sean123
Member
- Relationship to Diabetes
- Type 3c
Hi 🙂
I'm new here, so hello from me. I'm just back from my diabetes clinic and honestly I think I just need a space to vent - a space where maybe people will understand and very remotely possibly be able to help, though I don't expect this.
My story as short as I can, diagnosed diabetic type 3c in November 2019, when I was hospitalised with Pancreatitis, in hospital for 2 weeks, they initially thought alcohol caused it, but it didn't. It was a magic storm of alcohol, kidney stones and a very rare side effect to a medication. During the hospital stay they were treating me for DKA, it was an interesting time - later found out I could have died from the 2 separate things, pancreatitis and DKA. Fun!
Anyway, no more drinking the Dr's say - wasn't an alcoholic so was fairly easy, although I do have the odd dreams of being on a night out in a club still haha.
Before Nov 19 I was fairly active, played football 3/4 times a week and did a boxing/hiit class once a week too. A month after leaving hospital I went back to football, felt light as a feather, was happy! 2nd game a week later I had to cut short because my back seized up, which was a new problem. Took 2 weeks off, then tried to play again and the same thing happened. Then the pandemic kicked off and football was cancelled, I thought great some time for my random back problem to heal.
Was going on walks early days in the lock downs, as many did, then one day 5 minutes into a walk my back seized up. I sat down for a few minutes and the pain went away, walked home. Then same a few days later. Then randomly the pain started happening in the middle of the night. I ask my GP to refer me to physio, she did, eventually I got a physio appointment and he looks at my back, asks for a recent history and decides its 'mechanical' based on being off my feet for a few weeks in the Nov/Dec 19 period. Gives me a set of 10 stretches/exercises to do, I said how often and he says as often as you can manage.
I do it every day, sometimes twice a day if I know I'm going out, thinking it'll help.
5 months into the physio the back pain is all the time, day and night, whether I'm resting or not. So I stopped as I knew I was due a phone call from the physio a week later. He duly calls and I explained I had to stop because it was making things worse, he says to keep going there's nothing else he can suggest. I stopped speaking to the physio. Currently back hurts if walking for 5 minutes plus, so its being managed basically by not exercising. Can't drink, can't exercise, and have to eat a certain way now. All good.
Since Nov 19 I have gained 3 and a half stone or 22kgs. In this time I've had a dietician talking me through what to eat, I was tracking calories, at one point was on 1800 a day, which should be ~500 a day deficit, which would equal a 1lb a week weight loss. But I was gaining weight.
I seem to have peaked at a certain weight now.
In clinic today I was asking questions to the Dr, one of which being why can't I lose weight? These days I average 2000 cals a day, so should be losing some weight. I did a food diary, tracked my calories - the deficit is real (I know some people may think I'm actually not in a deficit, but I am! 🙂)
He said because I'm type 3C, ie - damage to pancreas diabetes, that my pancreas sort of works and sort of doesn't - where it doesn't is in producing insulin, where it does is in producing glucose (I think, it was a lot of info I may not be 100% accurate) and somehow as a result my body stores fat, instead of burning it, effectively he said I could be in a massive calorie deficit and still not lose any weight. The kicker is, because my sugars are high, they may increase my insulin (trying a different one first) which will cause more weight gain.
Can't drink, can't exercise, can't lose weight.
I take it in my stride usually, I take the approach of "I can't control it, so accept it and make the most out of what I can do"
But sometimes, like today, I just wonder what's the point.
Anyway, I hope you're all doing as well as can.
Vent over.
Sean
I'm new here, so hello from me. I'm just back from my diabetes clinic and honestly I think I just need a space to vent - a space where maybe people will understand and very remotely possibly be able to help, though I don't expect this.
My story as short as I can, diagnosed diabetic type 3c in November 2019, when I was hospitalised with Pancreatitis, in hospital for 2 weeks, they initially thought alcohol caused it, but it didn't. It was a magic storm of alcohol, kidney stones and a very rare side effect to a medication. During the hospital stay they were treating me for DKA, it was an interesting time - later found out I could have died from the 2 separate things, pancreatitis and DKA. Fun!
Anyway, no more drinking the Dr's say - wasn't an alcoholic so was fairly easy, although I do have the odd dreams of being on a night out in a club still haha.
Before Nov 19 I was fairly active, played football 3/4 times a week and did a boxing/hiit class once a week too. A month after leaving hospital I went back to football, felt light as a feather, was happy! 2nd game a week later I had to cut short because my back seized up, which was a new problem. Took 2 weeks off, then tried to play again and the same thing happened. Then the pandemic kicked off and football was cancelled, I thought great some time for my random back problem to heal.
Was going on walks early days in the lock downs, as many did, then one day 5 minutes into a walk my back seized up. I sat down for a few minutes and the pain went away, walked home. Then same a few days later. Then randomly the pain started happening in the middle of the night. I ask my GP to refer me to physio, she did, eventually I got a physio appointment and he looks at my back, asks for a recent history and decides its 'mechanical' based on being off my feet for a few weeks in the Nov/Dec 19 period. Gives me a set of 10 stretches/exercises to do, I said how often and he says as often as you can manage.
I do it every day, sometimes twice a day if I know I'm going out, thinking it'll help.
5 months into the physio the back pain is all the time, day and night, whether I'm resting or not. So I stopped as I knew I was due a phone call from the physio a week later. He duly calls and I explained I had to stop because it was making things worse, he says to keep going there's nothing else he can suggest. I stopped speaking to the physio. Currently back hurts if walking for 5 minutes plus, so its being managed basically by not exercising. Can't drink, can't exercise, and have to eat a certain way now. All good.
Since Nov 19 I have gained 3 and a half stone or 22kgs. In this time I've had a dietician talking me through what to eat, I was tracking calories, at one point was on 1800 a day, which should be ~500 a day deficit, which would equal a 1lb a week weight loss. But I was gaining weight.
I seem to have peaked at a certain weight now.
In clinic today I was asking questions to the Dr, one of which being why can't I lose weight? These days I average 2000 cals a day, so should be losing some weight. I did a food diary, tracked my calories - the deficit is real (I know some people may think I'm actually not in a deficit, but I am! 🙂)
He said because I'm type 3C, ie - damage to pancreas diabetes, that my pancreas sort of works and sort of doesn't - where it doesn't is in producing insulin, where it does is in producing glucose (I think, it was a lot of info I may not be 100% accurate) and somehow as a result my body stores fat, instead of burning it, effectively he said I could be in a massive calorie deficit and still not lose any weight. The kicker is, because my sugars are high, they may increase my insulin (trying a different one first) which will cause more weight gain.
Can't drink, can't exercise, can't lose weight.
I take it in my stride usually, I take the approach of "I can't control it, so accept it and make the most out of what I can do"
But sometimes, like today, I just wonder what's the point.
Anyway, I hope you're all doing as well as can.
Vent over.
Sean
