New to diabetes but waiting to be given definate type is this normal?

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harryharry2012 said:
Well sugar levels today have stayed below 20 (Between 14-19) which is better but i do not feel any better, I am guessing I am going to feel rough until I see the specialist, got hopes up that maybe if they came down all would be good with the world .... even thought mmmmm could get back to work earlier but I think it is slowly sinking in that if I push my self i will be even worse and quite frankly, i cant see how much more crappy I could feel. I shouldnt moan as people have a much worse situation than I but I just find being able to post as a bit of therapy. Please dont think I am always moaning!!!!:confused:!
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Hi Harry
Moan away, I sometimes think that this is the only place I can do proper moaning!:D
Hope you'll get definate dx and suitable treatment asap.
Kay🙂
 
We understand Harry. I promise you will feel much better once you are diagnosed 🙂 I felt so ill when I was diagnosed, but a couple of days later I felt fighting fit and felt a bit of a fraud/frustrated at still being in hospital! I even expected to be able to go and run the marathon I had planned to do a week later! I can't help but think that you need insulin, although I may be wrong of course. You will still feel bad because your blood glucose levels are still twice what they should be, instead of three times so don't feel bad about feeling bad - if you see what I mean! 😉
 
Well i have just recorded my lowest BS test level 10.3. This I am happy about!:D

Just a litttle concerned as to why my Kidneys are aching or the lower back area is. Trying not to get too excited as i have had a low bs dip before and then it goes up but something different i suppose.:confused:

Tried more exercise yesterday, which was good but meant i was so tired i was in bed very early and feeling a bit rough by end of the day:( Hoping beyond hope the specialist can help to make me feeling human for a day again!)
 
Hi Harry

Hi, I`m new to this site too and have found it a great comfort. I am newly diagnosed with type 1 at the age of 54 and like you it came as a great shock. However been to the clinic again today and been told that they`re now not sure what type I have because of an auto immune thingy! Don`t let this other doctor get you down and don`t see her again, some are good, some are useless. Best of luck with everything and look after yourself.xx
 
Well going to see the consultant tommorow to hopefully be told what type of diabetes. My sugar levels are have now been 7 when i get up for two days so I am hoping that maybe all the tabllets are starting to work, they seem to be. Im fed up of trying to self diagnose and work out! (My brain thinks its Doctor Kildare)

Still very confused over why i a still not feeling better though and after any sort of exercise i need to sleep after, the tingling in the fingers and toes and aching in the legs! I thought once i got my levels down it would all be well again but that dosent seem to be happening. I am not sure if I am having hypos or what to do because my levels are not yet managed!:confused:

Have made a list of questions but was wondering if anyone has any tips on key questions i need to ask!
 
The morning readings sound a lot better Harry - good news! It will take quite some time before you are feeling well again as blood sugar levels have a major influence on almost everything you can think of - and probably never even considered before! I hope that the consultant has some good answers for you. Some people find it helpful to take a friend or relative with them as there can be a lot to absorb and two heads are better than one.

Ask about what tests you can expect (for your feet and eyes in particular, but also things like kidney function and cholesterol). Also, ask for blood testing strips to be prescribed so that you can judge how any dietary changes affect you and retain some flexibility in your diet.

Of course, you may have a lot of other questions if they diagnose you as Type 1 and needing insulin. If you are told anything and you don't quite catch it or understand it, ask for it to be explained again.

Good luck! 🙂
 
🙂🙂Well i have been to see the specialist and they now think most prob type 2. They are keeping me on current meds 4x metformin and sital ..... cant remember at the momemnt. Blood pressure good and no ketones. they are going to review in 3 months to pssibly change to injections. Head spinning from information but now feeling more in control with a better idea of how to improve things.
Got to go for more blood tests, eye and see the diet person ........... that will be fun! Feeeling happier thats for sure.
However what is not clear is will I suffer from hypo or hypas? as this was not discussed. if i am feeling rough i know i will check my bs but what next?
Thanks again for all your support and advice so far!🙂
 
Hi Harry, glad to hear that you have had a more positive diagnosis, if not totally convincing! Hypos only really affect people who are treated with insulin, although there are certain other medications - possibly sitagliptin, which is what I think you are on - that can cause lows. You may experience the symptoms of a low without actually being hypo, as the body sometimes 'thinks' it is low when you begin to get your levels into a more normal range. If you feel odd, always best to test so that you can associate the sensations with a number. Hypers are the opposite end of things and we can all suffer from them if we happen to eat the wrong things. Personally, I think of a hyper as being anything in double figures, but you may get a few in this range before your medication really starts to work. The symptoms of a hyper tend to be much different from a low/hypo - I usually feel a bit sick.

Glad to hear you sounding so much happier - you know where we are if you have any questions! 🙂
 
Just read up what Sitagliptin does in my Diabetes X-Pert notes (that's its trade name apparently, it's also known as Januvia).

