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New type 1

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Nikki35

Nikki35

Active Member
Relationship to Diabetes
Type 1
Hi everyone!
So in the last 4 weeks I have gone from being a non-diabetic to type 2 diagnosis, to now be told I'm type 1. I was given a bundle of insulin and what feels like too much information to take in.

Im 35, 5 foot 5 and now just under 11 stone. About 8 years ago i weighed nearer 18 stone and with sheer determination i lost weight. So more than slightly gutted to be given this diagnosis now.

I have had traces of ketones so i'm self testing, and injecting insulin before meals and bed.
Does it become easier?
Its very isolating as those around me don't understand.

Hba1c was 126
NovoRapid and Levermir units since Friday

Any advice gratefully received!
 
Hi Nikki and welcome to the forum. 🙂 Well done on the weight loss but T1 is an autoimmune condition not related to any lifestyle factors so you would have got it whatever you ate or weighed. Although there is a lot to take in at first it does get easier and it will soon become second nature. Are you on fixed doses of the NovoRapid?
 
Hi Nikki

Sorry to hear about your diagnosis. Yes there is a lot to take in very quickly BUT it does get a lot easier. A bit like learning to drive. At the start there seems to be far too many things to do all at once. Then after a while you start to do many things automatically.

There are loads of people on the forum, very happy to ahelp in any way that they can. Do ask any questions that you have( and there are definitely no sillly questions). If you are at all unsure about something just ask and someone will come along with some help.
 
Matt Cycle said:
Hi Nikki and welcome to the forum. 🙂 Well done on the weight loss but T1 is an autoimmune condition not related to any lifestyle factors so you would have got it whatever you ate or weighed. Although there is a lot to take in at first it does get easier and it will soon become second nature. Are you on fixed doses of the NovoRapid?
Click to expand...

Thankyou! At the moment I'm changing doses by 1or 2 units depending on readings pre-meal. But not higher than 6 units for a minute.
Also 10 units of levermir at 9pm.
Glad to hear it does get easier!
And I know there is nothing I could have done to prevent it, just 1 of those things 🙂
 
SB2015 said:
Hi Nikki

Sorry to hear about your diagnosis. Yes there is a lot to take in very quickly BUT it does get a lot easier. A bit like learning to drive. At the start there seems to be far too many things to do all at once. Then after a while you start to do many things automatically.

There are loads of people on the forum, very happy to ahelp in any way that they can. Do ask any questions that you have( and there are definitely no sillly questions). If you are at all unsure about something just ask and someone will come along with some help.
Click to expand...


Everything kind of snowballed very quickly. Finger pricking is second nature now, need to do it 7 or 8 times a day at the moment.
All is a little overwhelming...
And i will definitely ask away, thankyou 🙂
 
Hiya Nikki and welcome.🙂 Sorry to hear about your diagnosis. It sounds like you’re already getting used to your new normal tho - good for you.😛 It IS overwhelming at first, but it DOES get easier. @SB2015’s driving example hits the nail on the head! 🙄
 
Hi Nikki and welcome to the forum.
 
Hi Nikki and welcome to the gang 🙂
 
When you feel like finding out some more I would highly recommend one book, Type 1Diabetes in Children, adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was diagnosed at 53 and find the book invaluable. I only found out about it through this forum and wish I had had it at diagnosis. However I still refer to it regularly as it has such clear explanations.
 
Hi Nikki. Welcome to the forum. I've had Type 1 for 46 years and for the majority of that time it has been going and I've had a great life.
 
Hi Nikki, and welcome 🙂
I'm glad they worked out you are type 1 so quickly, and didn't just assume type 2. Yes, it does get easier, and you will also find you feel a lot better as your HbA1c comes down.
If you have any questions, please do feel free to ask - someone here is sure to know the answer!
 
Hi Nikki! I'm new too - your experience sounds very similar to mine, although I haven't had any tests for Type 1 yet, but I've been on insulin since diagnosed 5 weeks ago. It felt like a huge shock at the time and trying to slowly gain some knowledge so that it doesn't feel too overwhelming. Hope it gets easier for you x
 
SB2015 said:
When you feel like finding out some more I would highly recommend one book, Type 1Diabetes in Children, adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was diagnosed at 53 and find the book invaluable. I only found out about it through this forum and wish I had had it at diagnosis. However I still refer to it regularly as it has such clear explanations.
Click to expand...
SB2015 said:
When you feel like finding out some more I would highly recommend one book, Type 1Diabetes in Children, adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was diagnosed at 53 and find the book invaluable. I only found out about it through this forum and wish I had had it at diagnosis. However I still refer to it regularly as it has such clear explanations.
Click to expand...

Thankyou. I am happy to read anything which may explain things a little clearer, and I'll ignore the age reference! One thing I have learnt is that nothing about my diagnosis is 'typical'.
I will ask Father Christmas for the book instead of a box of Lindor sweets!
 
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B!tchBeTrippin said:
Hi Nikki! I'm new too - your experience sounds very similar to mine, although I haven't had any tests for Type 1 yet, but I've been on insulin since diagnosed 5 weeks ago. It felt like a huge shock at the time and trying to slowly gain some knowledge so that it doesn't feel too overwhelming. Hope it gets easier for you x[/QUOTE
Click to expand...
B!tchBeTrippin said:
Hi Nikki! I'm new too - your experience sounds very similar to mine, although I haven't had any tests for Type 1 yet, but I've been on insulin since diagnosed 5 weeks ago. It felt like a huge shock at the time and trying to slowly gain some knowledge so that it doesn't feel too overwhelming. Hope it gets easier for you x
Click to expand...

Hi! Its a strange, almost surreal, experience. In some ways I feel like I've been given so little support from Dr and hospital. Its lije they've given me insulin and off I pop. Yet without them I wouldn't have a diagnosis. I'm trying to learn, its a case of having to as we go!
I hope you are managing okay x
 
Hey Nikki - one of the most apt phrases I ever heard about diabetes was on here (I think) - 'This is a marathon, not a sprint!'

I'm still learning - though admittedly there wasn't anything not written in medicalese, or language suitable for a 5 year old before they invented the WWW ! Hence my learning curve in the last 20 odd years has been steeper than I ever could possibly have envisaged!

As I always knew, the workings of the human body are very intricate and are not a matter of studying hard for a few years and then knowing it all - cos they will insist on finding out new things about it all the while - so we can never stop, just in case it affects 'me', can we?
 
Hey. I love that saying! Im only a month into my diabetes journey and i'm being asked questions that I don't know the answers to! It can be frustrating and incredibly isolating all at the same time. I'm trying to be a little less overwhelmed by it.

And I guess that newbies like myself are lucky to have the WWW and support groups to help us on our way. Its certainly helping me already!
 
Nikki35 said:
Thankyou. I am happy to read anything which may explain things a little clearer, and I'll ignore the age reference! One thing I have learnt is that nothing about my diagnosis is 'typical'.
I will ask Father Christmas for the book instead of a box of Lindor sweets!
Click to expand...
Ask for both.
I eat one really nice chocolate each day (or that is the plan!!)
 
SB2015 said:
Ask for both.
I eat one really nice chocolate each day (or that is the plan!!)
Click to expand...

Well I already have . I asked for the book but said chocolate wasn't completely off my list as i could just have a teeny tiny bit each day!
 
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