Ileostomy & Diabetes type 2

[Linda Sharrett]

Hello All, I am a Newbie. Hope you can please help me.
I have an Ileostomy & have recently been diagnosed with Type 2, as a result of following the "High Output Diet for Ileostomy" which is mainly the unhealthy options of White bread, White Pasta, Potato, Crisps, Peanut butter, Jelly Babies & Marshmallows.
This is to help slow down the Digestion, as within an hour of eating it is in the "Bag" therefore Nutrients are not absorbed.
I was told in hospital after my operation to increase my Salt intake & eat Salted Butter. I also have an Allergy to the Drug to slow down this process. I have to find a way to manage this with Diet ? I am having great difficulty finding the suitable foods to suit each problem.
I have spoken to my Stoma Nurse, Colorectal Surgeon, G.P & Diabetes Nurse & all
of them are at a loss, not knowing another patient to compare me with.
Is this so rare? I can't be the only one. Please can you find a suitable diet for me to follow ?

 

[Maire]

Hello Linda, I’m in exactly the same boat as you....dreadful trouble with high blood sugar readings I just haven’t be stable since my Ileostomy surgery. But a week ago I was started on a weekly injection called Trulicity I have just had my 2nd dose but it hasn’t as yet been able to stabilise my blood sugars and also I feel really sick all the time. It’s been incredibly hard to get any answers from either the diabetes team or my colorectal team!!

 

[Linda Sharrett]

Hello Maire, we suffer in silence ! My Surgeon has always been under the impression that my Diabetes was the "Lesser of 2 Evils" & it was more important to concentrate on my diet to suit my Stoma output & try to stop my skin from burning. I ended up in hospital with an infection from it & 5 days on a drip & NG tube. He says one thing & my Diabetic nurse at my surgery says another. She has not had any Patients with these two conflicting condition.

 

[mikeyB]

Hi Linda, welcome to the forum.🙂

I just avoided your situation after a developed Ulcerative Colitis affecting the whole colon, weeks after developing diabetes (which had been erroneously diagnosed as T2.). Great way of controlling BG, and losing weight. Fortunately I retained my colon and was almost immediately confirmed T1.

You need to be seen by a diabetes specialist. You can’t change your diet, which is almost a unique situation. The only solution, in my opinion, is use insulin to help the body along - your pancreas is obviously not coping with the amount of insulin it has to pour out for the high carb diet.

Trulicity is locking the stable door after the horse has bolted.

So, it seems obvious that the problem is not enough insulin, so stick some more in to help the pancreas out.

That’s not a decision that can be made by your diabetes nurse, it needs to be done by a specialist- who like as not won’t have seen this problem before, but that’s the level that discussion should take place.

Hope this helps. Let us know how you get on.

By the way, your surgeon is wrong. Your diabetes isn’t the lesser of two evils, it has to be controlled. Typical surgeon🙄

 

[Linda Sharrett]

Hi Linda, welcome to the forum.🙂

I just avoided your situation after a developed Ulcerative Colitis affecting the whole colon, weeks after developing diabetes (which had been erroneously diagnosed as T2.). Great way of controlling BG, and losing weight. Fortunately I retained my colon and was almost immediately confirmed T1.

You need to be seen by a diabetes specialist. You can’t change your diet, which is almost a unique situation. The only solution, in my opinion, is use insulin to help the body along - your pancreas is obviously not coping with the amount of insulin it has to pour out for the high carb diet.

Trulicity is locking the stable door after the horse has bolted.

So, it seems obvious that the problem is not enough insulin, so stick some more in to help the pancreas out.

That’s not a decision that can be made by your diabetes nurse, it needs to be done by a specialist- who like as not won’t have seen this problem before, but that’s the level that discussion should take place.

Hope this helps. Let us know how you get on.

By the way, your surgeon is wrong. Your diabetes isn’t the lesser of two evils, it has to be controlled. Typical surgeon🙄

Thanks Mike i will mention this to my nurse and ask to be refered. Nice to know I'm not alone. My Hba1c was 131. Early this year. Now it's 14.9 mmol. Checked this afternoon. After being on Metformin for about 6mths.

 

[Maire]

Hello Maire, we suffer in silence ! My Surgeon has always been under the impression that my Diabetes was the "Lesser of 2 Evils" & it was more important to concentrate on my diet to suit my Stoma output & try to stop my skin from burning. I ended up in hospital with an infection from it & 5 days on a drip & NG tube. He says one thing & my Diabetic nurse at my surgery says another. She has not had any Patients with these two conflicting condition.

OMG Linda, poor you, that’s terrible....it’s so complicated!! Everything is conflicting.....as ostomates we have to be careful what we eat....even the dietician couldn’t give me any answers.

 

[mikeyB]

Don’t worry, Maire, somebody will have the answers, but that somebody isn’t your diabetes nurse or GP.

One of the problems is that you have lost your colonic biome - the bacteria that control many things in the body, including supplying almost all of your Vit K. There are other wide ranging effects. Its a vital complex system, and it’s been removed.

For that reason, I don’t think you fit the Type 2 label or treatment.

Because it is so complex, it’s only a diabetes specialist who might be able to work something out, and an appointment is something you need to push for.

 

[Linda Sharrett]

Don’t worry, Maire, somebody will have the answers, but that somebody isn’t your diabetes nurse or GP.

