Hi All, I am 12 months diagnosed with type 1.5 LADA! I am on insulin 4 times a day it’s taken me until now to register on here because I have been in denial! I now accept I am diabetic and I am slowly getting to grips with things and trying to stay controlled! #emotionalrollercoaster
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- Thread starter Rachael83
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Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome @Rachael83 🙂 A diabetes diagnosis is always a shock, especially a Type 1 one who you’re an adult. There are lots of Type 1/1.5s here diagnosed as adults. Apparently the oldest Type 1 at diagnosis was in his 90s!
What insulins are you on? Do you have a Libre? Do ask any questions you want. Nothing is silly or too trivial.
If you like to read, here are two two great books about Type 1:
Think Like a Pancreas’ by Gary Scheiner.
And Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas (ignore the title - it’s great for adults too)
What insulins are you on? Do you have a Libre? Do ask any questions you want. Nothing is silly or too trivial.
If you like to read, here are two two great books about Type 1:
Think Like a Pancreas’ by Gary Scheiner.
And Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas (ignore the title - it’s great for adults too)
Thanks for your reply and support! I am on Novarapid before meals and semglee before bed. I have the libre 2 and it’s literally amazing and I am so thankful I have it, it makes a massive difference to coping with diabetes and staying controlled. I used to sometimes avoid finger pricking cause it was getting painful. I have to test a lot in the day because I am in the road. Thanks for the book recommendations
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
I think denial is very normal. Type 1/1.5 is a massive lifestyle change and brings a whole load of emotions - anger, upset, fear, resentment. It does take a while to get used to. What helped me was understanding it wasn’t my fault and that it was an auto-immune condition and pretty random.
If you find blood glucose control during your busy day hard, you could always consider a change of basal. Twice daily basal are more flexible, and it means you can reduce/increase the daytime dose while leaving the night unchanged.
Ah, finger-pricking now is a doodle!
When I was first diagnosed we had the most awful lancing device, commonly referred to as ‘the guillotine’. It was brutal😱
If you find blood glucose control during your busy day hard, you could always consider a change of basal. Twice daily basal are more flexible, and it means you can reduce/increase the daytime dose while leaving the night unchanged.
Ah, finger-pricking now is a doodle!
When I was first diagnosed we had the most awful lancing device, commonly referred to as ‘the guillotine’. It was brutal😱
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
Good morning @Rachael83 from another late starter (53 at diagnosis)
Diagnosis is a shock at any age and it certainly takes a bit of getting used to, and is indeed an emotional roller coaster.
It is great that you have already got the Libre, and that you are finding it so useful. I found it helped me to head off highs and lows, and made me feel a lot more confident about driving and exercise, with the info about direction of travel for glucose levels alongside the reading, with the bonus of no painful pricks.
Both the books that @Inka has recommended are very useful to dip into. I found the Ragnar Hanas book very useful as it is well indexed, easy to read and kept up to date. ( I just ignored the bit about starting school!!).
If you do need to finger prick it is worth changing your lancing device if that is causing issues, and also check that you have it on the lowest setting that will draw blood. I find that mine sometimes gets shifted round to a deeper depth and I know it (afterwards!!!)
keep in touch and fire away with any questions that arise. There is so much experience to tap into on here, and no questions are considered silly on here.
Diagnosis is a shock at any age and it certainly takes a bit of getting used to, and is indeed an emotional roller coaster.
It is great that you have already got the Libre, and that you are finding it so useful. I found it helped me to head off highs and lows, and made me feel a lot more confident about driving and exercise, with the info about direction of travel for glucose levels alongside the reading, with the bonus of no painful pricks.
Both the books that @Inka has recommended are very useful to dip into. I found the Ragnar Hanas book very useful as it is well indexed, easy to read and kept up to date. ( I just ignored the bit about starting school!!).
If you do need to finger prick it is worth changing your lancing device if that is causing issues, and also check that you have it on the lowest setting that will draw blood. I find that mine sometimes gets shifted round to a deeper depth and I know it (afterwards!!!)
keep in touch and fire away with any questions that arise. There is so much experience to tap into on here, and no questions are considered silly on here.
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
..... I imagine there's a fair bit about 'growth hormones' too (dunno cos never owned it) you could ignore. But, there is most likely I should hope, about 'lady' hormones that we get once a month (regular as clockwork we hope) - and they are tricky too!
richardmillar11
Active Member
- Relationship to Diabetes
- Type 1.5 LADA
Hi Rachael
Welcome here. I was diagnosed back in October. Final diagnosis pending although it looks like type 1.5. I am with you on the emotional side of things its very very difficult. Glad you felt joining here was the right thing it has certainly helped me. I am interested to hear your story if you wish to share i.e. how did your diagnosis come about and what the experience has been so far.
Welcome here. I was diagnosed back in October. Final diagnosis pending although it looks like type 1.5. I am with you on the emotional side of things its very very difficult. Glad you felt joining here was the right thing it has certainly helped me. I am interested to hear your story if you wish to share i.e. how did your diagnosis come about and what the experience has been so far.
- Relationship to Diabetes
- Type 1
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Welcome to the forum @Rachael83
Pleased you have found us! Suddenly being thrust into a T1 or LADA diagnosis later in life can be very isolating, and denial is not at all uncommon, along with the other stages of grief, as you can effectively go through a process of grieving for your lost health and former life.
Diabetes can be fickle, inconvenient, and extremely annoying,
but it’s also something that can usually be managed well with a few changes and adaptations - and a bit of forward planning. It’s something that you can learn to live well with, and it shouldn’t stop you doing things you enjoy.
Plus the regular checks you get after a diagnosis with diabetes mean that any potential problems may be spotted earlier, and can be sorted out sooner.
We are here to support and encourage you, and to listen when you just need to rant, rage, or have a really good moan. We are also here to share your unexpected triumphs as well as your unintentionally hilarious disasters.
So post away!
Pleased you have found us! Suddenly being thrust into a T1 or LADA diagnosis later in life can be very isolating, and denial is not at all uncommon, along with the other stages of grief, as you can effectively go through a process of grieving for your lost health and former life.
Diabetes can be fickle, inconvenient, and extremely annoying,
but it’s also something that can usually be managed well with a few changes and adaptations - and a bit of forward planning. It’s something that you can learn to live well with, and it shouldn’t stop you doing things you enjoy.
Plus the regular checks you get after a diagnosis with diabetes mean that any potential problems may be spotted earlier, and can be sorted out sooner.
We are here to support and encourage you, and to listen when you just need to rant, rage, or have a really good moan. We are also here to share your unexpected triumphs as well as your unintentionally hilarious disasters.
So post away!
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