New Member - hello

Junglegirl

Active Member
Relationship to Diabetes
Type 1
Hi everyone,

I’m new to your community but looking forward to meeting fellow diabetics. I can’t say my journey with this condition has been easy, to be honest I would say, living with diabetes is definitely not my favourite pastime ...

Thank you in advance for all your help and support going forward.

J
 

stephknits

Well-Known Member
Relationship to Diabetes
Type 1
Hey junglegirl and welcome to the forum, glad you found us
 

everydayupsanddowns

Administrator
Staff member
Relationship to Diabetes
Type 1
Welcome to the forum @Junglegirl

Yup...it certainly has its ups and downs!

How long have you been pretending to be your own pancreas?
 

Junglegirl

Active Member
Relationship to Diabetes
Type 1
Welcome to the forum @Junglegirl

Yup...it certainly has its ups and downs!

How long have you been pretending to be your own pancreas?

Hi,

Ohhhhhhh my pretence has been going on for quite awhile 46 years thereabouts.
I’m one of the few Type 1’s still taking animal insulin, the human stuff and new stuff made my life a living hell.
I trailed one of the early insulin pumps (believe it’s in a museum somewhere now..lol)
I’ve had lots of wrong information, and incorrect medication over the years and am currently arguing with my doctors over Angina -v- GERD.
Life as a diabetic definitely is not straightforward.
 

trophywench

Well-Known Member
Relationship to Diabetes
Type 1
What actual diagnostic tests have they done for either angina or GERD?
 

brisr949

Well-Known Member
Relationship to Diabetes
Type 1
Hi and welcome to the forum from me.
 

Junglegirl

Active Member
Relationship to Diabetes
Type 1
What actual diagnostic tests have they done for either angina or GERD?

Sorry for the delay getting back to you. Very long story short, please forgive me. I pitched up at the hospital because I had been suffering from a weird sensation in the middle of my chest for two days. No radiating pain, no breathlessness, no sharp pain, not even a pressure type pain just an odd sensation.
They did all the blood tests and x-rays. We have a family history of heart disease so I am pretty clued up on the tests they do. I have had high blood pressure for decades hitting the 200’s that always panics the medical profession. They decided I may have angina in A&E and gave me the spray under the tongue. This shot my blood pressure up to new dizzying heights and gave me a headache but did nothing to relieve the strange ache I had. They admitted me for safety’s sake.
Then discharged me several hours later having dosed me with a BP drug that is known to higher blood sugar readings in diabetics (sighs).
Moving on the BP drug was changed the following day by my GP after I contacted them by eConsult.
Since then I had a weird few hours one day where my BP shot up over 200 again, had me shaking on the inside and feeling generally off it and unstable......couldn’t get hold of anyone medical then it all suddenly stopped.
Eventually I managed to speak to a GP .....I requested a couple of other blood tests to check for inflammation/infection/and another one for my heart. Every GP/A&E doctor I have spoken to or been involved with said all the tests had come back with good results, all heart related ones pointed to whatever the odd sensation was it was not heart related. Because of the weird few hours I had I was referred to a cardiologist, this was not a great experience when he phoned me. He mixed me up with someone else, didn’t listen to me and decided over the phone I had angina, and is arranging for the usual angiogram etc etc. Despite my symptoms NOT being angina like at all.
I do however tick nearly all symptom boxes relevant to GERD and having read and spoke to many people online who suffer from GERD I honestly believe I have this but have not been able to speak to my GP about this yet in detail, although one brief conversation resulted in the offer of anti-acids.
I have decided for now NOT to go ahead with the angio and am awaiting a telephone appointment with my GP to discuss the GERD possibility.
I have to add I do not have any heart (angina) like pain now, never breathless, no constricting feeling etc. Although I am over weight and wouldn’t break out in a jog anytime soon.
 

Pumper_Sue

Well-Known Member
Relationship to Diabetes
Type 1
Hi,

Ohhhhhhh my pretence has been going on for quite awhile 46 years thereabouts.
I’m one of the few Type 1’s still taking animal insulin, the human stuff and new stuff made my life a living hell.
I trailed one of the early insulin pumps (believe it’s in a museum somewhere now..lol)
I’ve had lots of wrong information, and incorrect medication over the years and am currently arguing with my doctors over Angina -v- GERD.
Life as a diabetic definitely is not straightforward.
Hello and welcome to the forum.
Until 2 or was it 3 years ago I was still using bovine insulin due to major issues with synthetic insulin's. Used bovine neutral in my pump for about 10 years with no issues now using Fiasp and so far touch wood all is fine I managed to clock up 55 years as a type 1 in April :)
 

everydayupsanddowns

Administrator
Staff member
Relationship to Diabetes
Type 1
Glad you’ve replied @Pumper_Sue - I was thinking about tagging you into the conversation as the forum’s former animal insulin user :)
 

Junglegirl

Active Member
Relationship to Diabetes
Type 1
Hello and welcome to the forum.
Until 2 or was it 3 years ago I was still using bovine insulin due to major issues with synthetic insulin's. Used bovine neutral in my pump for about 10 years with no issues now using Fiasp and so far touch wood all is fine I managed to clock up 55 years as a type 1 in April :)

Wow to 55 years, well done you..

At the GP practice where I am, (and local area) I am the only diabetic on animal insulin (pork). When they have trainee GP’s in session I ask them if they are aware about animal insulin being still available .....I haven’t had anyone say yes to my question yet.
I had an horrendous time with human insulin, I had major issues, however my biggest hurdle was trying to get the medical, profession to believe me. Only took 20 years to get off the wretched stuff.
 

Pumper_Sue

Well-Known Member
Relationship to Diabetes
Type 1
Glad you’ve replied @Pumper_Sue - I was thinking about tagging you into the conversation as the forum’s former animal insulin user :)
There are other animal insulin users on the forum. :) If I wasn't allergic to porcine insulin I would have used that once bovine was withdrawn.
 
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