LADA or not?

[JohnnyRam]

I’m wondering if anyone has had a similar experience to me - I was diagnosed last November following several months of unexplained weight loss. I am 62 but have always been fairly active and slim and my A1C was high at 114. I started on insulin given level of sugars and healthcare team expected LADA. Not fully ruled out but antibody tests are negative and C Peptide level is normal. So now they are keeping me on insulin and adding metformin. Wondering if anyone has been through anything similar?

 

[TheClockworkDodo]

Hello again @JohnnyRam - I just replied to your other thread with some questions, and I see you've answered them already here, sorry!

The weight loss does rather suggest type 1 and not type 2, even if the antibody tests don't. Was it caused by Diabetes Ketoacidosis (did you have ketones when you were diagnosed)? That is quite common in untreated type 1, but rare in type 2.

I can't think of anything else to ask, but there are a few people here who've had unusual beginnings to their diabetes so I'll tag @EmmaL76 and @rebrascora as they may be able to be more helpful.

 

[JohnnyRam]

Thanks @TheClockworkDodo

I didn't have any episode of ketoacidosis and my ketone levels have remained pretty good, usually around 0.6 though they have strayed a little higher a few times. High blood sugars, weight loss and very frequent visits to the loo were the symptoms.

I'm finding it all a bit baffling, really. I was pretty resigned to type 1 as it all seemed to fit together and that at least would have given me some certainty. I saw your other reply and yes, it is good that they were alive to the type 1/LADA possibility. No-one knows where I am in the cycle of developing this, so it could just be that the gradual onset is very gradual. The nurse is discussing with the consultant and should be in touch later today with views on continuing type 1 treatment. Thanks also for tagging the others - I look forward to hearing about their experiences.

 

[rebrascora]

Hi and welcome.

Sorry to hear that there is a question mark over your diagnosis. That can be really unsettling but pleased that you are at least on appropriate treatment. I had a similar HbA1c at diagnosis and the weeing for England and unquenchable thirst. For me it came on very suddenly. I was out for a meal as as I was about to leave the pub, I suddenly felt really thirst and assumed that the pie I had had must have been a bit salty although it hadn't seemed so. Got home and the thirst got worse and I spent all night downing pints of water and visiting the loo and nothing slaked that thirst. When it continued into the next day I knew it wasn't a salty pie. It was two weeks before I contacted a GP and another 6 weeks before I started on insulin as they assumed I was Type 2 and I didn't get tested for Type 1 until another month after that and the GAD result took 6 weeks to come back. My C-pep test was borderline but thankfully my GAD was positive. Unfortunately the GAD and C-pep tests are not always conclusive though and they need to look at the whole picture, rather than just the tests. As @TheClockworkDodo has mentioned, your weight loss suggests Type 1 as does your active lifestyle. Have you had Covid recently as that can trigger Type 1.

The only thing I would perhaps request is a pancreatic scan, especially as they haven't found GAD antibodies. Cists, tumours and inflammation in the pancreas can occur and I believe that some people can get pancreatitis without the acute pain, so I would push for that as, if the pancreas is damaged/diseased, it will not be able to produce enough insulin leading to weight loss and high BG but without the GAD antibodies. This is effectively Type 3c diabetes but many GPs are unaware of that category, so worth getting that checked out. Pancreatitis can sometimes go hand in hand with gall stones, so if you have ever had problems in that respect then that would lend weight to this being the cause, but it would be wise to rule out anyway.

Which insulin(s) have they given you and how are you managing with them?

How is your body coping with the metformin? Hopefully they started you off on a low dose and are increasing it gradually. Do make sure to take them with food. I found mid meal was best to reduce the risk of gastric upset.

 

[EmmaL76]

Hi @JohnnyRam. It’s really hard when you have an uncertain diagnosis as this leads to anxiety about what future treatments will be and how your going to manage your condition. I’ve been between types for 2.5 years now. Diagnosed at 43, due to covid and no face to face it was assumed I was type 2. I was slim, very fit with no metabolic issues other than the high sugars. I have however had a history of raised BG on and off for 20 years. @rebrascora has covered most of the practical stuff but I would like to ask if you have seen your antibody results? I say this as my doctor phoned me after mine to say they were all negative. It was a month or so later when I was told the GAD was borderline (55 it should be less than 5) the lab called it borderline but consultant say it’s a positive result. This lead to a diagnosis of type 1. Unfortunately for me this hasn’t been a clear cut case at all. Insulin trials have proved very tricky and I’ve found it easier to go low carb and as my c peptide results were normal (not raised as is common with type 2) my consultant is happy for now. I’ve also been tested for all strains of MODY which were negative. Chances are that if within 5 years I maintain a normal hba1c without medication that I will recategorised as a type 2 of unusual phenotype. It’s been hard, I got very skinny and quite unwell/depressed with it all but I’m putting on weight again now I’ve stopped being so obsessed with my numbers. Just checking with RAM in your name… your not a derby county supporter by any slim chance ?

