• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Let the Pumping begin!

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
This is great news Viki.
Having someone to support you at home is wonderful.

Aren't most of us lucky to have this care and support?
 
Hi guys

i apologise for being very naive but is there a waiting list or anything for these pumps, who do i ask about going on one, the DN last said that they were in specialist areas only (i'm in essex)

were you on four times a day before you got put onto the pump?

How are you finding it during night time?

xxxx
 
Hi Viki,

Out of curiosity, which pump do you have? I'm begining to consider one at the moment. My local NHS trust use the Accu Chek Spirit.

Tom H
 
Pumps

Hi all been t1 Diabetic for 33 yrs and seen many changes from the old syringes that where metal and had to be sterilised to now on an Accu Check Spirit. It is the best thing ever. I had struggled with peaks and troughs on lantus and novorapid, but now 3 months on the pump and life is FAB. You have hard work at first like any change,but the low sugars are due to too much insulin given or excerise and you just set new rates for what you eat and do, hormones also play a big part for us women in control and i have rates to give on those days. You also have to do fasting blood sugars to ensure that the background insulin (Basal Rates) are set correctly and this is hard work but believe me as a person that likes her food and drink it is worth it. There are guidelines on the issue of pumps and you have to insure on house policy for accidental damage or theft as they cost 2.5K for the unit alone. I got mine suggested as poor pregnancy outcome and trying to conceive again it gives better control. Accu check team are fab in uk freephone no 24hrs the reps who issue you with pump are on call to help as back up to team. that is dedication
Check with your Dn and consultant and Nice guidelines.
I even download all my weeks insulin rates on to pc plus glucose est and the put into easy to read document for hospital.
More people should be given these as i feel would reduce the complication from diabetes. But hey the NHS(gov) think of cost of issuing something over the long term cost of treating all the problems of diabetes. My doctor when little gave me disposible syringes as he said if Drug users get them FOC the i should as i did not ask for this disease.
 
Wow, two and a half grand. Do you get a back up pump as part of the deal with the Spirit? I recall reading somewhere that you do (?) What's starting on one like?

Tom H
 
You do get a back up with the spirit but not always immediately. Starting on a pump is information overload, every other sentence out of your mouth will contain the word "pump" for a couple of weeks and you might not get much sleep for a night or two! and then you'll relax! but honestly (most) hospitals and pump ccompanies will bend over backwards to support you and you will adapt to it quicker than you thought possible- forgot the pump was attatched within 24 hours and within a week I had forgotten what it was like to do injections.
 
You're really starting to swing me towards this you know. Does it in essence give you "a new lease of life"?

Tom H
 
Its very individual-but then if your not having madly swinging blood sugars or loads of hypos/hypers every day then you will feel better if just because of the stability. Sure you know this but its not like magic or a cure or anything-its like driving a porsche-get it right its the ride of your life, get it wrong and it goes wrong . You might not feel better overnight-some people do but I felt rough initially as I had hypo symptoms when I wasnt low as my blood sugars were not used to being around the 4-5mmol mark! but that subsided and can honestly say that I never realised how poorly I felt on MDI as I'd just got used to it but after being on a pump and not being up 2-3 times a night with hypos then having swinging blood sugars all day I felt so much better- which came as a bit of a suprise because as I said before feeling crappy becomes the norm. I also ate my first bag of jelly babies at age 25!
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top