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New T1 Hello!

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Phil9009

New Member
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Type 1
Hello all, diagnosed Type 1 in November, aged 35 - a bit of a surprise!

H1 over 100 at diagnosis, latest bloods down to 71 so going in the right direction and enjoying my ‘honeymoon’ period at the moment.

Phil.
 
Welcome to the forum from another late starter (53). It can happen at any age.

If you are happy to tell us what insulin(s) you use it will help people tailor their answers to you.
There is a lot to learn at the start but then it just becomes part of your new ‘normal’ life.
You can still do most things that you did before but it just takes a bit more organisation and planning.

If you have any questions at all just ask.
 
So I was told, it was a wonderful birthday / Christmas present.

My Basal is Humalin I, morning and night with Humalog for my QA. Very small doses at the moment, with a few minor adjustments for exercise (currently running but hopefully golf and cycling once allowed / better weather).

Keeping myself ticking over post exercise has been the biggest challenge so far, I have Run Sweet on my reading list, along with the forum. I’ve also just invested in a couple of the libre 2 sensors to see how good they are, my finger tips were getting sore 🙂

thanks for the welcome, Phil.
 
Hi and welcome @Phil9009 , glad you've found us 🙂

A diagnosis does come as a bit of surprise, who knew what an amazing job the pancreas did completely unnoticed!
Good to hear you're managing to adapt as well as possible, it is a very steep learning curve and you have to hit the floor running. There's some great diabetes tech around now such as the Libre sensor which enables you to see an around the clock picture of what your blood glucose is up to.😳🙂
 
Hi @Phil9009 , welcome to the forum!

Getting a diabetes diagnosis is a shock for most so you're in the right company. Well done on managing things thus far. We've got a wealth of knowledge on the forum to assist you so feel free to have a look around and let us know if you have any questions or concerns.
 
Very odd starting a T1 on a mixed insulin as their Basal instead of a long acting one in this day and age.

The 'I' stands for 'intermediate' since it is neither slow not fast but a mixture of both which may please itself when it decides to reduce the blood glucose.

I am not a fan, and neither were the crash barriers on the M42 or either of the firm's cars I wrecked.
 
Hello and welcome to the forum @Phil9009 🙂

Good grief!
I am not a fan, and neither were the crash barriers on the M42 or either of the firm's cars I wrecked.
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Thank you everyone.

I started with Libre2 last night - fantastic so far!

I haven’t had any real issues so far with the Humalin, but it’s early days and I’m still on low doses (6 units morning and night), so fingers crossed that continues!
 
So are you seeing (albeit virtually just now) a hospital diabetes team, or your GP? - cos Libres are often obtainable on prescription for Type 1s now.

My consultant is very much in favour of all types of CGM but has to cut his coat according to the CCG who are simply risk averse to spending money ...... they were the same with insulin pumps for ages after the NHS started funding them, but that was well over 10 years ago now.
 
trophywench said:
So are you seeing (albeit virtually just now) a hospital diabetes team, or your GP? - cos Libres are often obtainable on prescription for Type 1s now.

My consultant is very much in favour of all types of CGM but has to cut his coat according to the CCG who are simply risk averse to spending money ...... they were the same with insulin pumps for ages after the NHS started funding them, but that was well over 10 years ago now.
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Hi, I’m having a few check up calls with the diabetes team. I had regular meetings initially but as everything is currently settled we’ve reduced the frequency until the honeymoon ends. I’m in regular touch with a dietician and had a 3 month check with a consultant. The whole team have been fantastic in my opinion.

there are a number of criteria to hit to get the libre on prescription with my trust, I don’t quite meet currently so it was suggested I could buy myself to prove it’s usefulness, which I’m happy to do in the short term to trial it for myself.
 
Humulin I is isophane- an intermediate acting insulin but not mixed-
Wouldn't prescribe it first choice to a type one but some seem to do fine on it as part of a basal bolus regimen
 
Ooops, that was from memory, I'd wiped the word Isophane from the memory banks - main thing was I got the adjective intermediate in!
 
Welcome to the forum @Phil9009 - glad you are getting on well with the Libre2. Makes such a difference just being able to check BG whenever you fancy, and to see what goes on ‘between the dots‘ - especially at night!
 
Hi Phil, I'm also a new type 1 - diagnosed on new year's eve at age 30! Welcome!

I've been using the libre since diagnosis and have found it generally very good, but have already had to send back 2 faulty sensors
 
Alex B said:
Hi Phil, I'm also a new type 1 - diagnosed on new year's eve at age 30! Welcome!

I've been using the libre since diagnosis and have found it generally very good, but have already had to send back 2 faulty sensors
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Welcome to the forum @Alex B

Why not start your own introductory thread to get a welcome, and tell us a little more of your story so far 🙂
 
Phil9009 said:
there are a number of criteria to hit to get the libre on prescription with my trust
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it's not just your trust, the criteria is a national criteria and you only need to meet 1 to qualify, testing 8+ times a day via finger prick for instance xx
 
Kaylz said:
it's not just your trust, the criteria is a national criteria and you only need to meet 1 to qualify, testing 8+ times a day via finger prick for instance xx
Click to expand...

Ah, but trusts can really make it extremely hard to get a Libre by introducing requirements for ‘evidence’ - which is basically made-up, difficult to obtain unnecessary extras. They do this purposely in order to reduce the number of people who can get a Libre. IMO, they shouldn’t be allowed to do that. The difference between trusts can be quite shocking despite the national guidelines.
 
I had to sign an agreement to trial it for 6 months and if it wasn't found to benefit me then the trial would be over. It was much like that when I got my first pump in 2011. We may think we're moving on - but probably aren't. Our CCG don't like spending money on all these flipping PWD cos we're a large drain on their resources full stop. It's one of the reasons I'd really quite like the NHS to be re-organised - hoping that there will be a greater consensus of what we can all get and what we can't. OTOH it could make it even worse though .....
 
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