feel sick again now, terrible pain in belly again,and having sweats and I told him to give me my final daytime dose at 6.00pm 30mins before I ate which we did

perhaps to much to soon, gastro DR who I saw on Monday said to avoid SALT like the plaque and to eat little but often but to sip on flavoured water or ice water to stay out of hospital again as before I ended up on life support or the ICT unit where I had passed out cold, and my body was in all sorts of trouble


He said the 7UP FREE was probably the best treat I could have in between with ice, water it down but also a thirst quencher


SALT as this also affects the liver as well as Addisons at least I know now all the side affects since my piturity gland pact up all ties in I was starting to think that people would think I was a hypercontriact or I was going mad, thanks so much for all the help you are giving me


With fondest wishes and Gratitude, I hope you all are not going through any pain and wish you nothing but the best Jo

 

[Wirrallass]

Hello BinkyJo and a warm welcome to our friendly helpful and supportive forum. So sorry to see you have many health issues to deal with - one alone is more than enough to contend with - but then to be dx (diagnosed) as having Type 2 I guess must have come as a shock as well as being diagnosed as having Addison disease (((Hug))) Diabetes can be a daunting prospect for some but we lend our support and help each other here.

I'm sorry I can't help you as to the use of insulin so I'll leave this to the experts.

We are here to answer as many questions as you wish to ask so do feel free - and please remember you are not alone on your Diabetes journey. You have come to the right place for support knowledge and expertise. Take care BinkyJo and do please stay in touch.x
WL

 

[Pumper_Sue]

Yeah hopefully I'll be able to get hubby bring up all the info you need by getting him to help me remember what time he gives me what insulin the nighttime one is always about 10.30pm that's the grey one every night along with my nighttime steroids and other meds, and what time I take my daytime meds that can vary as I don't sleep to well also sometimes he gives me my insulin as I sleep he really has been my rock,as I'm mainly bedbound at the moment he's been up and down the stairs all day with me and he's just sat down to have a cup of coffee and think of something to eat himself for the first time in nearly 2 weeks.

Ok no 1 who ever told you to take your steroids at night?
They are meant to be taken 1st thing in the morning so they mimic your body's need for cortisol.
I'm quite surprised you have been given pred because Addison's is normally treated with hydrocortisone.
The steroids at night will cause your lack of sleep.

Salt! most people with Addison's need salt a lot more than those without as they don't have the ability to retain it. A drug called florinef spelling* is normally given but not sure if this is the case with pit problems. @mikeyB would probably know.
I look forward to hearing your steroid dose.

 

[New-journey]

So sorry that I didn't do paragraphs only I have to rush as I remember due to the short term memory loss, in future I will try and write it down before I post I am sorry.

Again Thankyou so much for the new replies and the self esteem you have given me, I was so scared and basically throwing down the gauntlet and you have given me hope and that life will get better.


I am totally indebted to your kindness, Consideration, Compassion, but mostly the hand of friendship and knowledge that you give to someone that only joined yesterday and already you have made a huge impact on my life.

Again thank you so much if I can be of any benefit to help others or the site, I have lots of time that I have to offer hugs & sincere gratitude Jo. X

You write with so much warmth and generosity, and that really touches me when you are going through so much. I am not much help practically but want to send all my support and love, (((((hugs))))))

 

[BinkyJo]

Thank you so very much I have learnt so much on here from other supporting members-who welcomed me with open arms and helping me at a time of crisis.


which at least now that I no longer need to feel like throwing the gauntlet down and for the 1st time today, I had a healthy breakfast half hour AFTER having my insulin injection (Novorapid ASPART 18 units which is a Orange flex pen X 3 per day ). Which I didn't even know the name of my daytime insulin and (40 units of Glargine X 1 at night)


That it's Units NOT MLS Which I was left to believe, when infact that is units the correct term which I have learned and that I should be taking it before Meals.


I could not believe My sugar level was 10 instead of 19-20 's and it was the first meal I had in nearly two weeks and my sugar level had dropped, As I was afraid of my sugar levels going increasingly going up but it was due to the very kind members on the forum that reached out to a newbie member that was So afraid that helped me on my way.


I Will never forget from all the members that gave me the strength and support of having the opportunity to be part of a family of friends.


which my situation is very complicated but that wasn't too large a load for them to see me as person and some who also shared the same problems. Well that's how I feel on here that fate brings people together for a reason.


It truly is the most educational helpful tips, Amazing supportive forum and site That I have ever come across from eBay- to card making, and we can only be all together due to the people that lead by example, That's how much faith I have in this site as it can only be as good as the everyday members from all walks of life.

I can only thankyou all for comfort and support that you all have given to me over a weekend. I have learned so much and able to say today that I am able to enjoy eating again and today is the first day of having 2 meals a day that I learned to plan ahead. With again a great app for meals on here so as I can try to put together with a little help from my family. Re: using the cooker and some guidance.

As always appreciation to you all. Wishing you all the best in life, love and wellbeing for a brighter tomorrow

Jo ((HUGS))



So when I say from the first time I had a desktop version of computers, it must be 19 years,at least online on and off, This site deserves an award for being the best.

 

[grovesy]

Glad you feel you have been helped.