Missing in Action - let us know how things are going

[Northerner]

I've noticed that things have been a little quiet lately, and many names seem to be missing from our daily rollcall. If you haven't posted in a while, how about dropping us a line here to let us know how things are going for you? 🙂

 

[casey]

I am hiding in the background, as usual, but I do look in at least once a day to keep up with you all.

 

[Northerner]

I am hiding in the background, as usual, but I do look in at least once a day to keep up with you all.

I hope things are going well for you casey 🙂

 

[casey]

Thanks Alan. I am not able to do very much at all now, because of causing chest pain, but a week tomorrow and I have my test. Hopefully we might get somewhere then.

 

[Northerner]

Thanks Alan. I am not able to do very much at all now, because of causing chest pain, but a week tomorrow and I have my test. Hopefully we might get somewhere then.

I do hope so, let us know how things go 🙂

 

[Lindarose]

Hi everyone! First of all apologies for not logging in on here lately Afraid I've been abit down on it all and haven't wanted to come on bemoaning my lack of enthusiasm and guilt at not being in control. I still look in most days and love seeing how everyone is doing. Had a yearly review and hba1c at 47 wasn't as good as last time's 44 but still reasonable.
Went to a fab Living with Diabeyes day yesterday here in Norwich Chatted with lots of lovely people and really enjoyed it all. Must say I didn't agree with some of the diet advice Felt I wanted to challenge them but couldn't bring myself to speak out. They continued to advise 5 portions of starchy carbs a day and not testing if type 2 on metformin only Lunch was mainly sandwiches and fruit so I left feeling quite hungry! They also really pushed the statin thing which is something I get anxious about having high total cholestrol but ok ratios Again I didn't say anything....
I'm in hospital next week for ear operation which will hopefully help me as although sometimes it's quite nice not to hear much (eg trying to sleep after working a night shift) it will be great if it improves things.
Hope you're all doing well xx

 

[casey]

I have got my fingers, toes and eyes crossed. Will defiantly let you know how it goes.

 

[Northerner]

Hi everyone! First of all apologies for not logging in on here lately Afraid I've been abit down on it all and haven't wanted to come on bemoaning my lack of enthusiasm and guilt at not being in control. I still look in most days and love seeing how everyone is doing. Had a yearly review and hba1c at 47 wasn't as good as last time's 44 but still reasonable.
Went to a fab Living with Diabeyes day yesterday here in Norwich Chatted with lots of lovely people and really enjoyed it all. Must say I didn't agree with some of the diet advice Felt I wanted to challenge them but couldn't bring myself to speak out. They continued to advise 5 portions of starchy carbs a day and not testing if type 2 on metformin only Lunch was mainly sandwiches and fruit so I left feeling quite hungry! They also really pushed the statin thing which is something I get anxious about having high total cholestrol but ok ratios Again I didn't say anything....
I'm in hospital next week for ear operation which will hopefully help me as although sometimes it's quite nice not to hear much (eg trying to sleep after working a night shift) it will be great if it improves things.
Hope you're all doing well xx

Lovely to hear from you Lindarose, we wondered where you had gone! 🙂 That's a good HbA1c, so well done on that. Glad to hear you had a good day at the LWD day, might be worth writing to them with your feedback about their outdated diet advice, and the testing edict 🙂

Hope the ear op goes well, let us know how things go, and don't be a stranger! 🙂

 

[Lindarose]

Thanks Northerner for your kind wishes.
Yes I will send feedback to DUK Just seems that all the advisors have very set ideas and arn't open to considering anything else. I did speak to the diabetic nurse yesterday and explained why I test but I got the impression she didn't feel I should. She was surprised when I told her how important I felt it was to know that certain foods sent my levels high.
It's almost like they are cloned to only have set ways of dealing with type 2 And it has to be impressed on us that type 2 is progressive. That certainly gives me more push to prove them wrong!

 

[Northerner]

Thanks Northerner for your kind wishes.
Yes I will send feedback to DUK Just seems that all the advisors have very set ideas and arn't open to considering anything else. I did speak to the diabetic nurse yesterday and explained why I test but I got the impression she didn't feel I should. She was surprised when I told her how important I felt it was to know that certain foods sent my levels high.
It's almost like they are cloned to only have set ways of dealing with type 2 And it has to be impressed on us that type 2 is progressive. That certainly gives me more push to prove them wrong!

