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Low blood sugar? Advice needed!

Star98

New Member
Hey!

So, after experiencing a variety of symptoms for quite some time now, and feeling somewhat ignored by health professionals, I started looking into what could be causing how I felt. I bought an at home glucose monitor, and found that when I was feeling tired/dizzy/ shakey my blood sugar was low - the lowest reading I had from this process was 2.8, averaging between 3-3.8.

At one point, the reading was 3.6 - i did drink around half a can of full sugar fanta, and checked again around 20 mins later, and it was 3.3. I continued drinking/eating and it took a couple hours to return to around 4. At the point it was 3.3, I did call the NHS number, they said to see a Dr in the next few days, and my Dr said there was nothing to be concerned about, and i should stop checking it.

Personally, I am quite worried about this - but i am open to being told I am wrong. I think it's more the symptoms/how I feel that worries me, not necessarily the numbers. So, i bought a CGM to monitor my glucose levels.

I have been monitoring it, and i do feel a lot better within myself - it regularly alerts me when my blood sugar is low/falling, and I am teaching myself how to correct it/bring it back up. Sometimes, when it hasn't dropped too far, it does correct itself. Overnight it will sometimes fall to around 3.7 before going back to around 4.2. Other times, it will continue to drop, and i don't feel better until after I have eaten something. I am very confused by it all - I'm just hoping someone here may have a similar experience. They're quite expensive to continue to purchase, so if there is a health condition causing this - I'd like to fix it.

So, what I have noticed
- No matter what I eat or drink, my blood sugar rarely goes above 7mmol/l.
- in the last 7 days, 84% of the time, my blood sugar level is 4.0-6.0 (4% of the time under that, 12% of the time over that)
- When I eat/drink, it rises fairly quickly - but then falls equally as fast. For example - 08:45 ate toast, blood sugar goes from 4.2-6.2 by 9:45 blood sugar has returned to 4.2, and within another half hour or so drops to 3.6, before rising back to around 4.2.

- Generally seems to fall quite quickly after eating/drinking. Generally seems to be around 4-5 most of the time. Any advice on how to manage it, if it is normal, what to look out for would be appreciated. I have been eating a lot more than I usually would, and a lot more frequently, i don't know if that is the right thing to do but I know it isn't sustainable long term.

I do plan on speaking to a different GP about this, and my symptoms, but I'm dreading it because of the previous response. I thought I would ask here and get a better understanding of if I should be following this up or not. I have been tested for diabetes before, and that was negative. I do not take any diabetes medication, nor any other medication that would be impacting this. I generally eat and drink regularly.

Thank you for any advice on this!
 
Welcome @Star98 🙂 Obviously you should always consult a doctor with any health concerns, but nothing you’ve said sounds worrying to me. The range and alerts on the CGM are for people with diabetes on insulin not people without diabetes. In people without diabetes, blood sugar is fine in the 3s and it’s common to be in the 3s overnight.

Not going higher than 7 isn’t a problem either, as that’s normal for those without diabetes.

Finally, reactive hypoglycaemia was mentioned above but it doesn’t sound like that either. I know someone with RH and the numbers you’ve written are nothing like theirs.

Some people, especially women. are just more sensitive to the normal movements of blood sugar. Just eat well and have snacks if you need them. Again, always get medical advice if you feel ill, but it seems like you already have. I’m sorry the doctors were “dismissive”, but from what you’ve said it doesn’t sound like anything weird is happening with your blood sugar at all.
 
There is a condition which may be worth suggesting: reactive hypoglycaemia. It sounds like diabetes isn't likely (though I'm sure your GP will offer an HbA1c test just in case, if they haven't already).

Thank you for taking the time to respond - I appreciate the advice, and after reading about that, It seems a possibility to discuss with my GP. Thank you!
 
Welcome @Star98 🙂 Obviously you should always consult a doctor with any health concerns, but nothing you’ve said sounds worrying to me. The range and alerts on the CGM are for people with diabetes on insulin not people without diabetes. In people without diabetes, blood sugar is fine in the 3s and it’s common to be in the 3s overnight.

Not going higher than 7 isn’t a problem either, as that’s normal for those without diabetes.

Finally, reactive hypoglycaemia was mentioned above but it doesn’t sound like that either. I know someone with RH and the numbers you’ve written are nothing like theirs.

Some people, especially women. are just more sensitive to the normal movements of blood sugar. Just eat well and have snacks if you need them. Again, always get medical advice if you feel ill, but it seems like you already have. I’m sorry the doctors were “dismissive”, but from what you’ve said it doesn’t sound like anything weird is happening with your blood sugar at all.
Thank you for taking the time to respond, your perspective is appreciated.

