grovesy
Well-Known Member
- Relationship to Diabetes
- Type 2
It looks like they have not posted since 2018.
-
Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Ileostomy & Diabetes type 2
- Thread starter Linda Sharrett
- Start date
- Status
Hi. Ive just been diagnosed with type 2 and also have a high output Ileostomy. It was decided I should try Trulicity rather than metformin as they didn’t think I’d cope with the side effects of the tablets. As far as I can make out, all the treatments have nasty side effects and it seems to be a case of finding the one that is least evil. I only had my first injection on Friday, and since then have had a completely watery output and slight nausea. I don’t really feel hungry so haven’t been able to bulk up on carbs, but I’m hoping that as I get used to the drug things will improve. My plan is to continue with the extra carbs, cut down on fats, and hope things like baked apple or baked beans will help thicken things up. Basically, I’ll continue to follow the Ileostomy diet rather than the diabetic one, but I’ll keep it as healthy as possible. I don’t seem to have anyone to ask about this, so I’m just going to go ahead with it.
How are you getting on?
Thanks for reply I said no to metafome so trying other roots oddly my bag has gone thick and iam have to drink fruit juice and yeah full of sugar .lot I cont eat veg and fruit wise .got call tomorrow with sugar nurse I have had too up my insulin up 28 .and it's as high sometimes as without .plus jumped on scales today omg I have to get a right diet as just at a loss
Looked into noom but not very clear how it works .
Thinking you pay for someone to chat dayly .plus I suffer from fibromyalgia ME and depression my mind is going over and over. Really need help .hopefully you get on ok please let me know if you can find the right diet .thanks lyn
Ps green banana and smooth peanut butter helps thicken your output .
A bit of a relief to find this thread, as like other people who have replied, my GP and diabetic nurse are at a bit of a loss about diet advice when it comes to being diabetic and having an ileostomy. There was a tentative suggestion of a low carb diet, like the keto diet, but I've seen other people commenting that it messes with their discharge something fierce. So if anyone has any advice I'd be grateful to hear about.
Hi I'm a newbie with an ileostomy so I hear what youre saying. There doesnt seem much info with our problem so maybe we can share what we find to help each other. It's all a bit scary right now isnt it.
My diabetic nurse managed to motivate for me to get moved onto the Libre Freestyle monitor and that's done wonders for keeping on top of things. I'm busy experimenting with my water intake and trying to find a sweet spot between messing with my output and flushing out the sugar.
I am the same as you plus high salt intake no one seems to help me
Robin
Well-Known Member
- Relationship to Diabetes
- Type 1
- Pronouns
- She/Her
Hello, Helen and welcome to the forum. You might get a better response if you start a new thread, either introducing yourself in the Newbies section, or starting a thread with Ileostomy in the title on the general message board.
(to start a thread, go to Forums, click 'Post thread' on the right hand side near the top, then a drop-down appears with a list of sub forums, and you can click the one you want, and a page for you to start your thread will appear)
If you have difficulty working out how to start your own thread, by all means reply here, and one of the mods or admin staff will help you.
Proud to be erratic
Well-Known Member
- Relationship to Diabetes
- Type 3c
- Pronouns
- He/Him
Hello Helen @Helenf62,
There is one advantage in reading this thread because it reveals several people with a stoma who subsequently become diabetic - AND have reached out for dietary help in managing their D. It seems unsuccessfully so far. I hope we can help a little to change that.
You are, in my non-medical opinion, as if Type 3c. You are neither T1 nor T2. I'll try and explain.
I know relatively little about ileostomy or colonostomy - except that my sister has had a stoma for over 4 years after her ileostomy. She had (and still has) cancer, previously bowel cancer, but now at stage 4 and spread around much of her body. Chemotherapy is keeping that under control. She does not have diabetes, thankfully. There is enough stress in her life from the cancer threat and the daily challenges of managing a stoma. I do know from chatting with her that managing a stoma can be just as debilitating for her on a daily basis as I sometimes think it is for me managing my D. Stoma are not easy friends and can be very unforgiving.
Most diabetic diagnoses are roughly 10% Type 1 (= no natural insulin because of an autoimmune condition. This is a very specific ailment); or roughly 90% Type 2 (= plenty of natural insulin but too much bodily resistance to allow that insulin to work). They are similar titles, (both confusingly meaningless to anyone else) but extremely different causes of dangerously elevated blood glucose levels. It is the cause that brings about the correct diabetic diagnosis, from which comes the correct treatment plan. There are a few other Types, all of which have unhelpful type names of letters and numbers, except Gestational diabetes; all of these others are a tiny proportion of the total.
I'm Type 3c because I have no pancreas after surgery to beat my former pancreatic cancer. It is a very rare type. I need insulin because I have no means of making my own. Oral meds could never be sufficient on their own. Your diabetes has been caused by your necessarily high carb diet; not from an autoimmune condition so not T1, nor from extremely high natural insulin resistance so not T2
You, again in my non-medical opinion, clearly need pancreatic help either from oral medications or extra insulin. It is clear to me (and you) that you need first a diet that keeps your stoma working satisfactorily. That has to come first or your life would quickly become unbearable (rather than just stressful!). Your diet is necessarily full of carbs; your pancreas isn't producing enough insulin to cope with your surfeit of carbs and so further medical intervention is needed. You need support from a Specialist: an Endocrinologist.
