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just diagnosed type2

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bloody hell nico feel for you buddy my reading was 51. n I've got to see the nurse Thursday. doctor told me over the phone so im kind of like how trivial is diabetes if a phone call will suffice. ive got more information off here than the doctors so far.
 
Nico, you have the history and symptoms of a type 1, not type 2. If you ever get a BG of 30, you MUST go to A&E. I'm not joking. You need insulin to bring down a level like that. I am frankly staggered that the nurse didn't check for ketones. Drink plenty of water, and keep a close eye on your scores. And, if your BG stays as high as that, or, God forbid, worse you could end up in very serious trouble. Remember, it's A&E, NOT your nurse. Do not ring 111. Do not pass Go. Go straight to hospital.
 
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Just an update. Went to see the nurse today HbA1c 133 BG 30. My head is spinning. Can't get in to see my gp until the 3rd March so bought myself a machine today so I can test and going to go low carbon to try and get numbers down a bit. Got to say I didn't get much info off the nurse but she did say I would probably see a dietician. I have totally cut out sugar from tea/coffee and not had a fizzy drink apart from coke zero (yak...I was a proper red coke lover!!) Oh and my BP is high....shoot me now!!!
I'm with Mike, @Nico - you need to seek emergency care with those numbers, please do so - you can't wait until March. The nurse does not appear to understand the potential seriousness of your situation :(
 
@Nico - I hope you've been to A&E today, or will see GP today as an emergency. Please let us know how you get on.
 
Hope all is OK @Nico, let us know how you are getting on 🙂

I'm concerned by the possible lack of knowledge shown by some of the healthcare professionals you have dealt with. I'd suggest calling the Diabetes UK Helpline service to discuss how things have been handled, they may have suggestions for how things might be improved in the future at your surgery:

https://www.diabetes.org.uk/helpline
 
Hi everyone. So I got in to see the doc today and feel much better. BG down to 11.4!!! I know that's still high but its going in the right direction. Had a good chat with him and feel much more informed about things. Booked in to see the diabetic specialist in a couple of weeks. Onwards and upwards! Thanks for the messages of support
 
Hi everyone. So I got in to see the doc today and feel much better. BG down to 11.4!!! I know that's still high but its going in the right direction. Had a good chat with him and feel much more informed about things. Booked in to see the diabetic specialist in a couple of weeks. Onwards and upwards! Thanks for the messages of support
Glad to hear you are feeling much better Nico 🙂 Do keep a very close eye on things though, and if you feel unwell again, do seek help straight away, especially if your levels go into the high teens or 20s again. Personally, I think you ought to be seeing the specialist much sooner, but you know how you feel, so know more than me! 🙂 Was the possibility of Type 1 brought up at all?
 
Hi Mike
I have pretty much gone sugar free and eating more healthily. However, this morning I tested 19.2..all over the place. It's taking a lot to get my head round all this tbh
 
Hi Mike
I have pretty much gone sugar free and eating more healthily. However, this morning I tested 19.2..all over the place. It's taking a lot to get my head round all this tbh
How do you feel generally @Nico? Did the doctor/nurse mention any ketone testing?
 
Nope. Although they did test me on a Saturday and said all ok
They should really have given you something so you can test at home :(

What have you been eating? It's not just sugar that can raise your blood glucose levels, but all types of carbohydrates - bread, pasta, rice, potatoes etc. I'm just trying to imagine how you are getting such high levels.
 
Not been eating much if I'm honest...bit scared to!!! I've bought myself a kit so am testing a lot. I feel like I am having to learn and awful lot myself. I haven't eaten bread,pasta,rice or potatoes since the weekend and not a sugary think has passed my lips. I feel really tired to
 
Not been eating much if I'm honest...bit scared to!!! I've bought myself a kit so am testing a lot. I feel like I am having to learn and awful lot myself. I haven't eaten bread,pasta,rice or potatoes since the weekend and not a sugary think has passed my lips. I feel really tired to
High and fluctuating levels will make you feel tired unfortunately :( I'm sorry to keep banging on about it, but what did the nurse or doctor recommend you should be doing to get your levels down? Metformin will not do it and you shouldn't be left feeling scared to eat things.

Would you do me a favour and speak (or email) someone at the Diabetes UK Helpline? They are trained professionals and may be able to help advise you of how to proceed if things don't improve. Information is here: https://www.diabetes.org.uk/How_we_help/Helpline/ Apologies if I'm sounding like a bit of a nag! 😱

The sooner you are getting the proper and appropriate treatment, the sooner you can start feeling much better, and I don't like seeing people suffer unnecessarily! 🙂
 
Feeling tired is an issue for me as well, I get in from work and I want to go to sleep, I am hoping this will improve. Hopefully the tiredness will improve for you.

Well done on the dietary changes, I find not eating pasta harder than not eating sweet things.
 
Being scared to eat is a fairly well known symptom in Type 1s who have been misdiagnosed. If you are getting 19 after eating little or nothing, the need to see a specialist is urgent. You are almost certainly Type 1, and you need to be on insulin. Do as Northerner says, they will help you out of this mess.
 
Is there a test they do to determine whether type 1 or 2??
Yes Nico, there are tests they can do to distinguish between the two. Type 2 generally means that your body is producing insulin, but your body's cells can't use it very well, so your levels go high. Type 1, on the other hand means that your body isn't producing enough insulin so again, it can't use the energy from any food you eat and your levels go high. The big problem is that with Type 1 you don't have enough insulin to do lots of other things your body needs to do, such as clearing away ketones, which can also go high - if they get too high then you can fall very ill with something called DKA (Diabetic Ketoacidosis) which basically raises the acidity levels in your blood. If that happens (and it can happen quite suddenly, over a matter of hours) then it is a medical emergency :(

The tests determine how much insulin your body is producing, and also if it might be an autoimmune attack i.e. your immune system is attacking the cells that make the insulin - Type 1 is autoimmune, Type 2 is not.

Some healthcare professionals think only children can get Type 1, but it can occur at any age - I was 49 :( This is why we are so concerned, because we have read of so many members who have been misdiagnosed as Type 2 and then really had to struggle for far too long.
 
Thanks everyone. Just got home from work and tested 7.2!! Crazy!
 
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