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Local Voluntary Support Groups

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stephenmcdonald

New Member
Hi,

I was wondering if any of you are involved in diabetes uk voluntary support groups? What is the role of your group (eg parent support, young people etc), how many would attend and so on....

Thanks
Stephen
 
Can't really answer your question at the moment Stephen, but my local group is just starting up again and I'm hoping to get involved when it does🙂
 
Hi,

I was wondering if any of you are involved in diabetes uk voluntary support groups? What is the role of your group (eg parent support, young people etc), how many would attend and so on....

Thanks
Stephen

Hi Stephen

I'm the secretary for the local children's group. We are the Herts and Essex Children's Diaebtes Support Group - affiliated to DUK. Our role is to support the parents, children and siblings. We have about 40 families as members since October 🙂

Ask any questions :D
 
Hiya,

I'm currently trying to set up a group for diabetic mums / mums to be, in response to my own experiences first time round & several letters etc to Balance Mag. The group would be based in the Charnwood area of Leicestershire, if anyone's interested! 🙂

Twitchy
 
Hiya,

I'm currently trying to set up a group for diabetic mums / mums to be, in response to my own experiences first time round & several letters etc to Balance Mag. The group would be based in the Charnwood area of Leicestershire, if anyone's interested! 🙂

Twitchy

Ooooh! I didn't know you were from my neck of the woods Twitchy!

I grew up in Woodhouse Eaves (right in the heart of Charnwood) but I'm now living over the border in Melbourne Derbys.

I'm not a mum, or a mum to be though sorry!!
 
hi,

our group is very general, not really for any particular group ie mums, children etc. There would be about 40 people come on average on the 3rd monday every two months and different people come to speak. I would love to get more young people involved, but it seems hard to do this
 
Hi Stephen,

Where abouts is your group based?
 
hi,

our group is very general, not really for any particular group ie mums, children etc. There would be about 40 people come on average on the 3rd monday every two months and different people come to speak. I would love to get more young people involved, but it seems hard to do this

Hi

I think that is very admirable of you. I think you will have problems getting more young people. It is hard to mix adults and childrens diabetes because of the differences really (in my view).

Where I used to live they have a very proactive support group. However it is mainly adults and mainly type 2 at that. A mum and son team joined the group and started running children's sides of things but it could never be mixed. If you had speakers relevant to children then the adults wouldn't go and the parents of the children could only go if one of them stayed home and babysat or they brought the kids which is not good on a school night. If the type 1 kiddies don't get their required sleep it has a knock on effect on levels.

The mother and son team finally realised this and started organising children only things, not often, but this worked much better.

So everyone, adult and child alike are members of the same group and if I remember rightly we had to pay ?3 per year or something (so guess it was DUK affiliated as they want our money - sorry very cynical about DUK) but there were two different groups.

Where I live now two mums started up a support group, infact we have a website which is just being sorted out. We meet the first Monday of each month at 4 pm until 5.00 pm. It was at one of their houses but there are too many of us now so we have got a school hall instead. We have just gone to Chessington with the group last Saturday. They have a parents pub evening once in a while. We go to the panto. We have educational speakers once in a while. I've been to two in the last year and a half. Infact I am the next speaker, they have asked me to do carb counting. This is unusual though, they normally get a proper person like John Davis from INPUT etc. This is normally at 7 pm for an hour so early enough for kiddies to go if necessary.

Don't forget you don't need to be affliated to DUK at all. We aren't. They asked us to but it was about about fund raising for them. We want to be a support group not a funding raising group for DUK. If we do get any funds ie someone did a barn dance for us, we used it to subsidise the panto.

Good luck, it is fantastic thing you are doing. 🙂
 
I'm on the committee of the Derby DUK Voluntary Group. My role is mainly around advertising the group on the Internet (so I guess this counts toward it!!).
The group meets every 2 months and there's around 15-20 who come although sometimes there's a lot less, and sometimes a lot more. We have guest speakers and, like the last meeting, we sometimes have an "Ask the Experts" theme where, say, a dietician will come along with a DSN and a podiatrist.
It's pretty good but we could do with some more younger (18-40ish) people! It'd be great if any of the people here went!
 
I suspect it's a vicious circle - I've never been to a local support group (anywhere that I've lived - never Derby, SamInnocent), as I doubt I'd have much in common with adults older than me with type 2 diabetes (I'm in 40s with type 1). I know it could be useful for children with type 1 diabetes to meet someone a bit older who does vaguely normal / exciting things, but I haven't got the time - too busy working (1 full time and 2 part time jobs, plus some occasional work, plus sports & activities etc. However, it's great to hear that local groups work for some people.
 
I Copepod. Just to say, you'd be surprised how many type 1s there are around your age. Whenever I go to hospital meet-up events for type 1s there are usually about 5 people in their 20s and the rest of the people are about 35+ out of about 200!

Unfortunately I don't as many people my age take the condition seriously enough :(
 
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