Thanks @TheClockworkDodo for tagging us in, over my 2 years on this site I have seen a fair few different varieties here so you are by no means alone in fact I bet there are more of us than there are derby county fans !

 

[JohnnyRam]

Hi and welcome.

Sorry to hear that there is a question mark over your diagnosis. That can be really unsettling but pleased that you are at least on appropriate treatment. I had a similar HbA1c at diagnosis and the weeing for England and unquenchable thirst. For me it came on very suddenly. I was out for a meal as as I was about to leave the pub, I suddenly felt really thirst and assumed that the pie I had had must have been a bit salty although it hadn't seemed so. Got home and the thirst got worse and I spent all night downing pints of water and visiting the loo and nothing slaked that thirst. When it continued into the next day I knew it wasn't a salty pie. It was two weeks before I contacted a GP and another 6 weeks before I started on insulin as they assumed I was Type 2 and I didn't get tested for Type 1 until another month after that and the GAD result took 6 weeks to come back. My C-pep test was borderline but thankfully my GAD was positive. Unfortunately the GAD and C-pep tests are not always conclusive though and they need to look at the whole picture, rather than just the tests. As @TheClockworkDodo has mentioned, your weight loss suggests Type 1 as does your active lifestyle. Have you had Covid recently as that can trigger Type 1.

The only thing I would perhaps request is a pancreatic scan, especially as they haven't found GAD antibodies. Cists, tumours and inflammation in the pancreas can occur and I believe that some people can get pancreatitis without the acute pain, so I would push for that as, if the pancreas is damaged/diseased, it will not be able to produce enough insulin leading to weight loss and high BG but without the GAD antibodies. This is effectively Type 3c diabetes but many GPs are unaware of that category, so worth getting that checked out. Pancreatitis can sometimes go hand in hand with gall stones, so if you have ever had problems in that respect then that would lend weight to this being the cause, but it would be wise to rule out anyway.

Which insulin(s) have they given you and how are you managing with them?

How is your body coping with the metformin? Hopefully they started you off on a low dose and are increasing it gradually. Do make sure to take them with food. I found mid meal was best to reduce the risk of gastric upset.

Hi @rebrascora - thanks for your reply - quite a start to your diagnosis. I am not sure whether I am just lucky with my local GP practice and the diabetes team here, but they have been very open to it being type 1 from the start. Interesting point re the pancreatic scan, I will ask about that. Although when I told the GP about my weight loss (a little over a stone over around 8 - 9 months I think) they threw the book at me and did a long list of blood tests but also a head to pelvis CT scan, where most things were 'unremarkable' (good in the medical world ) and I hope that would have picked up any further problems with my pancreas? But I will check with the nurse when I go back in a couple of weeks.

I did have a bout of Covid last summer. No idea if it is related, as I really don't know when my glucose levels started to get so high.

Things have moved on today - after talking my case through with the consultant, they have decided to treat me as type 1 as they are just not convinced about type 2 despite the various test results. Apparently I could be in a honeymoon period - that must be the ultimate misnomer. They will keep me close to the specialist team for a couple of years and not discharge me back to the GP. And the good news is I will qualify for a libre and other tech on prescription.

As a result, they are not now going ahead with the metformin as it will just cloud everything. I was on Gliclazide initially to get my sugars down but it didn't have that much impact. On the insulin - I use Novorapid and Levemir - seems to be what many are taking on here? I am getting on okay but sugars are stubbornly high at times and I will now no doubt get more detail on matching it more effectively with carb consumption. All of that seems like quite a minefield.

