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Lurker joins the club

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Greystoke

New Member
Relationship to Diabetes
Type 2
Hello all! Been lurking for a few weeks and decided to say hello. 🙂

A bit of a back story. I've always been fit and strong, having played Rugby League for 20+ years until I hung up my boots 4 years ago. Tried to stay fit via the gym but then an old back injury resurfaced and has limited what I could do for the last 2 years. Last summer my back went badly and I've been mostly sedentary since then.

So I put on weight...about 3 stone over the last 4 years. And then sat on my bum not doing very much. To make matters worse my father's side of the family almost all have type 1 (I didn't really know this, being adopted).

In January I came down with a nasty chest/lung infection requiring a few courses of antibiotics. About 2 weeks in I started experiencing weird symptoms: my eyesight went down to about 4-5 metres, desperately thirsty, needing the loo every 15 minutes, severe fatigue - and very rapid weight loss, about 1.5 stone in 3-4 weeks. 😱

After nagging the doctor they agreed these symptoms sounds like diabetes. I had blood tests and they said "nothing urgent but we'll call you in a week", only to tell me over the phone my reading was "a bit high and could be type 2 diabetes". No more info, stuck me on 2 x 500g Metformin and sent me away. That was it. No advice, no face-to-face appointment, nothing.

After a couple more weeks I pestered them again and finally got in to see a doctor. She told me my reading was "99, a bit high", doubled my Metformin to 4 x 500g a day and again sent me away. I had no idea what 99 meant, what test it was, nothing. Only another 3 weeks later when I saw a nurse did I get any advice and was the "99" put into context in terms of a HbA1c scale, when I realised it was rather high.

Anyway, it's been going fine and the lung infection has nearly cleared. Felt a bit fuzzy at times but nothing too bad. My diet has always been good - nearly all fresh & home-cooked food, no processed/fast food, no white bread, etc, and I've never been into sweets or chocolate, but of course now I'm extra careful. Like many on here I was too much of a wine lover (didn't help with my weight!), but stopped altogether until last weekend when I tried a little without any adverse effect. My back is much better so I'm also back in the gym and feeling the benefit. Total weight loss so far is just over 2 stone.

Despite that, I was back in with the nurse today and she did a quick glucose test. We were both very disappointed to find it at 20.6 rather than the ideal range of 3-7 (she said she'd accept up to 13 seeing as I'd eaten not long before). She took another HbA1c test just to check, results should be in 2 days.

So there we are. Sorry for the essay. In some ways it's been a good thing - lost plenty of weight and improved life style, back in the gym, but of course there's a bit more to it than that! 😉
 
I think at least at the moment - your body needs a bit more help than just the Metformin. 20's massive in comparison to a non-D - and I couldn't handle being that high for longer than a few hours - I'd have raging thirst and would be dropping off to sleep wherever I happened to be standing and whatever I was doing.
 
Evening and a warm welcome to the forum greystoke glad you came out the shadows and said hi 20 is high and .Maybe you need more help then just metformin
 
Hello Greystoke, glad you decided to join in.
As you have type 1 in your family, and don't seem to be responding to Metformin, are your GP and nurse keeping an open mind about the possibility of your Diabetes turning out to be Type 1? Unfortunately, some health care professionals seem unaware that you can develop Type 1 at any age ( I was 51 and misdiagnosed as Type 2 to start with)
 
Hi trophywench, Steff & Robin.

Strange thing is I felt fine at the time - no thirst or fatigue to speak of. Ok, I was a little tired but that's more down to a very busy 4 year old daughter keeping me busy. Most symptoms have eased enormously in comparison to 2 months ago, though the thirst comes back on occasion and I'm more tired at night. My eyes also feel a bit 'gooey' at times though my vision is fine.

Robin - no, that hadn't even occurred to me. I'll make sure I raise it at my next consultation, thank you.
 
Welcome.
I agree with Robin about could you possibly be Type 1.
 
Hi Greystoke, welcome - glad to see you decided to de-lurk! 🙂 I'd also be keeping a close eye on things and pose the question about possible Type 1, given your family history. From what you've said (99 a 'bit high' - double what it should be! 😱) they don't sound particularly switched on, and to be fair, slow-onset Type 1 is relatively rare, so they may not have encountered it before. Are you testing at home to see how your food choices are affecting your levels? If not, I'd highly recommend it - read Test,Review, Adjust by Alan S to understand how this works and how it helps - periodic randon tests at your surgery will tell you very little, and give you no information on which to base any future choices. If you have to buy your own meter and strips, the cheapest option we have come across is the SD Codefree Meter which has test strips at around £8 for 50 (GPs often say you don't need to test and won't supply the meter and strips, but this is a false economy :()

Let us know if you have any questions, we will be very happy to help! 🙂
 
Welcome to the forum. Sadly your experience when diagnosed is not unusual.
 
Hello and welcome Greystoke 🙂

What the others say re the possibility of type 1 given your family history. If things don't improve blood glucose wise despite all your best efforts do raise the issue with your medical team/gp.

I hope things settle for you soon with which ever medication you need and you continue to feel better. 🙂
 
Aye, welcome Greystoke. I'm also of the opinion that you may be a late onset type 1, particularly with your family history, but most importantly because the Metformin is having no effect. Eat fewer carbs, drink plenty of water, and exercise as much as you can while you are waiting for an answer.

And I cannot say how much I welcome a Rugby League man to our forum. A game that rewards good handling skills rather than brainless punting and games won on penalty kicks. I can start the argument now that I have a big boy on my side😉
 
You already had a girlie, had you mentioned it Mike!

