Misdiagnosed type 1 after DKA?

UKamy27

Member
Relationship to Diabetes
Type 1
Just an update!
been to see a private consultant today. He said he was as sure as he could be I was not diabetic.
he said it was a rare case but he believes it is transient pancreatic shock. And after going on insulin it started the pancreas working again.
he did say had they done a HBA1C at the time they would have seen my BG levels were low and wouldn’t have diagnosed it as type 1.
he did say he can’t say 100% but he thinks it’s very unlikely that it’s type 1 /2 or LADA
Thanks for all your help and advice on here!!
 

rebrascora

Well-Known Member
Relationship to Diabetes
Type 1
So pleased you have some sort of possible explanation. I hope that puts your mind at rest a bit. We do have another member @Gwynn who had a similar experience and is currently considered not to be diabetic after being on insulin and a Type 2 then possible Type 1 diagnosis, but is now believed to have had some sort of pancreatic episode which triggered the problem and has since resolved.
 

KARNAK

Well-Known Member
Relationship to Diabetes
Type 1
Hello @UKamy27 my HbA1c at diagnosis was 156, (ouch) and I have had acute pancreatitis four times,
believe me if you had pancreatitis of any sort you would know about it, it starts in the stomach and works
its way through your abdomen to your back so makes it nearly impossible to do anything including standing
up.

If its acute its bad enough and needs treatment asap but if its chronic you can say goodbye if not treated
immediately, two of my episodes where abroad the first in Spain the second in Cyprus the others in Torbay.

I understand you had painful stomach episodes but pancreatitis will hospitalise you no question, our resident
Doc @mikeyB advises on the pancreatic forum he`s the one with the beard, ugly or what.:oops: sorry @mikeyB
I know you`ll get you own back.

Well someone is right or wrong your choice maybe Tarot cards can help?

Take care stay safe.
 

UKamy27

Member
Relationship to Diabetes
Type 1
Hello @UKamy27 my HbA1c at diagnosis was 156, (ouch) and I have had acute pancreatitis four times,
believe me if you had pancreatitis of any sort you would know about it, it starts in the stomach and works
its way through your abdomen to your back so makes it nearly impossible to do anything including standing
up.

If its acute its bad enough and needs treatment asap but if its chronic you can say goodbye if not treated
immediately, two of my episodes where abroad the first in Spain the second in Cyprus the others in Torbay.

I understand you had painful stomach episodes but pancreatitis will hospitalise you no question, our resident
Doc @mikeyB advises on the pancreatic forum he`s the one with the beard, ugly or what.:oops: sorry @mikeyB
I know you`ll get you own back.

Well someone is right or wrong your choice maybe Tarot cards can help?

Take care stay safe.
Hello thanks for commenting. I did comment on there been to see a consultant. It isn’t pancreatitis. He called it transient pancreatic shock. He felt there maybe have been some infection in the pancreas and so the combination of me having low vitamin D levels and then the car crash caused my pancreas to go in shock and stop working. But thanks for your comment.
 
Last edited:

mikeyB

Well-Known Member
Relationship to Diabetes
Type 1
I don’t think there’s any great difference between pancreatitis and “pancreatic shock caused by infection”. Infection anywhere ends in “itis”.

That said, I think that is the only rational explanation. So you don’t have diabetes. I would recommend chalking this up to experience - a passing visit to the dark world of diabetes. A story to tell when you are old and rambling. :)

Speaking of old and rambling, @KARNAK is right, acute pancreatitis is a pain you will never forget. Certainly for the 25% of folk who die from it in the first episode, so for sure you haven’t had that.

Anyway, enjoy the rest of your life free from injections:)
 
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