 

[JohnnyRam]

Hi @JohnnyRam. It’s really hard when you have an uncertain diagnosis as this leads to anxiety about what future treatments will be and how your going to manage your condition. I’ve been between types for 2.5 years now. Diagnosed at 43, due to covid and no face to face it was assumed I was type 2. I was slim, very fit with no metabolic issues other than the high sugars. I have however had a history of raised BG on and off for 20 years. @rebrascora has covered most of the practical stuff but I would like to ask if you have seen your antibody results? I say this as my doctor phoned me after mine to say they were all negative. It was a month or so later when I was told the GAD was borderline (55 it should be less than 5) the lab called it borderline but consultant say it’s a positive result. This lead to a diagnosis of type 1. Unfortunately for me this hasn’t been a clear cut case at all. Insulin trials have proved very tricky and I’ve found it easier to go low carb and as my c peptide results were normal (not raised as is common with type 2) my consultant is happy for now. I’ve also been tested for all strains of MODY which were negative. Chances are that if within 5 years I maintain a normal hba1c without medication that I will recategorised as a type 2 of unusual phenotype. It’s been hard, I got very skinny and quite unwell/depressed with it all but I’m putting on weight again now I’ve stopped being so obsessed with my numbers. Just checking with RAM in your name… your not a derby county supporter by any slim chance ?

Thanks @TheClockworkDodo for tagging us in, over my 2 years on this site I have seen a fair few different varieties here so you are by no means alone in fact I bet there are more of us than there are derby county fans !

Hi @EmmaL76 and thank you for your reply. Your journey sounds particularly difficult and it is interesting how things really aren't always that clear cut. I can imagine getting very fed up with it all, and this forum is a fantastic resource because generally friends and family just assume I need to cut my carbs and can eat my way out of the condition. If I try to explain a bit more they glaze over - it's all too much detail.

The nurse yesterday remarked that diabetes used to be much simpler. She mentioned MODY on the phone today and `I confess that while I have been reading up about LADA I know nothing about MODY and will need to investigate.

I haven't seen the antibody results and without some of the context you give wouldn't really have thought of that, so I will check at my next appointment. Really helpful point thanks.

And yes, for my sins, I am a DCFC fan. We're a long-suffering bunch (rather like diabetics really).

 

[EmmaL76]

Your welcome. It’s just knowing the questions to ask and not one of us had a clue what those were at diagnosis, that’s why this forum is such a useful resource.
I knew it!! My son has a season ticket and most of my family are supporters. Your not alone

 

[Val1133]

Hi @JohnnyRam

Welcome to the Club! Not having the right diagnosis makes it very difficult to manage the condition and you have my sympathy.

I, too am 62 and was not overweight and considered myself quite active. I started losing weight over the summer and although I was happy with the weight loss, I knew I wasn't trying. I was feeling thirsty and had no energy and needed to wee a lot. (I was up 2 or 3 times a night!).

I initially thought this was due to the hot summer and perhaps I was eating too much bacon and drinking too much water, however, I went to the Dr and they did blood tests. I was diagnosed with Type 2, but possible Type 1 in September 2022 with HBA1C of 115 and BG of 20. I was put on Gliclizide and Metformin and given a BG monitor and sent on my way. I was also referred for a Pancreatic Scan to check for anything more sinister going on.

I did manage to bring my BG levels down by November, however, I was still losing weight, so spoke to the Diabetic Nurse, who arranged for an Antibody Test. This test came back after 6-8 weeks with a reading of over 260, and indicates LADA. I have now been referred to the hospital and am waiting to hear from them. In the meantime, I am still on Gliclizide and Metformin.

My Pancreatic Scan has come back clear, as have the blood tests for Ceoliac Disease and Tumor Markers.

My referral for the Dietician has now just come through and I have an appointment at the end of January, so I am hoping I can get more information on managing by blood levels.

 

[Eternal422]

Hi @JohnnyRam. Same sort of thing with me as quite a few on here. Initially diagnosed as T2 at age 42 after reporting symptoms of continual thirst, peeing all the time, feeling constantly tired and having sores on my shins that took ages to heal, then followed a GTT which showed I was diabetic and started on Metformin which did absolutely nothing to bring down my high BGs (thankfully my GP at the time was in favour of testing BGs even though just on Metformin).

It did take 5 years to be put on insulin and taken off Metformin and that did the trick getting everything under control. I did have a GAD test at that time, but that was inconclusive, probably due to being so long after initial presentation of symptoms and diagnosis. So I was left to it on insulin alone and just had tuition from the DSN at the hospital on carb counting for basal-bolus.

Fast forward 12 years to age 62 and after a referral from my current GP to the diabetes clinic at my local hospital as they didn’t have the skills to handle advice on insulin regimes, I have now had my diagnosis changed to T1 and put on the Libre (a real game changer). I must have been T1 all along, but at the time it seemed that anyone presenting with diabetes symptoms in middle age was categorised as being T2. The deciding factor this time was how I react to carbs, insulin and the amount of insulin needed to maintain in range BGs. I have been more or less using the same amount of basal and bolus all along, so that gives me some conviction it was really T1 from the start. Nevertheless it was a bit of a shock to be told that even though I always wondered as I never really felt I “belonged” in the T2 diagnosis.

