just a moan off, ignore me

[dave0992]

So.....

Diagnosed with type 2 about 3 weeks ago

Spoke to my surgery today but they have no record of me meeting the hospital diabetic nurse and her prescribing me Gliclazide so are unable to re prescribe more (I run out in 12 days)



Gp surgery looked through my notes etc and insisted they have nothing, I emailed the hospital diabetes nurse and she insisted its on the system.



Fortunately I work at the hospital and so does my better half so we was able enlist the help of a doctor to look on the system, took about 20 seconds to find it and print it out. I personally wasn't there as I'm isolating for 10 days thanks to a covid19 app alert 😡. I wonder what would have happened had I not worked at the hospital and had help? doesnt fill me with confidence!



Anyway, to cut a long story short, my HbA1c was131



Theres also mention of hyperaldosteronism in the notes which i remember the diabetic nurse saying i should have had investigated when i was diagnosed with high blood pressure as its all linked.



The good news is my app that links to my blood glucose monitor says my weekly average is now 9.3, much better than the 29 I was admitted to A&E with!

 

[trophywench]

Don't blame you for your annoyance, I frequently have to count to 99 and calm down before I respond over such things at my GP surgery too. Cos they're past masters at making **** ups. This very morning I picked up a prescription I'd had to order by phone in the week, cos they're having a new computer system - for everything - but not going live until Tuesday next week. First thing was my annual diabetes check, done by the same nurse who's been doing then for the last 10-ish years.

She discovered, when she started to do my checks (her first with this new system) you can ONLY answer with a choice of one of the standard answers. No opportunity to mention I've had a pump for the last 10 years. Can't record the patient's actual BP, just whether she considered it OK or not. And any number of other such annoyances! eg they can't use monofilaments now cos they aren't single use - so are using ruddy disposable single use lancets for heavens sake - ow ow ow ow etc cos there absolutely is no loss of feeling in my tootsies.

Then I went to pick up that prescription, Oooh it's in a carrier, well I did order a new sharps bin and i can see that through the plastic, so that will be why the carrier. Get it home. 10 pots of meter test strips. Whaaaat? My regular repeat scrip for them is 200, ie 4 pots at a time. B good job I was down to 4 before I ordered any more, which I thought I'd do cos I'm having a different pump on 8th Jan - but still Roche so same strips for the meter/handset, Phew. However, it requires me to fill its reservoirs from a 10ml vial instead of the 1.6ml pumpcarts I've been using in the Insight for the last 5 years and I don't actually know if the hospital has written to the GP surgery to ask for the scrip to be revised and have avoided asking them cos of no computer - but I will have to ask before they close for Xmas, else I won't be able to use my replacement pump ..... don't think the pumpcarts can be substantial enough to use them to fill reservoirs, although the 3ml pen cartridges were, cos I had to the first time10 years ago when I had the first Combo in the first place.

In the autumn when I was issued with my first Libre by the hospital they wrote to the GP, who DID indeed add it to my repeat prescriptions - but didn't have the nous to enquire whether I needed a prescription - hence there was a gap between the first one and the following one. And guess what? I ruddy well forgot to order 2 more earlier this week - and the pharmacist actually called to me from the rear of the pharmacy once he noticed me (a girl was serving me) and asked me why I hadn't ordered them, cos he's good 🙂 which is brill considering what's the other side of his wall - so he's ordered them for me, but I won't get them till Tuesday so I'll have 2 naked arms for a bit from tomorrow morning! And be bodging holes in my fingers of course. But not 500 holes!

 

[dave0992]

Don't blame you for your annoyance, I frequently have to count to 99 and calm down before I respond over such things at my GP surgery too. Cos they're past masters at making **** ups. This very morning I picked up a prescription I'd had to order by phone in the week, cos they're having a new computer system - for everything - but not going live until Tuesday next week. First thing was my annual diabetes check, done by the same nurse who's been doing then for the last 10-ish years.

She discovered, when she started to do my checks (her first with this new system) you can ONLY answer with a choice of one of the standard answers. No opportunity to mention I've had a pump for the last 10 years. Can't record the patient's actual BP, just whether she considered it OK or not. And any number of other such annoyances! eg they can't use monofilaments now cos they aren't single use - so are using ruddy disposable single use lancets for heavens sake - ow ow ow ow etc cos there absolutely is no loss of feeling in my tootsies.

