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Just received this neurophysiology letter about diabetes - I’m scared - what does it mean

AJLang

AJLang

Well-Known Member
Relationship to Diabetes
Type 1
Just to say that my diabetes control is excellent due with regard to both HBA1C and time in range. I’ve tried the neuropathy vitamin cocktail mix but can’t afford it and find it hard to digest due to my gastroparesis
The neurophysiology tests ten years ago were classed as normal.

Today's studies (upper limbs) are in keeping with a significant diabetes related sensory > motor peripheral neuropathy with mixed axonal/demyelinating features…… her lower limb studies in
December 2024 showed evidence of a diabetes related polyneuropathy.
 
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So sorry to read this @AJLang

You must be devastated. Big hugs to you. :care::care::care:
 
everydayupsanddowns said:
So sorry to read this @AJLang

You must be devastated. Big hugs to you. :care::care::care:
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Thank you Mike. Yep devastated sums it up. But it's also good to eventually have answers to the weird symptoms that I've been having in recent years - but totally upsetting knowing that the problems that have caused me to stop things that I love such as cooking on my own, knitting etc will never improve. At least I now have an excuse for my crafts being "rustic"! But I've been practical this morning and put myself on the waiting list for an appointment with my "nice" GP to get practical help when things happen such as the arm paralysis - three times in the last fortnight - so flipping frustrating not being able to move an arm even if it is only for 10-15 minutes - but I'm smiling 🙂
 
So sorry to read your news Amanda, but pleased that you are managing to look ahead and how to deal with the symptoms that you experience.

A friend who now struggles with knitting that she had loved has switched to some very creative crochet work. With only one active stitch and not needing to carry the weight of the work she finds that she can do crochet for stints of time. Have you ever crocheted?
 
Sad to hear that your recent tests confirm the diabetes related neuropathy in your arms @AJLang . Life is sometimes so damned unfair.
Sending hugs and glad that despite everything you can still smile.:care:
 
SB2015 said:
So sorry to read your news Amanda, but pleased that you are managing to look ahead and how to deal with the symptoms that you experience.

A friend who now struggles with knitting that she had loved has switched to some very creative crochet work. With only one active stitch and not needing to carry the weight of the work she finds that she can do crochet for stints of time. Have you ever crocheted?
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Thank you SB2015. Crochet is a great suggestion and I’ve always wanted to do it but I’ve tried several times, even with one to one classes, and I have absolutely not been able to get the hang of it. Which is a shame because I would love to crochet granny squares. But never mind. I’ve got a room full of craft stuff that I can do, albeit with some difficulty, and Mark helps me. I’m also trying to do colouring at the moment to help my hands with their movement.
 
silver minion said:
Sad to hear that your recent tests confirm the diabetes related neuropathy in your arms @AJLang . Life is sometimes so damned unfair.
Sending hugs and glad that despite everything you can still smile.:care:
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Thank you very much.
 
Hopefully your GP can make a referral to Occupational Therapy or such likes. My Mum's challenges were different to yours, but they made such sensible, practical suggestions and provided aids, many of which were common or garden household/kitchen implements that were just used differently.

My Mum felt so much safer, living on her own, after their input.
 
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AndBreathe said:
Hopefully your GP can make a referral to Occupational Therapy or such likes. My Mum's challenges were different to yours, but they made such sensible, practical suggestions and provided aids, many of which were common or garden household/kitchen implements that were just used differently.

My felt so much safer, living on her own, after their input.
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Thank you very much about the suggestion. I will speak to the GP about that. x
 
The good thing about crochet is you only have one stitch to drop. Hope you also get some good news to go with the less good.
 
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