It is hard not knowing definitively and even with this recent diagnosis I still ponder and wonder. Did the chickenpox I have just before diabetes diagnosis trigger it, the virus attacking the beta cells? I will never know. But what I do know is that treating my symptoms/condition as T1 works and I can manage my BG levels with a basal bolus insulin regime. My DSN told me that they are seeing people of all ages, including 60s and older, being newly diagnosed as T1, whether that be LADA or the result of a virus attacking the pancreas beta cells.

I hope you get a definitive diagnosis soon and get the right treatment plan for you. It sounds like you have a switched on team helping you, so I’m sure things will work out for you. There are also loads of people on here with heaps of experience who can offer their help and ideas.

 

[rebrascora]

It is hard not knowing definitively and even with this recent diagnosis I still ponder and wonder. Did the chickenpox I have just before diabetes diagnosis trigger it, the virus attacking the beta cells? I will never know. But what I do know is that treating my symptoms/condition as T1 works and I can manage my BG levels with a basal bolus insulin regime. My DSN told me that they are seeing people of all ages, including 60s and older, being newly diagnosed as T1, whether that be LADA or the result of a virus attacking the pancreas beta cells.

Just to clarify, it isn't the virus which attacks the beta cells and kills them off but our own immune system, probably stirred up by the virus. I believe there may be a genetic predisposition to autoimmune conditions but that it often takes a trigger like a virus to set the immune system off looking for mischief. 🙄

 

[Eternal422]

Just to clarify, it isn't the virus which attacks the beta cells and kills them off but our own immune system, probably stirred up by the virus. I believe there may be a genetic predisposition to autoimmune conditions but that it often takes a trigger like a virus to set the immune system off looking for mischief. 🙄

Ah thanks! That makes more sense! I had read somewhere there may be a connection but hadn’t read further to see why a virus can cause this, the immune system attacking the beta cells is understandable. I wonder whether Covid has resulted in more T1 cases as it can rev up the immune system?

 

[rebrascora]

Ah thanks! That makes more sense! I had read somewhere there may be a connection but hadn’t read further to see why a virus can cause this, the immune system attacking the beta cells is understandable. I wonder whether Covid has resulted in more T1 cases as it can rev up the immune system?

Yes, I believe Covid is causing an increase in Type 1 diagnoses, as well as Covid causing problems for diabetic people who suffer a severe bout of Covid, which is why the diabetic clinics are really stretched for appointments and a lot of people are not getting the support they need. Add in staff going sick with Covid and other viruses which are now having a more dramatic effect on us due to lock downs and you can count yourself lucky if you get a phone appointment once a year. I know my consultant is really feeling the strain from the situation, especially as people are making complaints about the lack of support which he knows are realistic, but he simply doesn't have the resources to keep on top of things. Thankfully I get most of my support here on the forum, so aside from a quick check in with him occasionally with a 5 min phone call, I don't need anything from him. Sadly not everyone finds their way here to the forum or wants to self educate.

 

[Eternal422]

Tough times @rebrascora, I’d not heard much about it as you have, but can appreciate how much pressure the clinics are under. Such a shame that T1 diagnoses have increased. So glad to have joined this forum, I get such a lot from reading posts here and learned more in the last 6 months than in the 15 years handling insulin more or less on my own with some excellent starting help but then left to my own devices for many years. I must have been doing more or less ok though given my HbA1c results over the years. I always enjoy reading your posts, you are so knowledgeable and helpful🙂

 

[rebrascora]

@Eternal422. Kind of you to say that but like you, I learned pretty much all I know in the nearly 4 years I have been diagnosed from the kind and knowledgeable people here on the forum, plus my own relatively short experience. I was just lucky to find the forum early after my diagnosis. Like everyone here, I try to pay that forward and help others as I have been helped myself.... which is how the forum works so wonderfully well.... plus of course, I am still learning myself .... as we all are, no matter how many years or decades we have been dealing with it. There is always something new to learn.

 

[Spoon]

I’m wondering if anyone has had a similar experience to me - I was diagnosed last November following several months of unexplained weight loss. I am 62 but have always been fairly active and slim and my A1C was high at 114. I started on insulin given level of sugars and healthcare team expected LADA. Not fully ruled out but antibody tests are negative and C Peptide level is normal. So now they are keeping me on insulin and adding metformin. Wondering if anyone has been through anything similar?

