Membership

everydayupsanddowns

Administrator
Staff member
Relationship to Diabetes
Type 1
just wondering what the hell contraptions these were, to instigate terror????

Well suffice to say it was a part of the anatomy that a 21 year old didn’t much want to consider being adversely affected by the incurable condition he had just been diagnosed with. :eek:
 

trophywench

Well-Known Member
Relationship to Diabetes
Type 1
LOL - no just wait till you're older before you worry about that ...... !

Not!!! - the female version of you is never allowed to ignore the equal and opposite part of her anatomy ever since she was 11-ish, so if you never had to think about your bits till you were 20 - you expect sympathy?

Not here mate!!!
 

Eddy Edson

Well-Known Member
Relationship to Diabetes
Type 2
I remember being quite terrified by some of the contraptions advertised in the back of Balance when I joined the BDA in my early 20s :oops:

I'm glad that the HbA1c test replaced the Tongue Tremble Measure as the gold standard ...
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Andy

Well-Known Member
Relationship to Diabetes
Type 2
I was a member for several years, paying a yearly subscription of £25, but then started getting phone calls (always from someone with a really posh voice!!!) asking for extra donations. These calls were every couple of days and became very irritating and almost to the point of harrassment? I therefore cancelled and wouldn't reconsider becoming a member again.
 

grovesy

Well-Known Member
Relationship to Diabetes
Type 2
I was a member for several years, paying a yearly subscription of £25, but then started getting phone calls (always from someone with a really posh voice!!!) asking for extra donations. These calls were every couple of days and became very irritating and almost to the point of harrassment? I therefore cancelled and wouldn't reconsider becoming a member again.
It sounds like the same person who rang me but I only got the one call, unless I ignored further calls, I can't remember now though do te d to ignore calls fro numbers I don't recognise.
 

Andy

Well-Known Member
Relationship to Diabetes
Type 2
It sounds like the same person who rang me but I only got the one call, unless I ignored further calls, I can't remember now though do te d to ignore calls fro numbers I don't recognise.
Yes, a shame really as the charity has lost out on my £25 but self inflicted I am afraid.
 

grovesy

Well-Known Member
Relationship to Diabetes
Type 2
Yes, a shame really as the charity has lost out on my £25 but self inflicted I am afraid.
Well I refused to increase, and have stayed a member , but the tactics used and trying to get alot more out of me, left a bad feeling with me.
 

Annemarie

Well-Known Member
Relationship to Diabetes
Type 1
I’m just grateful I have been offered one! I get my Libra Sensor on the NHS doesn’t everyone?
 

helli

Well-Known Member
Relationship to Diabetes
Type 1
I’m just grateful I have been offered one! I get my Libra Sensor on the NHS doesn’t everyone?
Not in England! And not with type 2.
I too feel very lucky to have Libre on my prescription but aware of many others who do not.
I think the aim was for something like 25% of people with Type 1 to have Libre following the campaigning from Diabetes UK and JDRF.
 

Robin

Well-Known Member
Relationship to Diabetes
Type 1
I’m just grateful I have been offered one! I get my Libra Sensor on the NHS doesn’t everyone?
I’m trying to get mine prescribed. It’s been ongoing since last November so far, I keep jumping through more and more hoops. Meanwhile I keep on self funding, because they really are game-changing.
 

Annemarie

Well-Known Member
Relationship to Diabetes
Type 1
@Robin I found being a pain in the _ _ _ _ worked, I was told a ‘certain number’ were considered for a Libre each month so I rang each month to see if I was on that list. It took 4 months of calls, I think my persistence helped either they wanted to get me off their backs or they appreciated my eagerness (probably the former) Yes they are a game changer
 

Bruce Stephens

Well-Known Member
Relationship to Diabetes
Type 1
I think the aim was for something like 25% of people with Type 1 to have Libre following the campaigning from Diabetes UK and JDRF.

I think the target was at least 20% with the expectation of at least 25-25% (there was ring fenced funding amounting to about 20% and some number were already being prescribed). Last I heard was a little over 30% were getting them prescribed with the expectation that that would continue to increase.
 

Robin

Well-Known Member
Relationship to Diabetes
Type 1
@Robin I found being a pain in the _ _ _ _ worked, I was told a ‘certain number’ were considered for a Libre each month so I rang each month to see if I was on that list. It took 4 months of calls, I think my persistence helped either they wanted to get me off their backs or they appreciated my eagerness (probably the former) Yes they are a game changer
That’s Ok if you’re being seen by the hopsital in the first place, I had to be re-referred, which meant harassing my GP surgery nurse, then my GP, for a couple of months, then wait for a hospital appointment, which then changed to a delayed telephone consultation because of lockdown. I also put myself ahead of the game by doing the online Bertie course (they normally insist on a Dafne, at our hopsital, but they said a Bertie would probably do, in the circumstances, but I may have to produce the certificate to them to prove I completed it) and persuading them that since I’ve been using it, I don’t need the initiation course that they usually insist on (and probably aren’t running because of Covid)
All that took from November to July! I’m now into harassing the hospital for an answer, and believe me, they will get fed up with me.
 
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