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New diagnosed type 1 at 54

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

AliBal

New Member
Relationship to Diabetes
Type 1
Hi I was diagnosed 8 weeks ago have moved quickly to carb counting and sorting my insulin. Back to work walking and cycling but little things still need more confidence such as eating out also adjusting some recipes but determined to sort . Bloods doing ok but still struggle to get before bed glucose regularly below 10 inspite of very careful carb counting. Any suggestions helpfully received . Also how easy is it to access cgm on bus ?
 
Hi, I also diagnosed Type 1 diabetic at the end of last July and will be 60 next week.
I am on Lantus slow acting insulin once a day before sleep so I am still producing some insulin myself.
Cutting out white carbs is best for me. Protein and fat I find is more slow release and produces less of a spike.
I'm testing before and after every meal and before and after sleep.
The feedback is proving very helpful adjusting my diet.
Somethings suprise me, like sushi gives me a large spike.
Like others on here, I think it is trial and error to find what works for you.
Have you been having eye problems?
Two weeks after I started insulin my vision went blurred due to change in osmotic pressure in my eyes compounded by cataracts.
Off work for 3 weeks now, been told it may take 6 to 8 weeks to resolve.
 
.Also how easy is it to access cgm on bus ?

Very easy, it’s one of the perks :D - though assuming that was an autocorrection for NHS, the answer is very different. Guidance for CGM prescribing is quite specific and most often prescribed for those with reduced hypo awareness - it can also be easier/harder depending upon your local CCG, but definitely a question to ask your clinic team who can advise of what circumstances they usually recommend it for.

Could be that your insulin:food ratios need a little adjusting in the evening or background insulin needs tweaking a bit, what basal insulin do you use? And when do you take it? How are your waking levels? Sorry for all the questions, just helps to get a fuller picture.

8 weeks in though, things will need a bit to adjustment here and there still.
 
Sorry, I am not recently diagnosed so I dunno what you've been told your BG ought to be before bed - but I've NEVER been told it needs to be 10 - it was 7.5 in my day which was OK really considering we were all on animal insulins with different strengths in those days.

These days with 100u/ml insulins, once you're in proper control (which only comes with time so you have to be patient, plus it can actually be quite harmful to reduce BG TOO much, too quickly) you can be lower quite successfully. But the crux is - how much under the advised level is it? - cos if you are on Lantus as your long acting insulin, the release of it in your body usually takes between 4 and 5 hours after injecting it, to reach it's peak activity level, then flattens out after that to a more (but not completely) even level.

Hence the 'What insulins' is an important and very relevant one, for us to want to know!
 
I can answer the sushi one, sushi rice is really starchy, probably the highest carb rice there is - it’s what makes it so sticky. It caught me out too. I now make sushi with cauliflower ‘rice’ bound with a little egg to glue it together.
 
Hi, I also diagnosed Type 1 diabetic at the end of last July and will be 60 next week.
I am on Lantus slow acting insulin once a day before sleep so I am still producing some insulin myself.
Cutting out white carbs is best for me. Protein and fat I find is more slow release and produces less of a spike.
I'm testing before and after every meal and before and after sleep.
The feedback is proving very helpful adjusting my diet.
Somethings suprise me, like sushi gives me a large spike.
Like others on here, I think it is trial and error to find what works for you.
Have you been having eye problems?
Two weeks after I started insulin my vision went blurred due to change in osmotic pressure in my eyes compounded by cataracts.
Off work for 3 weeks now, been told it may take 6 to 8 weeks to resolve.
Eye problems were there but have resolved couple of weeks ago but was gradual. Feels back to normal now but was very bizarre at the time. Am on lantus which I take in the evening on advice from DSN rather than bed time. And nova rapid bolus with mealtimes. Take all whole meal pasta and rice. Have not been advised to test after meals but may be worth considering. Thanks
 
It's definitely worth considering. Whilst a T1 will have difficulty in maintaining a pretty flat line BG level for 24 hrs, at the same time you don't really want mega high spikes either every time you eat something, so testing afterwards tells you how high for how long and if you aren't comfortable with whatever it says, you can think about how best to adjust that result. Maybe by reducing the amount of the culprit; maybe by injecting sooner or later than immediately prior to eating it to better match the action of the insulin to that food - in your body. Or of course a combination of both!
 