I think with all the talk of types of diabetes we all assume it’s clear cut and you will find from managing your condition that it isn’t! I got diagnosed with Type 2 by my GP in 2014 (age 35) I am, and always have been, fat. To cut a long story short, my HBA1C was skyrocketing on the normal Type 2 regime of pills, not helped by being intolerant of pretty much every pill. I was losing weight but going from v v fat to just v fat never really gets picked up by health professionals as you’re still fat, so was never talked about. But it can be a symptom of uncontrolled Type 2. I tested throughout and in lockdown my bloods were in the 20s. So I got put on insulin, which worked a little but made me gain weight like crazy. I had a c peptide test which was high and I was told I was a very insulin resistant Type 2. After a misguided time on ozempic and insulin, I am now on insulin and metformin with the aim of reducing the insulin and staving off the need to go on a bolus regime (I take A LOT of insulin and it doesn’t quite work - needs a bit of a boost). So you could be a Type
2, just a unique one! I’ve met Type 2’s who aren’t fat people - it can happen (despite what the media says!)

 

[EmmaL76]

100% there can be slim type 2’s. These people can be charmingly referred to as skinny on the outside and fat on the inside. These make up the majority of slim type 2’s. However there are also a few who develop type 2 not by the ordinary means who don’t have fatty organs . Now if these people were to all be tested I’m guessing some maybe most would have low tilter antigad (like me) my personal experience leads me to believe that although we have the type 1’s 2’s MODY and LADA the latter of which is assumed will eventually end in full blown type 1 albeit slower progression, I believe we have what I have decided to call floaters, we don’t fit neatly in a box and maybe never will

 

[JohnnyRam]

Hi @JohnnyRam

Welcome to the Club! Not having the right diagnosis makes it very difficult to manage the condition and you have my sympathy.

I, too am 62 and was not overweight and considered myself quite active. I started losing weight over the summer and although I was happy with the weight loss, I knew I wasn't trying. I was feeling thirsty and had no energy and needed to wee a lot. (I was up 2 or 3 times a night!).

I initially thought this was due to the hot summer and perhaps I was eating too much bacon and drinking too much water, however, I went to the Dr and they did blood tests. I was diagnosed with Type 2, but possible Type 1 in September 2022 with HBA1C of 115 and BG of 20. I was put on Gliclizide and Metformin and given a BG monitor and sent on my way. I was also referred for a Pancreatic Scan to check for anything more sinister going on.

I did manage to bring my BG levels down by November, however, I was still losing weight, so spoke to the Diabetic Nurse, who arranged for an Antibody Test. This test came back after 6-8 weeks with a reading of over 260, and indicates LADA. I have now been referred to the hospital and am waiting to hear from them. In the meantime, I am still on Gliclizide and Metformin.

My Pancreatic Scan has come back clear, as have the blood tests for Ceoliac Disease and Tumor Markers.

My referral for the Dietician has now just come through and I have an appointment at the end of January, so I am hoping I can get more information on managing by blood levels.

I think with all the talk of types of diabetes we all assume it’s clear cut and you will find from managing your condition that it isn’t! I got diagnosed with Type 2 by my GP in 2014 (age 35) I am, and always have been, fat. To cut a long story short, my HBA1C was skyrocketing on the normal Type 2 regime of pills, not helped by being intolerant of pretty much every pill. I was losing weight but going from v v fat to just v fat never really gets picked up by health professionals as you’re still fat, so was never talked about. But it can be a symptom of uncontrolled Type 2. I tested throughout and in lockdown my bloods were in the 20s. So I got put on insulin, which worked a little but made me gain weight like crazy. I had a c peptide test which was high and I was told I was a very insulin resistant Type 2. After a misguided time on ozempic and insulin, I am now on insulin and metformin with the aim of reducing the insulin and staving off the need to go on a bolus regime (I take A LOT of insulin and it doesn’t quite work - needs a bit of a boost). So you could be a Type
2, just a unique one! I’ve met Type 2’s who aren’t fat people - it can happen (despite what the media says!)

I can well imagine, and I am keeping an open mind about it all!

Hi @JohnnyRam. Same sort of thing with me as quite a few on here. Initially diagnosed as T2 at age 42 after reporting symptoms of continual thirst, peeing all the time, feeling constantly tired and having sores on my shins that took ages to heal, then followed a GTT which showed I was diabetic and started on Metformin which did absolutely nothing to bring down my high BGs (thankfully my GP at the time was in favour of testing BGs even though just on Metformin).

