Mum of newly diagnosed type 1

[Sharon Lady P]

Hi all. My 27 year old daughter was diagnosed with type 1 diabetes and DKA last weekend and I'm here to learn from others' experience of living with type 1 diabetes themselves or as a close relative.

 

[Pat91]

Hello and welcome, I was diagnosed January 2021 age 29 with DKA also so I understand how scary this must of been for you and your daughter. The guys on here are great. Any questions don't be afraid to ask.

 

[Pumper_Sue]

Hi all. My 27 year old daughter was diagnosed with type 1 diabetes and DKA last weekend and I'm here to learn from others' experience of living with type 1 diabetes themselves or as a close relative.

Type 1 for 57 years, life is what you make of it. Thinking ahead is a must with diabetes and there's no reason for diabetes to stop anyone doing anything in life they so wish.
Yes there's ups and down but then there is without diabetes.

 

[Sharon Lady P]

Hello and welcome, I was diagnosed January 2021 age 29 with DKA also so I understand how scary this must of been for you and your daughter. The guys on here are great. Any questions don't be afraid to ask.

Thank you so much Pat

 

[Sharon Lady P]

Type 1 for 57 years, life is what you make of it. Thinking ahead is a must with diabetes and there's no reason for diabetes to stop anyone doing anything in life they so wish.
Yes there's ups and down but then there is without diabetes.

Thank you Sue. It’s inspiring and reassuring to see others living with it.

 

[everydayupsanddowns]

Welcome to the forum @Sharon Lady P

Sorry to hear about your daughter’s diagnosis

It must have been a huge shock, and been a scary time. DKA can be a nasty business.

I guess the good news is it’s ‘only’ diabetes. Diabetes is a very serious condition, with potentially devastating consequences - but it is also something this can usually be managed well with a few adaptations. Modern insulins, education programmes and technologies make effective management more possible than ever. Plus modern screening and regular checkups mean that any potential issues can be detected early and there is effective treatment for many diabetes-related issues.

We have several members who have been living with T1 or LADA for many years who can offer support and advice, so ask away with any questions you have. 🙂

 

[Sharon Lady P]

Thank you so much for your kind response. Yes it was a devastating blow and very frightening diagnosis. Thankfully she’s getting to grips with things and I’m so proud that she’s been able to deal with her needle phobia and take charge of her treatment. She’s got excellent support at the hospital clinic and seems to be quickly getting the hang of her insulin doses and adjustments. I’m so grateful for the other members with diabetes who have posted such positive comments about living with this disease. It really does help the newbies.

 

[Leadinglights]

Thank you so much for your kind response. Yes it was a devastating blow and very frightening diagnosis. Thankfully she’s getting to grips with things and I’m so proud that she’s been able to deal with her needle phobia and take charge of her treatment. She’s got excellent support at the hospital clinic and seems to be quickly getting the hang of her insulin doses and adjustments. I’m so grateful for the other members with diabetes who have posted such positive comments about living with this disease. It really does help the newbies.

It is brilliant that she is dealing with her new situation and has good support as many don't seem to be so lucky.
Would she be encouraged to come onto the forum herself so she can directly ask any questions she has. At the end of the day she has to take responsibility for her condition but might benefit for 'chatting' to others of the same age. I'm sure you are able to give her the confidence to face this and be there for her.

 

[Sharon Lady P]

Yes i

It is brilliant that she is dealing with her new situation and has good support as many don't seem to be so lucky.
Would she be encouraged to come onto the forum herself so she can directly ask any questions she has. At the end of the day she has to take responsibility for her condition but might benefit for 'chatting' to others of the same age. I'm sure you are able to give her the confidence to face this and be there for her.

I’ve mentioned it to her and I think she will register. She’s still very tired and taking one thing at a time, but I’m encouraging her to do some of the courses on here and speak to others. She’s got a couple of T1 friends too and they’ve been fantastic. I’m sure speaking to other young adults will help though and let her see how others are getting in with life. We had a lovely walk today and she wanted to go to the top of the hill, so definitely improving a lot now!

 

[SB2015]

So glad that your daughter has got to grips with things @Sharon Lady P
It is a shock at any age, and there is a lot to take on board, but it is a manageable condition.

I found The book Type 1 Diabetes in Children, adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was 53 at diagnosis but found the book so well set out and clearly explained things. It is regularly updated with the latest tech, which is changing regularly.

Any questions that arise, just ask.

 

[Sharon Lady P]

Tha

So glad that your daughter has got to grips with things @Sharon Lady P
It is a shock at any age, and there is a lot to take on board, but it is a manageable condition.

I found The book Type 1 Diabetes in Children, adolescents and Young Adults by Ragnar Hanas. Ignore the age reference. I was 53 at diagnosis but found the book so well set out and clearly explained things. It is regularly updated with the latest tech, which is changing regularly.

Any questions that arise, just ask.

nk you for the recommendation. So many books out there! I’ve ordered a copy to arrive tomorrow