Very easy, it’s one of the perks :D - though assuming that was an autocorrection for NHS, the answer is very different. Guidance for CGM prescribing is quite specific and most often prescribed for those with reduced hypo awareness - it can also be easier/harder depending upon your local CCG, but definitely a question to ask your clinic team who can advise of what circumstances they usually recommend it for.

Could be that your insulin:food ratios need a little adjusting in the evening or background insulin needs tweaking a bit, what basal insulin do you use? And when do you take it? How are your waking levels? Sorry for all the questions, just helps to get a fuller picture.

8 weeks in though, things will need a bit to adjustment here and there still.
Oops yes not checking auto typing! Hi am on Mantua and advised totals now about 7 with evening meal to see if helps . Using 1 to 10 ratio and advised for evening meal to work out on this and then add 1 unit . Thought was workings had couple of readings between 7 to 8 but it's gone back each night to between 10 to 11.5. By morning readings about 7 but had been but possessed 5 to 6. So had been thinking about asking if lantus needed slight tweek. Have been careful measuring raw weights for rice and pasta and all are Brown not white . So any advice gratefully received thanks
 
Hi am on Mantua

Lantus? :D :D :D

Autocorrect got you again!

Welcome to the forum.

Over the years (certainly more recently) I have come to recognise that while my insulin:carb ratios vary during the day, sometimes it is my basal insulin needs that cause havoc, and if I tweak my basal then my food / correction doses will begin to work again.

Additionally there doesn’t seem to be an equivalent relationship between basal and bolus insulin effect, and the ’lack’ of 1u spread over a whole day can result in the need for multiple corrections totalling far far more than 1u to drag BG back into line.

Having said that... if your basal is set more or less correctly, and you are eating your evening meal at roughly 6pm then by bedtime (10.30ish?) your meal dose should have more or less finished, and you should be back down to almost exactly where you were before your evening meal.

If your BG is consistently higher 4 hours after eating, and is worse when you have eaten more carbs, then that’s a reasonable indication that your evening meal ratio needs adjusting. If you generally just rise by ‘x’ no matter what the carb content of themeal, then. y thinking would be more basal-tweakery.

Of course Lantus with it’s fairly flat profile can involve some Hobson’s Choice decisions about basal insulin dose, because your basal needs may be a bit higher here... a bit lower there... in which case you may find raising Lantus to suit evening meal gives you problems overnight... or vice versa!

All part of the endless, circular games of T1 BG juggling!
 
Welcome to the forum @AliBal , from another person diagnosed with T1 in their 50s.
That was nearly 13 years ago now but I still remember how much there was to learn at the start (and now)

I have not heard of Mantua as a quick acting insulin and did google it but found nothing. Now my puzzle is what is it an autocorrection from. I am just pleased to read that they have started you straight on multiple daily injection with a slow acting (Lantus) and a quick acting insulin (?)
It will take time to get your levels sorted and I know my target for the first two weeks was to get in single figures wherever possible,. Then we refined it as I started to carb count and settled to other targets.

It would be unusual to get CGM prescribed in the NHS as that is a full system with sensors and an insulin pump working together, but there is the option of a Libre. This is a stand alone sensor which will monitor your glucose levels continually, and you can get the data by swiping over it with a phone or a reader. These are available on NHS but not for all. Having read about them on here, and recognising how helpful they were I chose to self fund it. It costs less than £50 per fortnight. That would be worth asking your DSN about.

There is a lot to take on board at the start. It takes a while to get things sorted and perfection is just not possible. We all have to do the best that we can. People on here have taught me most of the practical advice that I now use.
 
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