• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

JCQ Exam arrangements

MaggieC

New Member
Relationship to Diabetes
Parent of person with diabetes
Hi there,

Does anyone have any JCQ guidelines around CGM and mobile phones.

My senco is " interpreting" the special considerations differently to me.

JCQ guidelines are woolly regarding mobile phones and diabetes monitors.

Hope you can help.
 
Welcome @MaggieC 🙂 Is it a Libre that’s being used? What exactly is the SENDCO saying?
 
My senco is " interpreting" the special considerations differently to me.

JCQ guidelines are woolly regarding mobile phones and diabetes monitors.
What have they said? The guidance doesn’t seem at all wooly to me, the senco just needs to fill in the application form to request the phone access, evidence your diabetes, and confirm that you will be supervised 1:1 when you use your phone.
 
What have they said? The guidance doesn’t seem at all wooly to me, the senco just needs to fill in the application form to request the phone access, evidence your diabetes, and confirm that you will be supervised 1:1 when you use your phone.
He wants him to have it in a box across the other side of room and put his hand up to walk over to check it and not stop clock
 
He wants him to have it in a box across the other side of room and put his hand up to walk over to check it and not stop clock

That’s unreasonable - and could cause problems. Also, they have to stop the clock for testing and for treating a hypo @MaggieC
 
Having the phone sit with the invigilator only sounds reasonable if the invigilator is sat within range of him so that cgm maintains signal. Otherwise having it in a pocket or on the floor face down so that he can’t see the screen would sound more reasonable? It clearly needs to be within range of him, so it keeps signal, and set to vibrate so that he feels the alarms but it doesn’t disturb others, as well as him only be allowed to look at it when an invigilator is with him looking at the screen to ensure no cheating.
 
The problem he is saying that if an exam invigilator came him . He has his mobile phone on his desk. I've said he can turn his app off. The latest conversations are now that it has to go in a clear box on the desk and he has to put his hand up and wait for an exam invigilator for him to look. Or he can buy some monitor that isn't a phone instead.
He keeps pulling my child aside to ask him what he want to try and undermine me.

The attachment doesn't specifically mentions mobile phones and CGM so I've called diabetes UK for clarity. It's a rigid grammar school.
 
The problem he is saying that if an exam invigilator came him . He has his mobile phone on his desk.
Surely it’s not reasonable to want your son to have his mobile phone out on his desk during an exam. Someone could be texting him exam help that he’d see in his notifications. He does need within signal range and somewhere he’ll feel vibrations for alerts but they need to make sure he isn’t cheating too! Thats why they have to watch him 1:1 whenever he uses the phone.
 
sounds as if they’re being fair? TBH I would probably return to my testing machine for exams. If it’s GCSEs they are usually up to 1.5 hours and alevels 3. I would take a snack in and just eat half way through the alevel whilst working. Phones have to be heavily guarded and I wouldn’t want the faff!
 
I'm rather horrified that SENCO want his phone to be way away from his position - he probably won't need to feel hypo ie won't actually have hypo symptoms, just want a quick glance at his CGM to make sure he's going on OK and not likely to go hypo in the next however long - ie reassurance - because he's now used to having that reassurance - so to whip that away from him during important exams seems harsh to say the least.
 
I'm rather horrified that SENCO want his phone to be way away from his position - he probably won't need to feel hypo ie won't actually have hypo symptoms, just want a quick glance at his CGM to make sure he's going on OK and not likely to go hypo in the next however long - ie reassurance - because he's now used to having that reassurance - so to whip that away from him during important exams seems harsh to say the least.
Hi there,

Does anyone have any JCQ guidelines around CGM and mobile phones.

My senco is " interpreting" the special considerations differently to me.

JCQ guidelines are woolly regarding mobile phones and diabetes monitors.

Hope you can help.
I can tell you as a T1 senior high school teacher and senior examiner with an exam board that it is normal that a T1 candidate who gets readings from a sensor on their phone, in exams, should have their own invigilator either in the exam hall or in a smaller room, who sits with the candidate’s phone very near by. To do otherwise could potentially risk the exam performance of the candidate. So special considerations MUST be made.
 
