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cath29 said:
Thankyou so much for all the welcomes......it's nice to know you all out there 🙂 Had a better time with the breakfast injection today(could be something to do with making a cake at school!) It does tend to be the injections later in the day that cause the most stress for Ev, and when she gets back from school just wants to eat n eat, which disrupts the injection/mealtime co-ordination. Do high blood sugars make you cranky, cos it seems to with Ev? Also think that she's nervous of having a hypo, and so feels like she has a 'cushion' if she's higher rather than lower. She has had 4/5 hypos and did all the right things, but think it freaked her out a bit. Her consultant has stressed the importance of getting her levels down....think that's gonna be the next target, but need Ev to accept the 'whole' thing first (pretty hard when you've enough to deal with just being a teenager! so feel for her:() Thanks again for everyones help and welcomes xx
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Yes, higher than normal levels can have an adverse effect on mood. I've always been the opposite of Ev I think - I tend to be more scared of higher levels than lows, which has probably led to me having lots of hypos since diagnosis. I usually recognise and treat them quite easily though.
 
Hi Cath and welcome from me too!

Sorry to hear you are all having a rough time. Must be difficult and a completely different ball game with a teenager. Keep posting, you will get lots of support here and can have a good vent. 🙂
 
Hi Cath, sounds as though you are having a hard time, just wish you lots of luck and time will surely settle things down for you.
 
Thanks again for all the welcomes, had a relatively good weekend in terms of her injection compliance, but not brilliant in trying to make right food choices! I suppose it'll take time to get everything on track. It's tricky to say no to everything, and all the time. And weekends tend to be a bit more chaotic as opposed to school days which are more structured, and I can pretty much keep a check on what she eats. I know she's still feeling quite angry about it all, just trying to keep talking and stressing how important it is to gain control, without making it all about the diabetes:confused: Hope everyone is keeping well x
 
Thanks for the update Cath, glad to hear the weekend has gone well. It does take a long time for all this to sink in, and also for it to become habit and instinct. If you can make it to the habit stage, I think it is far less stressful and overwhelming, it's more like brushing your teeth (although admittedly a somewhat more comples operation!) 🙂
 
Hi cath. A belated welcome from me 🙂

I can't really add to what's been said. It is very much a grieving process and maybe a bit of a relaxed family conference where you can all chip in and talk 'feelings' and fears, etc might make her realise her impact on everyone else and give her a chance to show how it's affecting her on the inside. Difficult at those sorts of ages. I bottled it all up and decided it didn't affect me. It did, but many years later. So it's good if she can deal with it now.

Hypo fear is a biggy and something I still get on and off (age 46 1/2 🙄) and needs to be watched.

I would guess the snacking is a desparate need to feel normal and again, hit out at the diabetes. Don't know the answer to that one.

Keep posting. 🙂

Rob
 
Hi Cath, welcome to the forum. The advice you've been given already is invaluable so not much to add (these guys are the experts!! I'm still learning).

The only thing I would say is please just be careful with her eating and being high etc - there is a strong link between eating disorders and those diagnosed with T1 diabetes at quite a young age...hardly surprising when your life starts revolving around food! BUT please don't panic! there are plenty of diabetics that don't suffer with any problems, I just wanted to put this on your radar.

There are groups out there that could help you know what to look out for (precautionary only) and even just to change ways to approach things. (one is http://www.dwed.org.uk/)

Just a little idea to put in there...and welcome to the forum 🙂
 
Hi Cath. I help out at a dancing school and one of our dancers (Lauren) was diagnosed type 1 earlier in the year at age 12 (she's now 13) and is coping brilliantly now - took a while though. She now has a level head about it generally speaking and tolerates her younger brother and sister having different diets and more treats than she does. Her mum also helps out at the dancing school and she is sure it won't all be plain sailing and the battles have been "interesting" leading up to where they are today. One of the things that kept Lauren focused was her love of dancing and how she needed to be in control of her diabetes so that she could come back to lessons with confidence of coping with potential lows with the level of exercise involved.
Does Ev have a hobby that she can focus on so that it feels less like it's all about the big D? I know it helped in Lauren's case.
Also this wise young girl sent me a personal message when I was diagnosed in the summer with type 2 saying "You control your diabetes - it doesn't control you" and it's become our little mantra when we see each other!
So there's hope, Cath and also Lauren has recently been up to Pineapple Studios with other young diabetics organised by our hospital unit as a treat for being in control - that really did give her something to look forward to and boosted her significantly. She has also enjoyed having time without parents to talk to other young diabetics about what it's like in their shoes and compare notes. If ever Ev wants to talk to someone of her own age who's recently been through it, I'm sure she and her mum would be willing to help out!
It's a journey and let's hope it's not too bumpy for too long!
Mandy
x
 
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