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Just venting but crikey has it just hit me

Thanks all, yes that all makes sense and fill the gaps of what I've been told.

DSN said if the c-peptide test comes back within certain ranges one way or the other then they can be pretty confident which it is without waiting for the antibody results.

They think in a couple more days for the c-peptide and then perhaps max couple of weeks for the antibody one.

One positive is that I'm already feeling physically better than I did. It always amazes me how good the body is at masking the trouble it is in but then when you're on the mend just how much better you can feel
 
That is exactly why this place is fantastic (certainly as I have found) - your (frankly, amazing) healthcare team won't be able to tell you everything either face-to-face or on the phone as they don't have the time, but by sharing our experiences here on this forum we can try and fill in the gaps - glad you're feeling better 🙂
 
Lucyr said:
They wouldn’t always test for all of those antibodies but may test for some of them, then use it in conjunction with your Cpeptide test to make the decision. I’d expect it to be at least a month realistically before all the results are back and decision made, so hopefully early next year.
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Yes I think checking two or more antibodies are known to reduce the risk of false negatives
 
mashedupmatt said:
your (frankly, amazing) healthcare team
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They haven't messed about at all. Left hospital with as much knowledge as I could absorb, 2x Novo Pens, my insulin, BG monitor and enough supplies of test strips, needles etc to last me a good few days until my repeat prx's hit my GPs systems. When the NHS works like this it's the very best in the world. And it's flaws are not the fault of the staff either.

Due another follow up call Thursday and hopefully they'll ring me before then if there's news on a formal diagnosis.
 
trophywench said:
@SimonP - Er - we don't actually recommend chocolate to cure a hypo since choc has far too much fat for the cabs to be quickly absorbed.
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True, I'll add a note! Telling people to do as I say not do as I do 🙂
 
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@dannybgoode sounds like your team is one of the good ones.
You mentioned you have 2 x NovoPens. I suggest asking for a third. Hopefully, you won’t need it for some time. However, they do fail so you need a back up pen. It is a real pain having insulin and nothing but a broken pen to administer it.
 
helli said:
@dannybgoode sounds like your team is one of the good ones.
You mentioned you have 2 x NovoPens. I suggest asking for a third. Hopefully, you won’t need it for some time. However, they do fail so you need a back up pen. It is a real pain having insulin and nothing but a broken pen to administer it.
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Yes, the nurse said to get one on repeat with the GP along with a backup BG monitor as part of my first order.

Think she'd about maxed out her prx limit . She was going to give me Libre there and then too but decided against it.

If T1 is confirmed she'll just sort that too. Even if it's T2 she'll push for one as from what I can gather I'll be staying on insulin regardless because of potential side effects of Metformin not playing nicely with my ileostomy.
 
dannybgoode said:
Think she'd about maxed out her prx limit . She was going to give me Libre there and then too but decided against it.
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You could order the free one from the website if they still offer that
 
Lucyr said:
You could order the free one from the website if they still offer that
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This is true however I don't want to get one, decide it's life changing and then for some reason not get the clearance to get one on prx. Can't afford to self fund one at the moment
 
dannybgoode said:
This is true however I don't want to get one, decide it's life changing and then for some reason not get the clearance to get one on prx. Can't afford to self fund one at the moment
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Could get the free one and leave it in the cupboard then, so that you can get going straight away once approved without waiting for prescription to come through, or if turn out to be t2 then to show nurse the benefits it’s giving you
 
Lucyr said:
Could get the free one and leave it in the cupboard then, so that you can get going straight away once approved without waiting for prescription to come through, or if turn out to be t2 then to show nurse the benefits it’s giving you
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From what I understand, if I am T1 the DSN will prescribe one on the spot for me. They have them in stock so to speak at the diabetes centre at the Northern so she can just give it to me. It is certainly worth me looking into though.
 
dannybgoode said:
From what I understand, if I am T1 the DSN will prescribe one on the spot for me. They have them in stock so to speak at the diabetes centre at the Northern so she can just give it to me. It is certainly worth me looking into though.
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Ah ok. You said your next appointment was a phone call so I was thinking she’d have to write a letter, you’d have to wait for that to arrive at GP, then to be actioned, then wait for prescription to come through etc. then it’s nearly Christmas so add 2 weeks holiday delays
 
Lucyr said:
Ah ok. You said your next appointment was a phone call so I was thinking she’d have to write a letter, you’d have to wait for that to arrive at GP, then to be actioned, then wait for prescription to come through etc. then it’s nearly Christmas so add 2 weeks holiday delays
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From what I understand (and this is a pretty fluid situation), they're just calling me regularly anyway to check in on me at the moment. If the T1 is confirmed then they'll get me back in for an appt.