I can tell you as a T1 senior high school teacher and senior examiner with an exam board that it is normal that a T1 candidate who gets readings from a sensor on their phone, in exams, should have their own invigilator either in the exam hall or in a smaller room, who sits with the candidate’s phone very near by. To do otherwise could potentially risk the exam performance of the candidate. So special considerations MUST be made.
Hi @JanieMac - we are having an issue with our son's school refusing separate invigilation and insisting he must take the exam in the main hall. But this causes him severe anxiety about alarms going off or having to draw attention to himself. As a result, in his recent mocks he has turned all alarms off and ended up extremely high throughout as he doesn't want to treat himself publicly or draw attention to himself. Any advice on how we might address this with school? Their position is that all other T1s manage in the main hall and that they see no justification for separate invigilation. Any thoughts gratefully received, I'm worried sick about the whole thing!
 
Hi @JanieMac - we are having an issue with our son's school refusing separate invigilation and insisting he must take the exam in the main hall. But this causes him severe anxiety about alarms going off or having to draw attention to himself. As a result, in his recent mocks he has turned all alarms off and ended up extremely high throughout as he doesn't want to treat himself publicly or draw attention to himself. Any advice on how we might address this with school? Their position is that all other T1s manage in the main hall and that they see no justification for separate invigilation. Any thoughts gratefully received, I'm worried sick about the whole thing!
Someone has posted a link on here regarding this.
It’s www.diabetes.org.uk/schools. There is a section in there: T1 diabetes and school exams- What the Law Says. Remember firstly that T2 is classed as a disability. Therefore in this document, look for the access arrangements CHECKLIST.
For your specific problem, about the school refusing different and specific considerations for your son, note the two bullet points -
“don’t assume the school know what adjustments YOUR child needs.” And for the school to note
“Don’t assume that all students with T1 diabetes will need the same access arrangements.”
So in short, if other T1s decide that they are happy with what is already put in place, then that’s up to them but if your T1 son needs different arrangements, then it is absolutely the school’s responsibility to provide it. Even if this means employing extra invigilators during exam time. This is normal at this time of year.
I’ve provided a screen shot of the relevant bits but it’s worth reading the whole thing for other bits and bobs that may concern your situation. Arrange a meeting, with the Head and the Exam Secretary. This can affect your son’s future. It is absolutely justified and the should not take it lightly. IMG_3348.jpeg
 
Someone has posted a link on here regarding this.
It’s www.diabetes.org.uk/schools. There is a section in there: T1 diabetes and school exams- What the Law Says. Remember firstly that T2 is classed as a disability. Therefore in this document, look for the access arrangements CHECKLIST.
For your specific problem, about the school refusing different and specific considerations for your son, note the two bullet points -
“don’t assume the school know what adjustments YOUR child needs.” And for the school to note
“Don’t assume that all students with T1 diabetes will need the same access arrangements.”
So in short, if other T1s decide that they are happy with what is already put in place, then that’s up to them but if your T1 son needs different arrangements, then it is absolutely the school’s responsibility to provide it. Even if this means employing extra invigilators during exam time. This is normal at this time of year.
I’ve provided a screen shot of the relevant bits but it’s worth reading the whole thing for other bits and bobs that may concern your situation. Arrange a meeting, with the Head and the Exam Secretary. This can affect your son’s future. It is absolutely justified and the should not take it lightly. View attachment 35873
Forgive my T2 typo early in that post.
 
Thank you so much for replying @JanieMac I'm very grateful.
It's been really hard. We did make them aware of his needs and requested adjustments early, but they didn't do anything just kept saying that other T1 diabetics manage in the main hall so 'not to worry'. For the Year 10 mocks, they refused to act on our reasonable adjustment request for separate room and invigilation on the basis that they had to 'gather evidence' for the JCQ by proving he needs special access arrangements. They also encouraged him to put his phone on vibrate which meant he was missing critical alerts and made him feel even more self conscious. I filed a complaint but the head only called me to ask if I would withdraw it, he didn't offer any solutions. So I'm waiting for the outcome of the complaint. But I have an awful feeling they're going to stick to their guns on this one based on the experience I've had so far. I know the Equality Act is clear about not disadvantaging disabled pupils, but they seem to be using the 'JCQ says it's a centre decision' as the justification for not providing our request. They also said a separate room could give him an unfair advantage, and that 'they'd love to provide different access arrangements for all parents who request them but they can't'. We have supplied two letters from his medical team at the hospital that recommend separate invigilation for him, but they just responded to those saying it was a centre decision not the hospital's decision. It's really affected how he's performed in his mocks. He has a habit of 'hiding' anything to do with diabetes when in public, so if he's in a room with others, he doesn't manage it. :(
 