It's a shame - I think others who have attended these days have had similar experiences It's great that people are motivated to attend, but then to give them inappropriate advice sort of defeats the whole purpose! I'm going to pass on the feedback I have been seeing to Diabetes UK also. 🙂

 

[KookyCat]

LIndarose, we've missed you, so glad you're back . You know I like everyone to sign the register...I'd make it mandatory but Northerner won't let me tsk 😉

Sorry to hear you've been feeling a bit down, and hope you feel better soon. My friend went to one of those days recently and came away incandescent with rage because she thought she was being patronised. To be fair she a bit incandescent full stop at the moment because she's just started to really deal with it. She favoured the pop a pill, close your eyes and eat lots of carbs approach for a while until she got a 60 something on her HBA1c and a stand in GP was quite brutal. Anyways that's another story. Don't let them put you off, your body, and despite the constant illusion to the contrary they're your choices.

I won't get on my soapbox, I'll just finish with a yay you're back

 

[Lindarose]

Aww Kooky Lovely of you to write . I'm so pleased your friend is getting it together too and hopefully she will have some good results soon.
I'm doing ok now Just felt I lost control and was unable to get motivated We all have things to deal with aside from the D don't we
Anyway it's good to hear from you 🙂

 

[happydog]

Lovely to hear from you Lindarose. 🙂 I went to one of those Living with Diabetes Days in Reading. There was some interesting stuff but lots of inappropriate advice too. As you say an odd lunch with lots of carbs, followed by desserts and cake. Biscuits and pastries were served with tea and coffee. Guess we just have to take what we need from these experiences. I get flack about testing but stick to my guns on it. I know it is the only way for me to know what is happening and it has helped a lot. Unfortunately it is all about money and to be fair to the doctors many people won't do it and so it is a waste. Keep up your good work! 🙂

 

[Lindarose]

Hi Happydog and thanks for your message. It's good to hear from you.
I agree the DUK days are a great way to meet others I was surprised that people I got chatting to were all fairly local. I thought I was the only type 2 in Norwich! Ha ha
I'm now going to 'register' with my fasting BG. Hope you're doing well 🙂

 

[Bloden]

Hiya Lindarose.🙂 We've missed you! Hope the ear op goes well...let us know how you get on.🙂

 

[Jennywren]

I still hover about with occasional posts 🙂

 

[Northerner]

I still hover about with occasional posts 🙂

Nice to hear you are still reading Jennywren 🙂 I hope things are going well for you.

 

[RachelT]

Taking the Insulin plunge

I've done it, I'm on Insuman basal after about a month and a half of blood sugars above or around 15. Weirdly my HbA1c seems to be moderately acceptable. I've been in and out of work because having a blood sugar at an average of 15 makes me feel like something out of The Walking Dead. This is day three and things are improving slowly. I've also been diagnosed with Coeliac disease, which could be a bonus coz suddenly bread's a whole lot less attractive as a food stuff. Other bonus is that I now finally get test strips on prescription!
The bad side of this is I'm worried about explaining to the people at work how i feel, how I can't tell how I'm going to be feeling at any point in the future and why running round to the canteen for a sandwich when I'm tired isn't going to be an option. The other issue is that although Coeliac is linked to Type 1, nobody seems to be at all considerate that it might occur in Type 2s. I think i probably have a case of Your Actual Mileage May Vary diabetes, which isn't behaving like typical type 2. Since my brother is going through his own attempt to defy medical science at the moment (not diabetes related, much to the dismay of some of his doctors), it would be just my luck.

Rachel

 

[Northerner]

Rachel! Really good to hear from you again 🙂 It's great that you've taken the plunge with the insulin, I hope that you can finally start feeling happy and healthy with good, steady levels to give you more energy and less worries 🙂 It is a blow about the Coeliac Disease, but I know we have quite a few here with that and I'm sure they will be happy to help if you have any questions.

Diabetes is definitely a spectrum, and not a few distinct conditions - look at me, three years needing lantus, four years since I last used it, yet I need the novorapid with carbs.

Please keep us updated, I wish you every success in managing your new regime 🙂

 

[rossi_mac]

Evening folks,

Sunny days tired days a bit of shed time happy dayz.

Hope all well, me numbers been top dog of late upped levimir by 10% and over egging it so been a few too many hypos but better now. Also i didn't have a spring or autumn fluctuation like the last few years, hey ho.

Smile if you can, better still laugh every day that is good medicine.

Till next time, keep winning

Over n oot

Rossi.