It did take 5 years to be put on insulin and taken off Metformin and that did the trick getting everything under control. I did have a GAD test at that time, but that was inconclusive, probably due to being so long after initial presentation of symptoms and diagnosis. So I was left to it on insulin alone and just had tuition from the DSN at the hospital on carb counting for basal-bolus.

Fast forward 12 years to age 62 and after a referral from my current GP to the diabetes clinic at my local hospital as they didn’t have the skills to handle advice on insulin regimes, I have now had my diagnosis changed to T1 and put on the Libre (a real game changer). I must have been T1 all along, but at the time it seemed that anyone presenting with diabetes symptoms in middle age was categorised as being T2. The deciding factor this time was how I react to carbs, insulin and the amount of insulin needed to maintain in range BGs. I have been more or less using the same amount of basal and bolus all along, so that gives me some conviction it was really T1 from the start. Nevertheless it was a bit of a shock to be told that even though I always wondered as I never really felt I “belonged” in the T2 diagnosis.

It is hard not knowing definitively and even with this recent diagnosis I still ponder and wonder. Did the chickenpox I have just before diabetes diagnosis trigger it, the virus attacking the beta cells? I will never know. But what I do know is that treating my symptoms/condition as T1 works and I can manage my BG levels with a basal bolus insulin regime. My DSN told me that they are seeing people of all ages, including 60s and older, being newly diagnosed as T1, whether that be LADA or the result of a virus attacking the pancreas beta cells.

I hope you get a definitive diagnosis soon and get the right treatment plan for you. It sounds like you have a switched on team helping you, so I’m sure things will work out for you. There are also loads of people on here with heaps of experience who can offer their help and ideas.

Hi @Eternal422 and @Val1133 - thanks for your insights. It is heartening to see that there are lots of experiences out there that aren't clear cut, and mirror parts of my own. Like @Eternal422 I am finding that insulin works to reduce my BG much more effectively than the pills I was on initially (provided I get the dosage right and I am still working on that), but as they have cancelled the idea of putting me on metformin for a while, I don't actually know what that would have done. If further antibody tests in the time to come don't show an auto-immune issue, then they may well re-categorise me as a T2 who isn't overweight, but whether the treatment would change that much I really couldn't guess. The team do seem pretty good, and are keeping an open mind themselves but have gone with what seems safest at the moment and will keep things under review. Something that people tend to say on here it seems to me is that the support is good in the early days but is less involved later - I suppose that's not surprising given how new diagnoses are happening all the time.

 

[Eternal422]

Something that people tend to say on here it seems to me is that the support is good in the early days but is less involved later - I suppose that's not surprising given how new diagnoses are happening all the time.

I guess that’s down to sheer numbers and high workloads. But, if you are managing well then there is no need to keep having regular appointments. It remains to be seen whether I get reduced to an annual appointment, fully expecting it and really I don’t want to take up the DSN’s time if I am ok and doing alright.

One fantastic thing for me is that I have been told to call my diabetes clinic anytime I need if I have questions or problems. In between my last couple of appointments I did call, leaving a voicemail and actually had a return call on the next day! I was asking about how best to bring insulin levels down later in the day as they tend to rise for me and the DSN who called me back was able to review my Libre charts and advise on things like increasing prebolus time, etc. It seems that will always be available to me regardless of frequency of actual appointments. I never had this before as I was discharged back to the GP and those sort of questions would have meant waiting for another referral to the hospital team. I know that my GP don’t look after T1s, leaving their care to the hospital team and only handling the blood testing and annual checks, so maybe that is the difference.

 

[LUSTFORLIFE]

I’m wondering if anyone has had a similar experience to me - I was diagnosed last November following several months of unexplained weight loss. I am 62 but have always been fairly active and slim and my A1C was high at 114. I started on insulin given level of sugars and healthcare team expected LADA. Not fully ruled out but antibody tests are negative and C Peptide level is normal. So now they are keeping me on insulin and adding metformin. Wondering if anyone has been through anything similar?

hi, after five years of type 2, with unintentional weight loss (I am slim and active also) on Friday the hospital confirmed that its type 1, i'm off most of the tablets (240 a month!) and was put on insulin 3 months ago, its been very frustrating, the weight loss when your slim already is depressing, the insulin has been a revelation, weight is coming back gradually, so I feel a lot healthier, also had a Libra 2, so readings are easy off my iPhone, I hope you get better, and you gain some weight back, best of luck to you.