Levels climbing again :(

[pav]

Following docs advice, and reducing the gliclazide my BS levels are rising as predicted .

Started off nicely with a 4.6 followed by another 4.6 before a very late lunch, should of been hypo by this time normally then after lunch starting the afternoon climb with a 9.7. Before tea 7.0 slightly higher than normal, 2 1/2 hours later (forgot what the time was) a 10.2 now its 8.3 sill high for me at this time. Been running higher for the past few days with numbers up to 12.5 mostly just under the 10's

The toes are tingling, not the worse they have been just enough to let one know that I have a higher than my normal BS.

I have also noticed that I am drinking more fluids, if I don't have a cuppa tea every hour + other drinks get the thirst pangs.

Can't wait to see what my next HbA1c is like, and hopefully get the doc to agree I run better at lower levels.

 

[Northerner]

If you were happier at lower levels, with the risk of mild and treatable hypos then I think it is wrong to restrict your medication to effectively force you to run higher. What the GP ought to be doing is addressing the imbalance in the way your levels fluctuate - you seem to have a fairly predictable pattern of potential lows and potential highs at different times f day, so this may be better addressed by an alternative treatment to the one you have been using (insulin, for example).

 

[pav]

I have been trying to get the docs to help with the peaks, hopefully in a couple of months they may look into it, though must choose the right doctor.

Apart from the crazy hot weather when I had a few hypos more than expected like a few others have had. Over the last month I have had 5 hypos. Out of the 5 hypos 4 of them was me trying to correct for a high that occurred earlier and got it wrong, normally had a very low carb meal and best described as a higher in fat content, not good for the waist line. Think if getting a high, its now not worth trying to correct it (unless really high).

The remaining hypo was down to my own stupidity and from the timing of it I left it well too late to have a snack or eat lunch at the right time.

 

[Northerner]

From that it sounds like the GP, like many of them, doesn't believe you can achieve the results you are getting without having a significant number of hypos, which is clearly not the case. 5 hypos in a month, all with explanations show that you understand your needs very welland are not deliberately risking lows by trying to keep your overall levels well-controlled.

 

[pav]

Now if the doctors took your view, I would probably by now got the little bit of extra support that I need / requested.

The one doc just saw the hypos and put 2 + 2 = 5 syndrome, may be next time I won't show him the monthly chart.

 

[DeusXM]

Why wait to the next A1C?

You're already getting high readings - including readings which are outside the norm even by the very lax NHS standards.

I'd put in the call now, armed with your results. It's going to be of no benefit to you to wait around a few months to get this sorted.

 

[Caroline]

Good luck getting/finding a supportive doctor. When I wanted to do a course (the xpert duabetes one) because he'd never heard of it he trashed it. I did it anyway...

 

[pav]

Already tried putting the call into a decent doctor, and they want more proof that the current meds are not working, as they say the next stage of meds I requested to see if they help, I am not in the NICE guide lines for these meds. Just hope they renew the prescription for test strips I have just put in, otherwise its back to square one with testing. 6 months ago some of the docs were happy for levels to be in the 20's

With my previous HbA1c of 44 and my last BMI check was 33 / 34 (! am 6' 2" and around 114 kg) which is either fat or obese depending on who's talking, which puts me outside the change bracket.

My blood pressure will start to climb if not already climbing as been taken off Ramipril to eliminate possible side effects of a persistent cough and need to wait several weeks for their effect to come out of my system.

What's strange is I have been outside guidelines twice recently (over prescribed meds) and I have had to point out the first one to one of the docs and the second one I found out the other night (thanks to one of Northerners links) will be the next one to query with the docs.

Been diabetic for 13 years and never been offered a desmond or similar course, checked the locations of the desmond courses and there's non near me.

 

[Northerner]

Already tried putting the call into a decent doctor, and they want more proof that the current meds are not working, as they say the next stage of meds I requested to see if they help, I am not in the NICE guide lines for these meds. Just hope they renew the prescription for test strips I have just put in, otherwise its back to square one with testing. 6 months ago some of the docs were happy for levels to be in the 20's

With my previous HbA1c of 44 and my last BMI check was 33 / 34 (! am 6' 2" and around 114 kg) which is either fat or obese depending on who's talking, which puts me outside the change bracket.

My blood pressure will start to climb if not already climbing as been taken off Ramipril to eliminate possible side effects of a persistent cough and need to wait several weeks for their effect to come out of my system.

What's strange is I have been outside guidelines twice recently (over prescribed meds) and I have had to point out the first one to one of the docs and the second one I found out the other night (thanks to one of Northerners links) will be the next one to query with the docs.

Been diabetic for 13 years and never been offered a desmond or similar course, checked the locations of the desmond courses and there's non near me.

Have you also checked XPert courses, or if there are some locally-designed courses? I believe it is in NICE guidelines that everyone should be offered a course - certainly within the first 13 years! 🙄

Also, I'm surprised they have taken you off the ramipril but not started you immediately on a different type of BP med, like one of the '-sartens'. I moved directly from ramipril to candesarten. Or is it that they need to prove it's the ramipril out of your daily case of meds?

 

[pav]

The last doc I spoke to (a new one to me) said they need to let the Ramilpril to be flushed out of the system to eliminate any side effects its been causing.

She did mention other meds when I queried the pressure rising, but not for another few weeks. I am on Amlodipine as well for the blood pressure, but its taken a combination of the two to keep it reasonable. Was at one point like 150 / 124 that I can remember think the lower reading was in the 130's at one point, had a lot of stress going on with the job a few years ago and the pressure never came back down.

Will look into the XPert courses to see if there are any local to me.

One of the links you posted said if on simvastatin and Amlodipine, it should be looked at and the max dose of the simvastatin should be 20 mg, where I am on 40 mg.