• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • Screening for type 1 diabetes: We now have a new forum section which is for parents who, after having their child screened for type 1, have received a positive result that at some stage their child will be diagnosed with type 1 diabetes. Where possible, please do offer your support and experiences of having a child diagnosed. https://forum.diabetes.org.uk/boards/forums/screening-for-type-1-community-chat.59/
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

J having a hideous "honeymoon"!

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Kei

Kei

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
Yesterday I had a call from J's DSN to say that the consultant wanted him taken off all insulin from yesterday evening. Just for a short while. It's unusual, but not unheard-of, to do this. They're worried that he's exhausting his liver's store of glycogen (?) with all the extreme hypos, and he's on the lowest amount of insulin he could possibly have at the moment! The poor boy is worn out with all the lows, but I'm not looking forward to what usually happens with the highs if his blood sugars do go up (agression, bedwetting...). 🙄

We're to keep monitoring him and if he stays under 15 and his ketones are under 1, not to worry. If he goes above 15 and his ketones go over 1, they'll probably put him on 1 unit of background insulin. I'm in daily contact with the DSNs at the moment, and they're fantastic.

He had no insulin at all yesterday dinnertime/night, and still went hypo by suppertime. In the night I checked him twice and he was going down steadily. By 06:30 this morning he was hypo again.

School haven't phoned so far, so I'm guessing his lunchtime blood sugars were below 15.
 
Awwww Im sorry he is having such a rough time, well all of you. I hope his levels settle down soon xx hugs xx
 
This sounds hauntingly familiar. I got taken off all insulin about 2 months after diagnosis. It's not an easy time, it lasted about a month or so, and I'm still working with really large carb to insulin ratios (morning 1:20, lunch 1:25, evening 1:35), a year in. So you're right, it's not unheard of! I don't know if there's anything I can help with, but give me a yell if there is 🙂
 
How stressful for you both. I've never heard of being taken off insulin but it obviously does happen and I think I know very little! Good luck with it xx
 
sorry for you

I'm finding the diabetes so tiring, relentless and draining and thats without added complications such as the honeymoon period.

JP's Bm's are nearly always high at the moment - hardly ever below 13.

I don't think I really get what the honeymoon period means or is but I can tell from your post it is really frustrating and nerve racking.

take care and be gentle on yourself at this tough time,
rachel
 
the honeymoon period is when you start taking insulin and it kind of kick starts your pancreas to produce the tiny amount of insulin it can before it stops producing it completely.
 
I never really got the honeymoon period thing either. Think it's when you are first dxd, your pancreas is still producing some insulin but eventually this will stop ( I may be wrong here) . We were told it would be obvious when the honeymoon period was over but to be honest , we are 4 years in and never noticed anything! x
 
Hiya hun,
I know weve spoke anyway but just wanted to say huggles to little man (and you) it must be so difficult, lucky him not having no injections for a while tho and he could prob get away with few yummy treats 😉
Both my 2 are still in honeymoons, my son has been in it since Dec and D since March, they are on tiny amounts of insulin xx
 
SacredHeart said:
This sounds hauntingly familiar. I got taken off all insulin about 2 months after diagnosis. It's not an easy time, it lasted about a month or so, and I'm still working with really large carb to insulin ratios (morning 1:20, lunch 1:25, evening 1:35), a year in. So you're right, it's not unheard of! I don't know if there's anything I can help with, but give me a yell if there is 🙂
Click to expand...

Thank you! It's nice to hear from someone who has done this themselves.
 
F never seemed to have a honeymoon period really, and it's 9 months since she was diagnosed. She has been on what seems to be a fairly substantial dose ever since coming out of hospital. I don't know whether having the bad DKA before diagnosis would mean that she wouldn't have one?

J is loving not having to have the injections, but was jealous today that his sister went hypo and he didn't, because he loves glucose tablets!! Kids, eh?! 🙄
 
From what I have read on other forums it seems that this isn't too uncommon in kids who are caught early. I'm sure your team is keeping a bery close eye on him and will restart insulin once it is needed.
 
They're being great. The DSN is going to keep her mobile on for us this weekend in case I need to contact her (rather than us having to ring the children's ward, which is the usual procedure at the weekend).

J is still waking up hypo, but his daytime numbers yesterday were a bit better.
 
Good grief, how stressful, as others have said. Thank goodness you have a good team. It must be making you tear your hair out though.

You always sound so incredibly sensible and sorted. Whether you are or not (!), this is how you sound, so something is working well for you and your family. Hang in there.
 
Patricia said:
You always sound so incredibly sensible and sorted. Whether you are or not (!), this is how you sound, so something is working well for you and your family. Hang in there.
Click to expand...

Thanks. :D I certainly don't feel that way, but both my diabetic kids and my non-diabetic one seem to be growing, healthy and happy so, despite feeling like I'm in a constant muddle, I can't be too far out. 😉
 
Weirdly enough, instead of going high (as I was expecting) J has actually been low all day today!! He woke up hypo, was 2.4 at lunch and 2.9 at dinnertime. 7.4 at supper. I'll be night checking tonight, I think!
 
Just a note to say how much I admire you coping with 2 young kids with D. I have a 14yrs old type 1 and I often wondered how mums cope when the kids are very young. You are doing marvellously. By the time Gemma was Dx'd she was 12 so able to tell me when she felt hypo. I dont think I could've managed if she'd been younger.
Hope things settle soon for J.
Glodee
 
hya kei

sorry to hear you have been having a rough time with J. Glad your DSN is keeping her phone on for you. Hows things going? x
 
Not great today. :-/ He was 23.5 in the night, but only 0.2 ketones, and he went down to 3.1 by morning without any assistance. 🙄

Lunchtime - he's back up to 19ish again, but so far 0.0 ketones. Have you ever tried telling a 5-year-old that he has to sit still and drink lots, when what he really wants is to run round the garden with his sisters? :(
 
After a week of increasingly high numbers, wet beds, etc... we had clinic today. The consultant has put J onto MDI. 1 unit of Levemir in the morning and Novorapid at 1:25 with meals. I'm going in to school tomorrow and Friday to do his lunchtime Novorapid. The DSN will go in on Monday to do it and train staff and she'll go in every day for the rest of the week (and beyond if needed) to oversee them doing the lunch injection.

Fingers crossed this gives him better levels.
 
Kei - MDI's

Kei - hope the MDI's don't tire you to omuch! Is your other Diabetic child on MDI?

JP is on 4 units levemir n the morning and we do 1:20 at breakfast, 1:25 at dinner and tea. And we do a sliding corrective scale for when his levels are more than 12 - which they ar emost of the time!

Why did he have to sit still and not run around? I know you're rght but I don't know what effect it has? Yes and drinking lots is a challenge too - JP has started to refuse water and so i'm annoyed about that!

hope the school get the hang of injections quickly for you.

It must be such a headache having 2 diabetic kids - YOU ARE AMAZING and DOING A FAB JOB - make sure you read that and believe it! in fact read it again with the word I at the beginning.

much love

rachel
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top