I didn't necessarily mean that not going higher than 7 was an issue, just an observation. I think I meant more staying at those levels, more than the initial spike. I am not very knowledgeable, but understood from google that 4-6 were good fasting glucose levels, so assumed they should be above this within an hour or so of having a meal. Those may be the recommended levels for people living with diabetes? on the I'd be interested to know the numbers someone with RH would experience if you have knowledge of this?

As another example with more significant jump in numbers - 7:45am blood sugar 9.9, 8:45am - 3.5, 9am 3.3mmol. So, dropped from 9.9 to 3.3 in about an hour and 15 mins, after eating some cereal.

Thank you again for the advice! 🙂
 
If you had Reactive Hypoglycaemia your levels would shoot up really high (mid teens sort of range) after having carb rich foods and then when your delayed insulin response eventually kicked in, it would come down too low. It is the going high which triggers an incident of RH which is why it is managed by following a low carb, low GI, small meals way of eating. You are not going high as you say your levels have not gone above 7 regardless of what you eat, which shows you have really good blood glucose regulation. so it will not be RH and certainly not diabetes.
Hypos are really only considered below 4 for those of us on insulin and other medication which can drop our levels dangerously low, but between 3.5 and 4 in not dangerous and the body will regulate it as you have seen and bring it back up. As an insulin dependent diabetic I treat below 4 as a hypo to preserve my hypo awareness because that is my safety net if the technology fails, but it is normal to feel low glucose at 4.3 and sometimes even higher as many of us do. Being diabetic doesn't give us super human powers, it is just that non diabetic people don't need to recognise those signs because their life doesn't depend on it, so it is possible that you have naturally dropped below 4 and felt it and that your body has corrected it. The time you treated those lows and didn't appear to come up was likely an error/delay on whatever you were using to monitor your levels of your body releasing glucose to counteract the sweet stuff you were ingesting.

Added to that, BG meters and CGM are not nearly as accurate as the decimal place suggests, so they may well be lulling you into a false sense of panic that you are dangerously low when you are not, which can make the feelings of low BG worse and particularly cause an adrenaline rush which is absolutely horrid. My advice would be to put this out of your mind. By all means eat a jelly baby if you feel a bit wobbly but one jelly baby is more than enough because you have a liver which is easily capable of bringing your levels back up from it's stores and indeed that is one of it's many functions to help balance BG levels.
As someone who struggles with mental my own mental health, I know what anxiety can do to you and it can make you feel horribly ill, but I think you can be reassured that blood glucose is not a concern for you from the info you have given us.
 
Thank you for taking the time to respond, your perspective is appreciated.

I didn't necessarily mean that not going higher than 7 was an issue, just an observation. I think I meant more staying at those levels, more than the initial spike. I am not very knowledgeable, but understood from google that 4-6 were good fasting glucose levels, so assumed they should be above this within an hour or so of having a meal. Those may be the recommended levels for people living with diabetes? on the I'd be interested to know the numbers someone with RH would experience if you have knowledge of this?

As another example with more significant jump in numbers - 7:45am blood sugar 9.9, 8:45am - 3.5, 9am 3.3mmol. So, dropped from 9.9 to 3.3 in about an hour and 15 mins, after eating some cereal.

Thank you again for the advice! 🙂

The person I know with RH used to shoot up into the high teens then plunge down into the 1s (yes, ones) They needed hospital treatment. What you’re describing sounds nothing like this. They used to become unconscious.

Nothing you’ve written sounds worrying 🙂 I’d ditch the CGM and meter and forget it personally.
 
Welcome @Star98
With the caveat that I have no medical training, I am inclined to agree with @Inka. The BG numbers you mentioned are not particularly concerning.
I have a CGM which is fantastic. However, I need to be aware of the limitations such as frequently under reading low values and (over reading high ones) as well as compression lows in the night. Even the manufacturers of CGMs recommend checking CGMs with finger pricks.
 
You might find this reasonably large-scale CGM study of people without diabetes reassuring


A mean value of 5.5mmol/L and some time spent below 4.0 are very common.

Your body quickly returning glucose levels to premeal values just shows that your metabolism is working well I would suggest? Again, no one hear is medically qualified, but we do have lived experience of the slightly overwhelming nature of data at times.

From what I can see your results seem to correlate with healthy non-diabetes individuals as included in the trial data?
 
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