LADA or not?

[JohnnyRam]

I guess that’s down to sheer numbers and high workloads. But, if you are managing well then there is no need to keep having regular appointments. It remains to be seen whether I get reduced to an annual appointment, fully expecting it and really I don’t want to take up the DSN’s time if I am ok and doing alright.

One fantastic thing for me is that I have been told to call my diabetes clinic anytime I need if I have questions or problems. In between my last couple of appointments I did call, leaving a voicemail and actually had a return call on the next day! I was asking about how best to bring insulin levels down later in the day as they tend to rise for me and the DSN who called me back was able to review my Libre charts and advise on things like increasing prebolus time, etc. It seems that will always be available to me regardless of frequency of actual appointments. I never had this before as I was discharged back to the GP and those sort of questions would have meant waiting for another referral to the hospital team. I know that my GP don’t look after T1s, leaving their care to the hospital team and only handling the blood testing and annual checks, so maybe that is the difference.

Agree that if things are well under control then there isn't lots of need for regular appointments, but if a diagnosis has uncertainty around it, then more attention for longer is probably right. That's what they are offering me, which is good.

 

[JohnnyRam]

hi, after five years of type 2, with unintentional weight loss (I am slim and active also) on Friday the hospital confirmed that its type 1, i'm off most of the tablets (240 a month!) and was put on insulin 3 months ago, its been very frustrating, the weight loss when your slim already is depressing, the insulin has been a revelation, weight is coming back gradually, so I feel a lot healthier, also had a Libra 2, so readings are easy off my iPhone, I hope you get better, and you gain some weight back, best of luck to you.

Thanks @LUSTFORLIFE. I have put a few pounds on since starting the insulin about a month ago, and I now have a Libre. Sugars remain frustratingly high at times though so there is still quite a bit of trial and error ahead I think.

 

[SB2015]

Agree that if things are well under control then there isn't lots of need for regular appointments, but if a diagnosis has uncertainty around it, then more attention for longer is probably right. That's what they are offering me, which is good.

People with T1 are often supported at their local hospital/specialist team at the start. How long that continues will depend on how you are managing and what tech you are using.

As a pump user I have stayed under the care of the local hospital, since I am the only one using my system at our Practice there is understandably no expertise available there, whereas the hospital support all of us in the county using the system. That seems to make more sense.

Some T1’s are seen at their GP Practice and are happy with this, and are able to ask for a referral if necessary. All of us should get annual checks for at least our HbA1c, BP, Cholesterol, and a foot tickle.

There is a lot of variation, but it sounds like they are keeping a good eye on you.