Unhelpfully the vast majority of Health Care Professionals (HCPs) are alarmingly ignorant (or lazy) when it comes to recognising that some diabetes is simply neither T1 nor T2 and all too frequently people are dropped into the T2 basket because its easy (for them!). I recommend you strongly press your GP to urgently refer you to an Endocrinologist. GPs do not have the medical training to manage an unusual form of D; this is not a criticism - they are trained to directly manage the multitude of everyday medical problems AND to recognise the symptoms of unusual ailments then refer those patients accordingly.
Meanwhile you also need a test meter and a Continouos Glucose Monitor (CGM) such as Libre 2; both of those are authorised to be prescribed by a GP, but far too many GPs shelter behind out of date Guidance - and don't write those prescriptions. It is essential, in my non-medical opinion - that you have some insight into how your unusual body is managing the high carb diet that you currently have. A meter and CGM would provide significant aids to allow you to adjust your diet (one step at a time) towards a lower HbA1c.
Here on this forum we can offer suggestions for modifying your diet to reduce your carb intake. We can tell you about the many quirks of managing D and we have an accumulation of centuries of experience in D problems. Within that D experience we understand what many of the prescribed meds do AND we can be sympathetic to your circumstances. But you need the correct diagnosis along with the correct treatment path and we can't do that. You alone will know or find out by trial and learning what works for you in managing your D and keeping your stoma in its place!
Do please post in a fresh thread and tell us a little more. For example how long have you had a stoma, when was your D identified and do you have an HbA1c from a blood test that would have been organised by your GP to confiem your diagnosis of D. The HbA1c tells us something about how well or badly your body is managing your carbs. Good luck.
There is one advantage in reading this thread because it reveals several people with a stoma who subsequently become diabetic - AND have reached out for dietary help in managing their D. It seems unsuccessfully so far. I hope we can help a little to change that.
You are, in my non-medical opinion, as if Type 3c. You are neither T1 nor T2. I'll try and explain.
I know relatively little about ileostomy or colonostomy - except that my sister has had a stoma for over 4 years after her ileostomy. She had (and still has) cancer, previously bowel cancer, but now at stage 4 and spread around much of her body. Chemotherapy is keeping that under control. She does not have diabetes, thankfully. There is enough stress in her life from the cancer threat and the daily challenges of managing a stoma. I do know from chatting with her that managing a stoma can be just as debilitating for her on a daily basis as I sometimes think it is for me managing my D. Stoma are not easy friends and can be very unforgiving.
Most diabetic diagnoses are roughly 10% Type 1 (= no natural insulin because of an autoimmune condition. This is a very specific ailment); or roughly 90% Type 2 (= plenty of natural insulin but too much bodily resistance to allow that insulin to work). They are similar titles, (both confusingly meaningless to anyone else) but extremely different causes of dangerously elevated blood glucose levels. It is the cause that brings about the correct diabetic diagnosis, from which comes the correct treatment plan. There are a few other Types, all of which have unhelpful type names of letters and numbers, except Gestational diabetes; all of these others are a tiny proportion of the total.
I'm Type 3c because I have no pancreas after surgery to beat my former pancreatic cancer. It is a very rare type. I need insulin because I have no means of making my own. Oral meds could never be sufficient on their own. Your diabetes has been caused by your necessarily high carb diet; not from an autoimmune condition so not T1, nor from extremely high natural insulin resistance so not T2
You, again in my non-medical opinion, clearly need pancreatic help either from oral medications or extra insulin. It is clear to me (and you) that you need first a diet that keeps your stoma working satisfactorily. That has to come first or your life would quickly become unbearable (rather than just stressful!). Your diet is necessarily full of carbs; your pancreas isn't producing enough insulin to cope with your surfeit of carbs and so further medical intervention is needed. You need support from a Specialist: an Endocrinologist.
Unhelpfully the vast majority of Health Care Professionals (HCPs) are alarmingly ignorant (or lazy) when it comes to recognising that some diabetes is simply neither T1 nor T2 and all too frequently people are dropped into the T2 basket because its easy (for them!). I recommend you strongly press your GP to urgently refer you to an Endocrinologist. GPs do not have the medical training to manage an unusual form of D; this is not a criticism - they are trained to directly manage the multitude of everyday medical problems AND to recognise the symptoms of unusual ailments then refer those patients accordingly.
Meanwhile you also need a test meter and a Continouos Glucose Monitor (CGM) such as Libre 2; both of those are authorised to be prescribed by a GP, but far too many GPs shelter behind out of date Guidance - and don't write those prescriptions. It is essential, in my non-medical opinion - that you have some insight into how your unusual body is managing the high carb diet that you currently have. A meter and CGM would provide significant aids to allow you to adjust your diet (one step at a time) towards a lower HbA1c.
Here on this forum we can offer suggestions for modifying your diet to reduce your carb intake. We can tell you about the many quirks of managing D and we have an accumulation of centuries of experience in D problems. Within that D experience we understand what many of the prescribed meds do AND we can be sympathetic to your circumstances. But you need the correct diagnosis along with the correct treatment path and we can't do that. You alone will know or find out by trial and learning what works for you in managing your D and keeping your stoma in its place!
Do please post in a fresh thread and tell us a little more. For example how long have you had a stoma, when was your D identified and do you have an HbA1c from a blood test that would have been organised by your GP to confiem your diagnosis of D. The HbA1c tells us something about how well or badly your body is managing your carbs. Good luck.
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