Then I went to pick up that prescription, Oooh it's in a carrier, well I did order a new sharps bin and i can see that through the plastic, so that will be why the carrier. Get it home. 10 pots of meter test strips. Whaaaat? My regular repeat scrip for them is 200, ie 4 pots at a time. B good job I was down to 4 before I ordered any more, which I thought I'd do cos I'm having a different pump on 8th Jan - but still Roche so same strips for the meter/handset, Phew. However, it requires me to fill its reservoirs from a 10ml vial instead of the 1.6ml pumpcarts I've been using in the Insight for the last 5 years and I don't actually know if the hospital has written to the GP surgery to ask for the scrip to be revised and have avoided asking them cos of no computer - but I will have to ask before they close for Xmas, else I won't be able to use my replacement pump ..... don't think the pumpcarts can be substantial enough to use them to fill reservoirs, although the 3ml pen cartridges were, cos I had to the first time10 years ago when I had the first Combo in the first place.

In the autumn when I was issued with my first Libre by the hospital they wrote to the GP, who DID indeed add it to my repeat prescriptions - but didn't have the nous to enquire whether I needed a prescription - hence there was a gap between the first one and the following one. And guess what? I ruddy well forgot to order 2 more earlier this week - and the pharmacist actually called to me from the rear of the pharmacy once he noticed me (a girl was serving me) and asked me why I hadn't ordered them, cos he's good 🙂 which is brill considering what's the other side of his wall - so he's ordered them for me, but I won't get them till Tuesday so I'll have 2 naked arms for a bit from tomorrow morning! And be bodging holes in my fingers of course. But not 500 holes!

Its all so frustrating!

I cant moan too much as I'm part of that system working in the NHS but my god, its really opened my eyes!

I work in theatres so I'm surgery based and we have our own set of problems but due to my recent reliance on the hospital, its shocking. the nurses etc I cant fault, they do their job well but the bloated system lets them down.

I wonder what would have happened had I not been in a position to print my own records out and have my GF (a nurse) drop them off at the surgery?

 

[eggyg]

Sorry you’ve had to go through this, it’s atrocious. The problem appears to be lack of communication between hospitals and GPs. In this day and age of computerised systems it’s shocking. My youngest daughter is expecting her first baby and was diagnosed with PAPP -A, low levels of a hormone that is made by the placenta. This can lead to pre eclampsia, low birth weight and an increased chance of miscarriage in the second half of the pregnancy. She has to take aspirin everyday for her BP and is having extra scans to check the baby’s growth. When I asked her if she was having extra midwife appointments she said just telephone ones, I queried the fact that they couldn’t take her BP over the phone. She told me they must think that it’s ok, I wasn’t so certain. Last week they rang her re her 24 week appointment, asked if she was ok, was she feeling the baby move etc etc, yes was the answer. And you’ve had all your scans now? asked the midwife, daughter replied she was booked in for another three. Midwife. Why? Daughter. Because I have PAPP-A. Midwife. Have you? I have nothing on your notes about it! Consequently she was at the clinic yesterday getting her BP taken, all fine. This is potentially a dangerous condition. I was so angry that this could have been missed.

 

[mikeydt1]

think i have been lucky that results have all ways come through although years ago on another forum there was a lady who was still chasing scan results 3 months after. got to be really awful when people go through stuff like this.

 

[Kaylz]

I'll join in, my prescription is due to be ready today, I called the chemist half hour ago as wanted to know if it would be ready for 2pm as that's the latest my partner can pick it up, reply was it might be, they are still waiting on insulin but they think its coming in the delivery due this morning 🙄 thankfully I'm not actually needing any insulin but as I'm on a serial prescription I get a 2 month supply of everything xx

 

[Maca44]

Looks like most of us are experiencing the same thing, have a look at my post https://forum.diabetes.org.uk/board...r-what-help-you-got-at-first-diagnosis.90303/

 

[everydayupsanddowns]

Ugh! the vagaries of the NHS IT system and how unconnected it can seem at times can be a real trial. I guess the current confusion really isn’t helping either.

Glad you were able to get a print out and get it sorted, and glad that your BG results seem to be coming down nicely.