My latest health shenanigans

[AJLang]

45 minute Osteopath/physio appointment “interesting” to say the least. In summary as we know my body is has some problems(!) but she thinks that she can provide some help. Back and right hip problems that I knew about, balance issues which had been what I’d thought and worried about but hadn’t had confirmed, reduced muscle mass in right leg and shaking in left leg - some of this could be neurological (in addition to the chronic silent migraines and chronic fatigue syndrome) but she will focus on the physiological side first before deciding in a few weeks whether further neurological assessment is needed.

 

[Thebearcametoo]

I’m glad it’s been helpful. I have fibro and find it really helps to have regular manipulation (I see a chiro) to keep me functioning. Have you have a rheumatology consult too?

 

[Bloden]

Sounds promising @AJLang. Hopefully she can “provide some help”. 🙂

 

[KARNAK]

Nice to have a HCP who cares Amanda, please be good to yourself. xxx

 

[AJLang]

I’m glad it’s been helpful. I have fibro and find it really helps to have regular manipulation (I see a chiro) to keep me functioning. Have you have a rheumatology consult too?

Thank you. I'm sorry that you have fibro. I saw a rheumatologist in 2012 who diagnosed my Chronic Fatigue Syndrome and commented on my back and right hip then but I was left without any back-up support. Another rheumatologist diagnosed me with facet joint arthropathy in February 2018 and I was referred to the pain clinic - they suggested physio and injections but the injections had potential risks that I wasn't prepared to take. The NHS physio was outright useless. Then as I got worse with other things in autumn 2019 my GP referred me back to rheumatology but they refused to see me dismissing my problems as Chronic Fatigue Syndrome to be dealt with in secondary care - but there is no secondary care for it. "Fortunately" my neurologist was great and said that he thought that the latest problems were part of my chronic silent migraines that he had previously diagnosed. I've had to speak to the GP today about something else and she's asked me to speak to my neurologist to see if this problem is - where I couldn't speak but worse than before - is also part of the silent migraines or needing investigating further.

 

[AJLang]

Sounds promising @AJLang. Hopefully she can “provide some help”. 🙂

Thank you Bloden. I hope she can

 

[AJLang]

Nice to have a HCP who cares Amanda, please be good to yourself. xxx

Thank you Ted I will. I had to dig deep into my limited slush fund to pay for this appointment privately. She spent 40 minutes examining me physically whilst all my GP surgery could offer was a 20 minute assessment over the phone - which didn't definitely wouldn't have highlighted all of the problems. It was good that the woman confirmed what I was suspecting without me prompting her about my thoughts.
I'm very lucky that my Mark really spoils me and I've got lots of great friends. This HCP has helped me back onto a more positive path because with her and neurology I know that I'm getting everything checked out.

 

[KARNAK]

Oh you are going through it Amanda, don`t see why you should have to pay Post Code Lottery
me thinks. I still receive all the care from my surgery and hospital especially for my Neuropathy
and see the Podiatrist every 6 weeks. Neurologist stays in touch as does DSN and Consultant
for D who is also an Endocrinologist, see her on the 07th of April.

Please take care stay safe thinking of you. xxx

 

[Thebearcametoo]

Thank you. I'm sorry that you have fibro. I saw a rheumatologist in 2012 who diagnosed my Chronic Fatigue Syndrome and commented on my back and right hip then but I was left without any back-up support. Another rheumatologist diagnosed me with facet joint arthropathy in February 2018 and I was referred to the pain clinic - they suggested physio and injections but the injections had potential risks that I wasn't prepared to take. The NHS physio was outright useless. Then as I got worse with other things in autumn 2019 my GP referred me back to rheumatology but they refused to see me dismissing my problems as Chronic Fatigue Syndrome to be dealt with in secondary care - but there is no secondary care for it. "Fortunately" my neurologist was great and said that he thought that the latest problems were part of my chronic silent migraines that he had previously diagnosed. I've had to speak to the GP today about something else and she's asked me to speak to my neurologist to see if this problem is - where I couldn't speak but worse than before - is also part of the silent migraines or needing investigating further.

Yeah secondary care is... lacking...

I’m glad your neuro is helpful and sorry rhuematology were unsupportive. It’s difficult when you have a chronic illness diagnosis as medics often shrug and just presume it’s that. Having someone who will take time to check over your whole body is a novelty and IMO worth the money (but it’s annoying that we can’t get good ongoing care on the NHS)

 

[happydog]

Glad that you have had a positive appointment even though you had to pay for it. At lease you have information now. Sending you a virtual hug {}

 

[AJLang]

Thank you everyone x