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New Type 1 diagnosis -13 year old boy

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
A late welcome from me Billy....sorry to hear of the diagnosis.......I was 15 when I became diabetic, and looking back, it wasn't that bad......and that was before basal/bolus regimes and structured education/flash glucose systems etc.....

so your boy is in good hands....
 
i hope the training session goes well. There have been some interesting threads on here about how private or not people keep their diagnosis and you are right, it is worth thinking carefully about.
 
Thanks for all the messages. We've had a hectic mad first week going from the horrible feeling of the diagnosis on Friday 20th, 3 days of measurement in hospital through to getting my son back to school on the Wednesday, starting with a half day first. We do feel much more in control now we understand a bit more of the measure/count/injection regime. His glucose is still consistently above 10 but it is coming down and the hospital says he is doing ok.

We've got a Libre Freestyle patch installed on him which has been helpful for getting quick reassurance of where he's up to at night and during the day outside of the regular finger prick measures. It was good that all this kit has been free on the NHS (apparently a recent change with the sensors). The hospital and all the staff on the children ward have been brilliant. Everyone from the senior consultant through to the cleaning staff have been kind, considerate and professional to a fault - even putting up with me sleeping on the ward for 3 nights.

Getting my son organised for school has been a challenge. He was bit chaotic anyway, especially when he had a trumpet and sports kit, and now he has his insulin kit to remember too. We took him for for an eye test yesterday and he now also has glasses. We aren't sure if this is linked to the diabetes or just the way his eyes have become. We have another test booked in a fortnight.

We are running into exam revision time now which adds more pressure in the house. We had this anyway with conflicts with his xbox which was always a battle to limit. When he is moody ('time to revise - get off your xbox'), we aren't sure him being a teenager or is something linked to higher blood sugar. I need to look into this. A colleague at work with Type 2 mentioned he was moody when his blood sugar was up.

My son made it to rugby training on the Thursday as planned ready for the final on 6th May. He was a bit nervous about going but all the boys were great and he was soon playing as physically as he always was, even with the sensor on. It turns out he'd lost over 5kg before the diagnosis so I think it makes a difference now he has got some of his weight back.

Thanks again for all the messages and support. We'll see how we go on this week.
 
Thanks for the update - what a week! It's great that you have a libre, as you say, fantastic for reassurance and as you get used to things, for spotting trends and patterns in blood sugar levels. Glad the team is do good and you feel well supported.
High blood sugars often affect eyes temporarily and this tends to resolve as blood sugars go down. Hopefully the glasses were free for children.
You are quite right to think the mood swings may be due to high blood sugars. I was diagnosed wrongly and spent 9 months with high bs. During that time I would totally loose it with my kids over the slightest thing. It was hugely upsetting as I felt out of control and didn't know the cause. When re-diagnosed and given insulin I went back to normal. However as I have a 14 year old in the house, I can only sympathise and wish you good luck on working out what normal is 😉.
 
I bet you are the 'only parents who make their son stop playing with' an X-Box, Game Boy, Lego, football - whatever just happens to be the trend at the moment ,because nobody else has to do this!'

You are exactly as totally unreasonable as parents always were, still are and hopefully evermore will be, for their kids education needs. Of course it didn't used to start until a bit later - but I can easily remember having such unreasonable parents when I was at school myself, even though I'm 68 now. I could be 'a right little madam' when I wanted to be though funnily enough 99% of reasonably well educated adults admit to the same.

High BG does indeed make us grumpier than usual - but adolescents of either gender are most definitely grumpy anyway. You could try striking a dad/son deal with him. Explain that you've researched it and discovered that high BG always makes T1s grumpier than normal - but since you aren't him so never know whether it's that or not, can he simply reserve his grumpiness for when he is high. If he agrees, then say good - and then test his blood every single time he grumps! - no exceptions 'just in case'.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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