To be honest I can wait until after Christmas. This is so so new to me however I don't overly mind the finger pricking, particularly short term.

Most important thing for me is to know type for definite though as I feel a bit in limbo as things stand. I want to know what I'm dealing with so I can start working on whatever I need to do.
 
dannybgoode said:
Most important thing for me is to know type for definite though as I feel a bit in limbo as things stand. I want to know what I'm dealing with so I can start working on whatever I need to do.
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I don’t think you should focus on knowing type as the most important thing. That’s going to take a while, unlikely to be this year that you find out. I’d focus on getting to grips with the insulin as priority, as even if you’re t2 you can choose to manage it with insulin if it’s working well for you.
 
dannybgoode said:
I know this is entirely normal and feel free to ignore however I have a tendency to bottle stuff to and writing stuff semi anonymously on forums of is a good release for me.

I'm sure Luke most people my diagnosis has come completely out of the blue. Was even running a marathon end of September so otherwise fit and well and then on Friday bam.

Think it's delayed shock, there was just so much to take in in Friday. Hats off to the DSN who saw me. She really did go through everything someone with a new diagnosis needs to know. Not only the whole how to inject insulin and the blood monitoring but telling work, covered off the DVLA, a bit about travelling, basic starter diet advice etc.

However after 2 hours my brain was ready to explode!

It's now hit me just what the diagnosis means. I know I don't have to stop doing so the stuff I enjoy but the whole management of the condition is pretty daunting right now.

Got to go through everything with work tomorrow too. My boss is brilliant and they already know about the diagnosis but I know they'll fret about things like hypos. Only out of concern for me but it makes it a little more challenging for me.

As I say, just venting. I'll be reyt in a few days and will feel better once I've had my follow up appts and I know for sure whether it's T1 or T2 etc.

For now I'm treating myself to a nice bath and then a shave with one of my favourite straight razors (straight razors and making them impossibly sharp is one of my hobbies). Hopefully that'll bring me round a bit. Can't beat shaving therapy 🙂
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@dannybgoode just to repeat what others have said you not alone I felt exactly the same when I was diagnosed type 2 in November out of nowhere with 129 HbA1C. My husband thought I was joking when I told him result as I did not have symptoms and felt well. Since being on the medications I do feel a difference in that I feel better than I did before.

Not to say though still pretty annoying as got call from GP in the evening about result and he told me to go A&E to get checked over as I was so high - luckily my ketones result was 0.2! This all started for me by having a blood test when random finger prick came up as 17.0mmol!

Did not help when GP said he not seen many people with a triple figure result so that put the fear in me even more

4 weeks and it is getting easier to navigate through however still days when just lost and deflated by it all.

To top it off I had a holiday booked 2 weeks after my diagnosis and GP told me to cancel which was suppose to be first time away following a couple of recent family losses so also had to claim through travel insurance. Was so upset and annoyed at time having to cancel however looking back was right decision.

Hopefully in coming weeks/months you know where you are and if it type 2 like me (well that how they treating me for now), this forum has really helped with advice on diet and exercise etc ❤️
 
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Zaraah said:
luckily my ketones result was 0.2!
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Thank you for your reply. Yes, that does largely reflect how I feel. And yes, my Hba1c was 121, BG >28 (highest machine reads) and ketone just 0.2. I've been assured it wouldn't have stayed at 0.2 for much longer :D .

Luckily if it is T2 I don't have much weight to lose (BMI is just hovering around 25) and I train for and run marathons so the exercise isn't an issue. My diet either way could do with work though!
 
dannybgoode said:
From what I understand, if I am T1 the DSN will prescribe one on the spot for me. They have them in stock so to speak at the diabetes centre at the Northern so she can just give it to me. It is certainly worth me looking into though.
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You are currently eligible for the free Libre trial even if you don't use it straight away. Once you are diagnosed are prescribed them you are no longer eligible for the free trial, so getting one now could be advantageous. What can happen when you first start using them is that sometimes you don't get the application quite right or you accidentally knock one off by catching it on a door frame or snagging it on clothing and it takes a few days to get a replacement, so getting the free trial now means that you have one on standby should you have an accident with one of your prescription ones. There is no commitment to buy with the free trial.
 
dannybgoode said:
Sounds like a plan. I'll get signed up - no harm in doing so and yes, having a spare makes sense.
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When you start using them, remember if you have any issues with them or knock them off, abbot will replace it. If you Google libre sensor support form then an online form comes up high in the search list to order the replacement which they post to you.
 
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