Thank you so much for replying @JanieMac I'm very grateful.
It's been really hard. We did make them aware of his needs and requested adjustments early, but they didn't do anything just kept saying that other T1 diabetics manage in the main hall so 'not to worry'. For the Year 10 mocks, they refused to act on our reasonable adjustment request for separate room and invigilation on the basis that they had to 'gather evidence' for the JCQ by proving he needs special access arrangements. They also encouraged him to put his phone on vibrate which meant he was missing critical alerts and made him feel even more self conscious. I filed a complaint but the head only called me to ask if I would withdraw it, he didn't offer any solutions. So I'm waiting for the outcome of the complaint. But I have an awful feeling they're going to stick to their guns on this one based on the experience I've had so far. I know the Equality Act is clear about not disadvantaging disabled pupils, but they seem to be using the 'JCQ says it's a centre decision' as the justification for not providing our request. They also said a separate room could give him an unfair advantage, and that 'they'd love to provide different access arrangements for all parents who request them but they can't'. We have supplied two letters from his medical team at the hospital that recommend separate invigilation for him, but they just responded to those saying it was a centre decision not the hospital's decision. It's really affected how he's performed in his mocks. He has a habit of 'hiding' anything to do with diabetes when in public, so if he's in a room with others, he doesn't manage it. :(
Give them the info on the importance of not treating all T1s the same, but also get a letter from his diabetes doctor. Print out these posts for the doctor for context. It amazes me that the Sch would ignore the basic info given to them and be so arrogant that they think they have it right. Perhaps his diabetes doctor would make them pay a little more attention. Don’t give up. Don’t take no for an answer. Be relentless and keep nagging. Remember that emails are a record of the conversation. Even the no replies.
Good luck. Let me know if anything changes.
 
Give them the info on the importance of not treating all T1s the same, but also get a letter from his diabetes doctor. Print out these posts for the doctor for context. It amazes me that the Sch would ignore the basic info given to them and be so arrogant that they think they have it right. Perhaps his diabetes doctor would make them pay a little more attention. Don’t give up. Don’t take no for an answer. Be relentless and keep nagging. Remember that emails are a record of the conversation. Even the no replies.
Good luck. Let me know if anything changes.
Thank you for taking the time to respond - I’m very grateful.
 
I don’t know how to attach it but @JanieMac has made reference to it - Diabetes UK has its own document - worth a read, a print out and give to your school 🙂 maybe even highlight the relevant bits ! Make it easy for them to see what they should be doing.

It’s called Type one diabetes and exams - Make the grade.

I gave it to my head teacher - I am a secondary teacher and (obviously as I’m on the forum!) (type one) diabetic - to assist our diabetic children as there was a lack of understanding with regard to where phones / readers should be (near the child !!! Is the correct answer) during an Exam which was soon cleared up !

As you’d expect the document is clear and detailed. Complete with check lists and record card suggestions.

A separate space either individually or in a small group of 2/3 is reasonable. That’s what happens in our school. For diabetic child(ren) the phone is in the room on silent BUT alarms on and in front of the invigilator away from child so they can’t see and be accused of cheating with all the other stuff sweets / insulin / drink / finger prick meter etc that might be needed. Child can ask at anytime what reading is. The invigilator is trained and can tell child you need time out as your up or down etc.

There does need to be a gathering of evidence in the mock exams and lead up to the real exams so much as saying a separate space IS the normal way of working for the student (“normal way of working” is the key term that needs discussing and evidencing) so it is accepted by the exam boards based on that in the real exams next year.

I hope it is resolved promptly as it is just stressful. Maybe an idea to get the DSN from the hospital to contact the school and assist you.
 
Back
Top