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I have a lot of symptoms but doctor says it's not diabetes.

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Sidcrane

New Member
Hey everyone !
Newbie here 🙂
I decided to hear some opinions here on my story.
I've been having trouble for a few years now and it seems my symptoms have gotten worse over time.
It started with just feeling sick at night and sweating a lot. After a while I realised that the sick feeling would pass quickly after eating whole grain bread. But this feeling came back every day. It has now gotten so bad that I can only eat one certain type of bread to prevent me feeling like I am going to throw up. I often pee A LOT, like I can be on the toilet peeing for half an hour and will still have to go. Then when I am done, minutes later I start sweating HORRIBLY, I feel very sick, starting to shake and my eyesight goes darker. It's hard to focus. Then I eat some raw oatmeal or bread and it goes away after a couple of minutes. I can feel this taking a toll on my body. It has become hard for me to eat things like potatoes and rice as this seems to make it worse. I can't go a day without eating whole grain bread. It's the only thing helping me out at this point. I often wake up sweating like I just took a walk in a desert, again this only goes away with eating the bread.
It has gotten so bad that I can't even eat natural cornflakes without getting what feels like a hypo hours later.
I went to get my blood tested in 2016, the doctor told me I didn't have diabetes. I was left with questions as to why I have all these symptoms but he had no answers to it. Then last year I went to another doctor and she just used a glucose meter to see and it was normal. She told me I would 1) lose weight. 2) pee a lot 3) be very thirsty if I was diabetic. And that the test results from 2016 would show it if I was diabetic.
I was only in her office for 5 minutes.. and I did tell her that 1) I lost weight (50 pounds since 2016) 2) I could easily pee for an hour 3) be so thirsty that it's driving me insane and it only goes away when I drink something with sugar in it.
I am not someone who eats candy or other sugary stuff. I actually can't because I will get so dizzy that I can't life my head up and after that passes I will start to sweat and feel sick again.
Years after my first symptomes I found out my grandfather was diabetic. My sister is diabetic. And haemophilia runs in the familly. I wonder if it is possible for this blood disease to make it harder to spot diabetes in our familly.
Also worth noting: I once talked to my doctor about troubles with my eyesight, and he told me it sounded exactly like what patients with cataracts described :confused:
At this point I don't know what to think. I only know that it is getting harder to find food that will not make me feel sick.
What do you think ?
 
Untreated Diabetes does not usally present as hypos. There is a condition called reactive hypoglycemia .
 
I too wonder if it is reactive hypoglycaemia. Do either of your diabetic relatives have a spare Blood Glucose Meter that you can take away with you and use to test when you feel ill. My guess is that you may be going high and then low and perhaps the wholegrain bread is providing slower release glucose that gives you a steady trickle of glucose rather than the potatoes which are hitting your system in a rush.
If it is not possible to source a spare BG meter from your relatives, they can be bought relatively inexpensively and the ones we recommend are those with the cheapest test strips because those consumables are what make BG meters expensive to use. For that reason, the SD Gluco Navii or the Spirit Health Tee2 are proposed as the test strips for them are just £8 for a pot of 50 and the meters are about £15.
It might help to stick to a low carb higher fat way of eating and eat little and often because it is a spike in BG which then triggers the low later I believe. Many of us here on the forum follow this way of eating to manage our diabetes and it can be enjoyable once you get your head around it.... not saying you are diabetic as such because reactive hypoglycaemia is slightly different, but a similar diet and eating little and often should help. I am not sure if there is anything available medication wise, but if you can identify that you are going low when you get the night sweats etc then you might suggest it could be RH to your doctor and ask for a referral to a consultant.
If you drive, you need to be very careful as it could cause you to have an accident and you should probably be prescribed a BG Meter and test strips by the GP to ensure that your BG is high enough to make it safe for you to drive, I would have thought.
 
Hi @Sidcrane What you are going through sounds awful! Shame the doctors dont seem to have delved into it too deeply. I found a link (based on what @grovesy & @rebrascora has mentioned, maybe useful info?

www.diabetes.co.uk

Reactive Hypoglycemia – Hypos After Eating

Reactive hypoglycemia is the general term for having a hypo after eating, which is when blood glucose levels become dangerously low following a meal.
www.diabetes.co.uk www.diabetes.co.uk

or this ?.... https://www.nhs.uk/conditions/low-blood-sugar-hypoglycaemia/

I would encourage you to speak again with a doctor, at your age, it doesnt seem right at all. Is there another GP you can book an appointment with at the surgery, get a 2nd opinion. Under the current climate you may be offered a telephone consultation, it would be a good idea to have your notes/questions written down in front of you, so you dont forget anything. Good luck and please let us know how you get on.
 
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I can be on the toilet peeing for half an hour and will still have to go. Then when I am done, minutes later I start sweating HORRIBLY, I feel very sick, starting to shake and my eyesight goes darker. It's hard to focus.

Feeling faint after peeing is a recognised medical condition called Micturition Syncope

https://www.healthline.com/health/micturition-syncope#how-to-handle-an-episode

I know you didn’t describe it as feeling faint, but the sweating, nausea and vision going are connected to fainting not just to hypos.

There are also, of course, many other potential conditions that might be causing your symptoms. Have you had general health tests to rule out other conditions? I think it’s a good idea to keep an open mind rather than assume it’s diabetes-related, and if you haven’t had those tests I’d be pushing for them to rule out other conditions, eg digestive issues, urinary problems, etc.
 
Inka said:
I can be on the toilet peeing for half an hour and will still have to go. Then when I am done, minutes later I start sweating HORRIBLY, I feel very sick, starting to shake and my eyesight goes darker. It's hard to focus.

Feeling faint after peeing is a recognised medical condition called Micturition Syncope

https://www.healthline.com/health/micturition-syncope#how-to-handle-an-episode

I know you didn’t describe it as feeling faint, but the sweating, nausea and vision going are connected to fainting not just to hypos.

There are also, of course, many other potential conditions that might be causing your symptoms. Have you had general health tests to rule out other conditions? I think it’s a good idea to keep an open mind rather than assume it’s diabetes-related, and if you haven’t had those tests I’d be pushing for them to rule out other conditions, eg digestive issues, urinary problems, etc.
Click to expand...
Not heard of that one before, but I am familiar with Syncope.
 
Sorry to hear about your situation @Sidcrane

It certainly sounds unusual, and not a ‘classic’ set of diabetes symptoms, though there are some things that will be familiar to folks here. However, almost no one here is medically qualified - so we really can’t offer much in the way of advice.

In undiagnosed diabetes some of the excess glucose gets flushed out of the body by the kidneys, which leads to more urination, and also increased thirst. But there are many causes of increased urination (and they will result in increased thirst). In diabetes the inability of the body to metabolise foods can cause weight loss before diagnosis... but there are lots of other causes of unexpected weight loss.

The nausea you mention isn’t often one of the symptoms people experience before a diagnosis with diabetes.

For the most part, if your symptoms are diabetes-related, then the generally increased levels of blood glucose would show in your HbA1c result, even if occasional ‘spot check’ fingerstick BGs are in the normal range.

Hope you get to the bottom of it! It's a mystery.
 
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