"It's a DPP-4 inhibitor that reduces the action of an enzyme that breaks down a naturally occurring gut hormone. This hormone helps to stimulate insulin production. People are less likely to experience hypos or weight gain with this medication."

So, I take that to mean that it is possible to suffer a hypo using it, but it isn't as likely as someone on insulin or gliclazide.

Andy 🙂
 
harryharry2012 said:
........................but now feeling more in control with a better idea of how to improve things.
Got to go for more blood tests, eye and see the diet person ...........
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Hi Harry,

I'm a non-insulin-dependent Type 2 myself. I'm glad things seem to be improving for you so quickly.

Has anyone suggested to you that maybe you should reduce the amount of any starchy carbohydrate that you eat - i.e. cereals, bread, potatoes, pasta, rice, pizza etc? Because that usually leads to a big improvement in blood glucose levels - and quickly too.

Good luck and best wishes - John
 
you dont need 4 s harry just try and keep steady levels dont swing to much ...you've come down a long way since you first started to test ...so somethings working ...best of luck x🙂
 
I am reading your journey with fascination

harryharry2012 said:
Well best day yet 5.3, 5.0, 5.2, 5.3 🙂🙂🙂

Hoping to get to 4 at some point.
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Hi Harry, Christine here, I was diagnosed on the 9th Sept, got the blurry eyes the cramps, thirst, peeing so MUCH - 3-4 times every night too! Doc told me to drastically change my life style and the nurse would advise me, I couldn't see her for 15 days as she was busy!!!! I had no clue (and still not much better) what to eat, what to do or not do! Half of my symptoms I didnt realise were because I was so poorly, numb feet, cold feet etc etc I am still finding things out now, bloke at work advising me as he is diabetic too. I don't know if I am type 1 or 2? The nurse told me to 'live like a nun' until I can have more blood test, she thinks i might have to inject if my levels dont come down! I am impressed that you all know your levels, I KNOW NOTHING! I was immediately put on metformin and statins for my cholesterol (yep that was high too). I go to see the nurse on Wednesday just before my flight to Australia to see my sister. I am worried about the plane, I have no clue what to do. My head is woosey so much and I feel 'odd' people tell me to eat a mars bar!!! the nurse said dont eat chocolate - I'm listening to the nurse obviously and 'living like a nun'. Cant wait to get sorted then I can relax a bit.
 
CD1959 said:
Hi Harry, Christine here, I was diagnosed on the 9th Sept, got the blurry eyes the cramps, thirst, peeing so MUCH - 3-4 times every night too! Doc told me to drastically change my life style and the nurse would advise me, I couldn't see her for 15 days as she was busy!!!! I had no clue (and still not much better) what to eat, what to do or not do! Half of my symptoms I didnt realise were because I was so poorly, numb feet, cold feet etc etc I am still finding things out now, bloke at work advising me as he is diabetic too. I don't know if I am type 1 or 2? The nurse told me to 'live like a nun' until I can have more blood test, she thinks i might have to inject if my levels dont come down! I am impressed that you all know your levels, I KNOW NOTHING! I was immediately put on metformin and statins for my cholesterol (yep that was high too). I go to see the nurse on Wednesday just before my flight to Australia to see my sister. I am worried about the plane, I have no clue what to do. My head is woosey so much and I feel 'odd' people tell me to eat a mars bar!!! the nurse said dont eat chocolate - I'm listening to the nurse obviously and 'living like a nun'. Cant wait to get sorted then I can relax a bit.
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I have found this site really helpful as still waiting to se a range of nurses etc. I supose for me i stopped booze and have followed a low GI diet as well as the drugs etc. I know how you feel as no one can make a definate decision but i am just happy as i have started to get everything sorted. I have found that a variety fo approaches is helping me and i have kept record of what i am eating and testing 4 times a day. Ask you nurse for a blood testing unit!

I am sure your australia trip will be fine! I was told i would have to inject and could do as they will review in three months.... lots of uncertatines but if you do have concerns post them on here and people will give help that makes sense (not he mars bar stuff!!!!!!)
 
Mars bars are not the best hypo treatment because of the fat content (fat tends to slow down the absorption of glucose into the bloodstream).

You need something that is faster acting like glucose tablets (I used to use Dextrose) or jelly babies (Northey's favourite!). Lucozade is another possibility, if a little more bulky.

Andy 🙂
 
Sorry Christine i forgot to say good luck with the nurse and i am not living too much like a nun, quite enjoying cooking different food types and losing the weight is no bad thing!

Rant away any time i do it all the time, it just seems better to doit on here ratherthan to my wife whos had toput up with the mood swings..... not so sure I would have been so supportive!😱
 
Strange day with levels going up and down from 4-10.8 I now feel very tired. Have not had anything different to eat so just confused as to why I am up and down today.😡
 
harryharry2012 said:
Strange day with levels going up and down from 4-10.8 I now feel very tired. Have not had anything different to eat so just confused as to why I am up and down today.😡
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Do you feel like you might be coming down with the flu or anything like that? or have you had a particularly stressful day all of these factors can make your levels go up and down x
 
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