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I'm new here!!

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xcat.xoxo

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Hey everyone, I'm relatively new just coming to terms with my new condition which is reactive hypoglycemia and wondered if anyone knew any good suggestions to help! But hope your all having a great day especially in this sunshine.
 
Welcome to the forum @xcat.xoxo

Have you been having some wobbly moments that took you to the Dr?

We have had a few people who have been experiencing (or thought they may be experiencing) reactive hypoglycaemia over the years.

Have you been given a confirmed diagnosis? What sorts of experiences have you been having? Have they made any suggestions of things you may be able to do to help?
 
everydayupsanddowns said:
Welcome to the forum @xcat.xoxo

Have you been having some wobbly moments that took you to the Dr?

We have had a few people who have been experiencing (or thought they may be experiencing) reactive hypoglycaemia over the years.

Have you been given a confirmed diagnosis? What sorts of experiences have you been having? Have they made any suggestions of things you may be able to do to help?
Click to expand...
Hey I've been having some wobbly days and I have been confirmed to have reactive hypoglycemia and they would like me to speak to a dietician but the low sugars are out of my control like no matter what I do I tend to come low and more so at night the doctors said have a carbohydrates snack when U get them but nothing is working and it's struggling to stay above 5.
 
xcat.xoxo said:
Hey everyone, I'm relatively new just coming to terms with my new condition which is reactive hypoglycemia and wondered if anyone knew any good suggestions to help! But hope your all having a great day especially in this sunshine.
Click to expand...

Did you receive your diagnosis in hospital @xcat.xoxo ? You say your new condition - do you have other conditions too? What symptoms are you having?
 
xcat.xoxo said:
Hey I've been having some wobbly days and I have been confirmed to have reactive hypoglycemia and they would like me to speak to a dietician but the low sugars are out of my control like no matter what I do I tend to come low and more so at night the doctors said have a carbohydrates snack when U get them but nothing is working and it's struggling to stay above 5.
Click to expand...
Sounds like you should speak to the dietician then, or the doctor in the mean time
 
xcat.xoxo said:
Hey I've been having some wobbly days and I have been confirmed to have reactive hypoglycemia and they would like me to speak to a dietician but the low sugars are out of my control like no matter what I do I tend to come low and more so at night the doctors said have a carbohydrates snack when U get them but nothing is working and it's struggling to stay above 5.
Click to expand...

How do you know your blood sugar is going low at night? Are you testing? RH doesn’t usually happen at night, which makes me wonder if you have something else going on.
 
Hi and welcome.

Below 5 is perfectly normal for a person without diabetes and especially so during the night when it is not uncommon to naturally drop a bit below 4 during the depths of sleep.
How are you testing?
 
Inka said:
How do you know your blood sugar is going low at night? Are you testing? RH doesn’t usually happen at night, which makes me wonder if you have something else going on.
Click to expand...
So I have a CGM and also the manual finger testing and they both show the lows I've been having like I've been hitting 2.9 but also suffer with seizures but the blood sugars seem to be having more lows during the night but I also have them after certain foods I've ate.
 
rebrascora said:
Hi and welcome.

Below 5 is perfectly normal for a person without diabetes and especially so during the night when it is not uncommon to naturally drop a bit below 4 during the depths of sleep.
How are you testing?
Click to expand...
Hey there
I can drop to as low as 2.9 during the night. I'm testing by manually finger testing and also the CGM.
 
Inka said:
Did you receive your diagnosis in hospital @xcat.xoxo ? You say your new condition - do you have other conditions too? What symptoms are you having?
Click to expand...
Hey there
I received the diagnosis in hospital and I do have other conditions that which is NES Non-epiletic seizures but the symptoms I have with the low sugars is hunger, irrational, shaking and my legs feel like jelly I also feel light headed.
 
Hi @xcat.xoxo and welcome to the forum - Reactive Hypoglycaemia sounds like a real challenge - sorry to hear you're struggling with it - I've done a bit of research into the condition and it appears that it is best controlled with diet - so as others have suggested, a dietician should be able to help the best I reckon

1745874102824.png

Some introduction to carb counting would also help I think - a dietician should be able to help you with that
 
xcat.xoxo said:
Hey there
I received the diagnosis in hospital and I do have other conditions that which is NES Non-epiletic seizures but the symptoms I have with the low sugars is hunger, irrational, shaking and my legs feel like jelly I also feel light headed.
Click to expand...

Do you test your blood sugar when you have those symptoms? Did they actually do the test for RH in hospital or was it mentioned just as a possible diagnosis while you were there? The only person I know with RH has a much more severe reaction.

What would an average day’s food look like for you at the moment?
 
xcat.xoxo said:
So I have a CGM and also the manual finger testing and they both show the lows I've been having like I've been hitting 2.9 but also suffer with seizures but the blood sugars seem to be having more lows during the night but I also have them after certain foods I've ate.
Click to expand...

If you’re getting lows at night they could be compression lows, which are quite common with CGMs. As @rebrascora says, it’s normal for people to dip into the 3s at night.

Did the hospital give you the CGM?

Are your non-epileptic seizures due to anxiety? If so, that could be contributing to the feelings you’re getting with regard to your blood sugar and your worries about it. Are you eating properly? If not, that can cause blood sugar to dip a bit low too. What foods are you having symptoms after?
 
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Inka said:
Do you test your blood sugar when you have those symptoms? Did they actually do the test for RH in hospital or was it mentioned just as a possible diagnosis while you were there? The only person I know with RH has a much more severe reaction.

What would an average day’s food look like for you at the moment?
Click to expand...
Yes I do and they read in the 3s and when it's hit it's lowest of 2.9 I started to have a seizure and it's all be diagnosed by the hospital and my doctors are trying to sort a dietician out. And since speaking to the doctors we've been changing things around like have 3-6 small meals a day and I've done the test for RH.
 
Last edited by a moderator:
mashedupmatt said:
Hi @xcat.xoxo and welcome to the forum - Reactive Hypoglycaemia sounds like a real challenge - sorry to hear you're struggling with it - I've done a bit of research into the condition and it appears that it is best controlled with diet - so as others have suggested, a dietician should be able to help the best I reckon

View attachment 35117

Some introduction to carb counting would also help I think - a dietician should be able to help you with that
Click to expand...
Thankyou so much that's roughly helped with what foods to eat and avoid but also I will speak to the dietician as soon as I have appointment. But thankyou again.
 
xcat.xoxo said:
Yes I do and they read in the 3s and when it's hit it's lowest of 2.9 I started to fit and it's all be diagnosed by the hospital and my doctors are trying to sort a dietician out. And since speaking to the doctors we've been changing things around like have 3-6 small meals a day and I've done the test for RH.
Click to expand...

Well, that sounds positive then. If there’s a long wait for the dietician, you could ask if they could email or post you a leaflet. Matt has linked to one above but there are a number of different leaflets with dietary advice for RH and it’s very possible your hospital will have one themselves or one they can recommend to you. This would be in addition/in advance of your dietician appointment not instead of 🙂

You might also find that a change of diet and/concentrating on eating well and regularly every day helps your non-epileptic seizures.
 
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