One of the problems is that you have lost your colonic biome - the bacteria that control many things in the body, including supplying almost all of your Vit K. There are other wide ranging effects. Its a vital complex system, and it’s been removed.

For that reason, I don’t think you fit the Type 2 label or treatment.

Because it is so complex, it’s only a diabetes specialist who might be able to work something out, and an appointment is something you need to push for.

Thanks for the advice Mike. I am making appointment to see my Diabetes Nurse asap & hope she can refer me to a Specialist to try to sort this out, once again thanks.

 

[HelenJ]

Thanks for the advice Mike. I am making appointment to see my Diabetes Nurse asap & hope she can refer me to a Specialist to try to sort this out, once again thanks.

Hello All, I am a Newbie. Hope you can please help me.
I have an Ileostomy & have recently been diagnosed with Type 2, as a result of following the "High Output Diet for Ileostomy" which is mainly the unhealthy options of White bread, White Pasta, Potato, Crisps, Peanut butter, Jelly Babies & Marshmallows.
This is to help slow down the Digestion, as within an hour of eating it is in the "Bag" therefore Nutrients are not absorbed.
I was told in hospital after my operation to increase my Salt intake & eat Salted Butter. I also have an Allergy to the Drug to slow down this process. I have to find a way to manage this with Diet ? I am having great difficulty finding the suitable foods to suit each problem.
I have spoken to my Stoma Nurse, Colorectal Surgeon, G.P & Diabetes Nurse & all
of them are at a loss, not knowing another patient to compare me with.
Is this so rare? I can't be the only one. Please can you find a suitable diet for me to follow ?

hi. Did you manage to sort this out as I’m in the same position ?

 

[everydayupsanddowns]

Hello @HelenJ

I’m afraid Linda hasn‘t visited the forum for 2 years

 

[everydayupsanddowns]

I’m afraid I don't know much about how an ileostomy and diabetes might interact with diabetes.

I’m not sure if it will help, but I found this page

Complications of an ileostomy

Find out about the main complications of an ileostomy and how they can be treated.

www.nhs.uk

 

[Ebathome]

hi. Did you manage to sort this out as I’m in the same position ?

Hello my mother is currently in hospital and will now be dependent on insulin. She has had an ileostomy for 57 years so I totally understand the need for carbs to bulk. I am just wandering if it is a diabetic nurse who can help or a nutritionist? Would be keen to know how you get on...good luck

 

[HelenJ]

Hello my mother is currently in hospital and will now be dependent on insulin. She has had an ileostomy for 57 years so I totally understand the need for carbs to bulk. I am just wandering if it is a diabetic nurse who can help or a nutritionist? Would be keen to know how you get on...good luck

I have an appt with a consultant at the end of the month so I will let you know what happens. They have specialist diabetic nurses there so hopefully will come up with something relating to the diet. Hope your Mum is ok

 

[iburry67]

hi. Did you manage to sort this out as I’m in the same position ?

I have same issue just add COVID to make it more interesting

 

[iburry67]

I have an appt with a consultant at the end of the month so I will let you know what happens. They have specialist diabetic nurses there so hopefully will come up with something relating to the diet. Hope your Mum is ok

Don’t expect a resolution. I trust my GP and all they could do was up the met Forman from 1000mg per day to 2000mg per day. I hope I’m wrong and would love to know if you found another solution which is not still a health issue.

 

[grovesy]

Don’t expect a resolution. I trust my GP and all they could do was up the met Forman from 1000mg per day to 2000mg per day. I hope I’m wrong and would love to know if you found another solution which is not still a health issue.

The poster has not been seen since they last posted. So don't be suprised if you get no reply.

 

[trophywench]

A General Practitioner is not even supposed to be an expert in anything to do with health - and most of them, being intelligent generally, never claim to be! Their expertise is in knowing 'enough' about an awful lot of bodily functions.

Diabetes is itself a specialist function, of the specialist Endocrinology function. Yes, that narrow! So to expect a GP to know how to react and deal with complex health problems is to expect too much.

 

[iburry67]

I’ve dealt with dietician, who specialize in the area of diabetes. They are all of the same mind. Anyway you have taught me something tonight and I will push harder to locate a Endocrinology function specialist - I’m trying to find answers to the whole horrible experience I am have with the stoma bag.

 

[Lyn.p]

Hello All, I am a Newbie. Hope you can please help me.
I have an Ileostomy & have recently been diagnosed with Type 2, as a result of following the "High Output Diet for Ileostomy" which is mainly the unhealthy options of White bread, White Pasta, Potato, Crisps, Peanut butter, Jelly Babies & Marshmallows.
This is to help slow down the Digestion, as within an hour of eating it is in the "Bag" therefore Nutrients are not absorbed.
I was told in hospital after my operation to increase my Salt intake & eat Salted Butter. I also have an Allergy to the Drug to slow down this process. I have to find a way to manage this with Diet ? I am having great difficulty finding the suitable foods to suit each problem.
I have spoken to my Stoma Nurse, Colorectal Surgeon, G.P & Diabetes Nurse & all
of them are at a loss, not knowing another patient to compare me with.
Is this so rare? I can't be the only one. Please can you find a suitable diet for me to follow ?

 

[Lyn.p]

Hi just found out and reading your comments is like reading mine word for word .got see nurse on Monday about how were going to treat it .now I have no faith after a hospital blunder ending up with a bag 2 years next March .thanks for the add need to get my head around how page works because see this is old post .x