Good grief - the lead GP at my old docs was a rugger player and held some position at HO - I have to say that cos I honestly don't know whether he was League or Union - before he became Chair of the BMA. (Being naïve I thought it was perfectly normal for one's GP to Chair the BMA and one's hospital D consultant be a Professor. I just assumed that all D consultants must be Profs.)

Anyway when our eldest got engaged, it was a 2 day party. All the Cricket friends on Saturday, all the Rugger ones on Sunday. They live in Rugby, by the way! Have to go past Tom Brown's old school on the way to my D clinic - playing field was packed the other week, hosting a team from elsewhere - team a supporters coaches parked - and all the years I've been going there - it's the first time we've seen anyone actually playing on that hallowed ground!
 
Hi Greystoke
Warm welcome to the forum .
 
Hi Greystoke, welcome - glad to see you decided to de-lurk! 🙂 I'd also be keeping a close eye on things and pose the question about possible Type 1, given your family history. From what you've said (99 a 'bit high' - double what it should be! 😱) they don't sound particularly switched on, and to be fair, slow-onset Type 1 is relatively rare, so they may not have encountered it before. Are you testing at home to see how your food choices are affecting your levels? If not, I'd highly recommend it - read Test,Review, Adjust by Alan S to understand how this works and how it helps - periodic randon tests at your surgery will tell you very little, and give you no information on which to base any future choices. If you have to buy your own meter and strips, the cheapest option we have come across is the SD Codefree Meter which has test strips at around £8 for 50 (GPs often say you don't need to test and won't supply the meter and strips, but this is a false economy :()

Let us know if you have any questions, we will be very happy to help! 🙂
Thanks Northerner, my nurse had advised not to bother with a test kit but I'd been browsing for one. Bought the SD kit and additional test strips you recommended, it arrived this morning - less than 24 hours after ordering.

Of course lacking any patience I did a test straight away (just under an hour after eating) and got 16.8 mmol/L, which is of course still too high.
 
Aye, welcome Greystoke. I'm also of the opinion that you may be a late onset type 1, particularly with your family history, but most importantly because the Metformin is having no effect. Eat fewer carbs, drink plenty of water, and exercise as much as you can while you are waiting for an answer.

And I cannot say how much I welcome a Rugby League man to our forum. A game that rewards good handling skills rather than brainless punting and games won on penalty kicks. I can start the argument now that I have a big boy on my side😉
Hi mikey, good to find a fellow RL fan on here 🙂 I've had the old 'kick & clap' argument many times! That said, I've actually considered strapping the boots on again and playing RU - it's a little known truth that many RU clubs have 3-4 teams, with the 3rds & 4ths packed with 'vets' and the, erm, lesser skilled. Most people don't play RL much beyond the age of 30 due to the demands (actually, it's more the length of time to recover), but you can play RU until you're pulling your pension. 😉

Yes, I'm starting to agree with people on here, type 1 should be explored. I've cut out almost all carbs with the exception of the odd slice of burgen bread, a few root veg, and the very occasional biscuit at the mother-in-law's. I'll still have a glass of wine this weekend too. Exercising has been tricky due to my lingering chest infection but I'm back on it now.
 
Exercising has been tricky due to my lingering chest infection but I'm back on it now.
Just a word of warning about exercise, Greystoke - if your problem is due to insulin insufficiency (i.e. you might be a slow-developing Type 1) then you shouldn't exercise if your blood sugar levels are above mid-teens. This is because it can actually cause your levels to go higher, and also cause a build up of acidic elements called ketones in your blood (created from the burning of body fat, when the body can't use glucose properly), which can be dangerous - high blood sugars and high ketones can lead to a condition called DKA (Diabetic Ketoacidosis). Don't want to be alarmist, but it's something you need to keep in mind until you get a firm diagnosis.

Hopefully, if you are over the infection, your levels will naturally become lower.
 
Thanks Northerner, appreciated. I'll bear it in mind and perhaps not go too crazy in the gym tomorrow. I've looked up the symptoms so will try to be aware.

The results of my latest HbA1c came in today...but my GP is on leave over Easter and the receptionist couldn't tell me the results, although she did say the GP wants to discuss them. So we've booked a follow-up telephone consultation for 20th.

Took a reading just before eating this evening, a good 5 hours after my previous meal: 14.5mmol/L, and another just now 2 hours after eating: 18mmol/L.
 
Thanks Northerner, appreciated. I'll bear it in mind and perhaps not go too crazy in the gym tomorrow. I've looked up the symptoms so will try to be aware.

The results of my latest HbA1c came in today...but my GP is on leave over Easter and the receptionist couldn't tell me the results, although she did say the GP wants to discuss them. So we've booked a follow-up telephone consultation for 20th.

Took a reading just before eating this evening, a good 5 hours after my previous meal: 14.5mmol/L, and another just now 2 hours after eating: 18mmol/L.
Not a bad rise from the meal, hopefully those 'base' levels will fall before long and the whole thing will look a lot better 🙂
 
Morning! Sorry to keep bumping this thread but I did a test first thing this morning: 20mmol/L.

Should I be concerned that's higher than pre (14.5) and post-food (18) yesterday evening, and after an overnight fast?

With my GP on leave I won't be seeing anyone for another 2 weeks. Not liking the direction these results are going.
 
Morning! Sorry to keep bumping this thread but I did a test first thing this morning: 20mmol/L.

Should I be concerned that's higher than pre (14.5) and post-food (18) yesterday evening, and after an overnight fast?

With my GP on leave I won't be seeing anyone for another 2 weeks. Not liking the direction these results are going.
I'm not liking them either - is there another GP you can see at the practice? I think you shouldn't wait for your own GP.
 
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