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husband was diagnosed 3 weeks ago and gets worse

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Barb23

New Member
Relationship to Diabetes
Hi All,
my husband (76 kg, 180 cm tall, hence not overweight, but slightly too much belly) was diagnosed with type 2 almost 3 weeks ago, his HbA1c was 54. He was prescribed Metformin and is since Friday night on the second tablet. We have changed our diet to what we were told was a healthy diet, which meant for us more carbs than before. We had been on a diet as follows: lowish fat, low carb, high protein, lots of fruit and veg. We both have cut back on fat now (so only a matchbox size of cheese for lunch, not meat for lunch and max. 80g meat or 140g fish for dinner), but have added more carbs as that was what all guides say. We both lost 1kg per week and he is getting so bad that he can not work more than 3 hours in the morning and 2 in the afternoon. We are freelance and very busy at the moment, which means 50 to 60 hour weeks for me. His health is getting worse and he feels extremely tired, often giddy and sometimes blurred vision. A metre was refused due to cost reasons, so we are going to get one next week for free, but have to buy the test strips. However, he is feeling rather low since getting worse despite cutting back so much does not help. his diet is as follows:
breakfast: sugar-free muesli (with nuts and dried fruit) with 1/3 portion fruit and semi-skimmed milk and non-fat yoghurt.
snack: fruit (2 portions, not banana) + 2 oatmeal buiscuits
lunch: 1 or 2 slices of wholegrain or rye bread, 1 tbs humous / veg spread, 1 matchbox size cheese, carrot, lettuce, 1/2 red pepper, small tomatoes
snack: 1 portion fruit + 2 oatmeal buiscuits
dinner: max 80 g meat or 140 g fish or vegetarian (stirfry) with hardly any oil, rice or quinoa or potatoes (c. 1 -2 fist fulls or 1/4 to 1/3 of a plate) and 1/3 of a plate veggies
snack: see above (1 portion)
Any ideas if that makes him worse and if yes, what could we try until he gets the metre?
Thank you very much.
Barb23
 
Hi there Barb, hees pritty much as I was thirty years ago, on tablets always tired and feeling hungry as we are told to eat more healthily (we were but we follow instructions) eyes going blurry as the glucose in me gets lower etc. Back and forth to the doctors who says keep on going and you will get there. So in despiration I rang the diabetic nurse who was shocked and came around the next day at 8.30 in the morning bringing me insulin, needles and BM test strips. Within an hour I was feeling better. My blood sugar was off the scale so I just upped the insulin untill I became normal. Then I went to see the doc who then agreed I should have been on insulin weeks ago.
Arrange to see the diabetic nurse as they know far more than the doctors do they are specialists. You do need a metre and you should be given one free with test strips on prescription, regular blood tests and diabetic reviews. Hope you get sorted fast AM.
 
hi Barb
Sorry your husband is having so many problems. i just typed a long reply, and I've just had a computer glitch and lost it!
I basically said,
yes, get a meter and test test test. Test strips can be expensive, so,check this out before you commit to one particular meter. Many members here have found that the Codefree meter, available on Amazon, has the cheapest strips, I use one as a spare, and it seems to work adequately.
Get yourself a useful book. I used the one by Gretchen Becker, as I was misdiagnosed as a type 2 in the first instance. I found it really useful ( and it enabled me to ask the right questions to get myself properly diagnosed.)
The Carb question. Hmm. The advice dished out for years has been, high carb low fat. I think there is increasing evidence that this just doesn't work. Also, saturated fat, especially dairy, isn't the villain it once was thought. many diabetics find that lowering their carbs helps gain better control, as the sugar in the carbs they do consume is then released more slowly into the blood stream, avoiding high spikes in blood glucose. Fat has more calories, wieight for weight, so I think it was assumed hat substituting carbs would reduce calorific intake, but I don't think it works like that. You can feel hungrier in between times,so you eat more.
The main thing is, if you have a question, ask away on here. someone always knows the answer, or can direct you where to look.
 
Hi Barb and sorry your husband find himself in this position...it's tough! I was diagnosed with Type 2 only 4 months ago and have been testing right from the start. It has really helped me to identify what spikes me and what I can tolerate. I'm no expert but my levels would be permanently high on the diet your husband is eating because it contains much more carb than I can personally tolerate.
When you say 'oatmeal biscuits' do you mean sweet oatmeal type cookies or low carb oatcakes? I also cannot tolerate a lot of fruit.

It's a difficult balancing act I've found and I got to see a dietician but ultimately it's been the meter that's guided me and I can't help feeling that some of the advice we receive to increase our carb intake is absolute nonsense! Because my levels are higher on a morning, I have negligible carbs for breakfast and it drops by mid morning significantly.

Hope you find a diet that suits him better once you start testing. Makes me fume that some surgeries won't give a meter and strips to type 2's. Surely it's cheaper in the long run than treating the complications that can arise 😡
 
Yup! - the high carb diet is definitely making it WORSE.

It is perfectly possible anyway that your husband actually has TYPE 1 not T2 - it isn't only young people that get it, you can be 7 months or 7 decades old.

Tell me - does your husband feel nauseous not long after eating the high carb c**p, and is he virtually unable to keep his eyes open? If so - go to A&E; go immediately to A&E; Do not pass 'Go' and definitely don't stop to collect £100 - just enough for the hospital carpark. I ain't joking - it's called DKA and it IS an emergency.


I always wish I could nip round, with a meter and strips - and also give a quick jab of insulin if the result's bad enough - anything to relieve the damn suffering that GP's make some poor sods go through.

Thing is to be fair, Metformin or any tablet isn't like insulin, it isn't instant. But there again - you wouldn't get worse so quickly, either, with T2.

Best tip to get a free meter is to err, fib. Slightly. If you need to. If asked 'How many times a day do you test?' - say '4 or 5' and if asked 'Are you on insulin?' or 'Are you Type 1?' answer 'Yes'. That's just in case they won't dish them out routinely to T2s - cos they make no money on the meters, only on the strips.
 
I too get annoyed at the false economy of "no test meters/strips to T2s except those on certain meds". Nobody would think it remotely sensible to drive blindfolded, with a quick glance at the road every 3 or 6 months, yet the BG-testing equivalent is imposed. 😡
 
As everyone has said, please consider going back to your lower carb diet. It is the carbs that effect your blood sugar. Eat full fat yogurt etc as low fat has much more sugar in it. Hopefully your husband should start to feel better after a few days, if not, as people have said, get yourself back to the doctor/hospital etc. Try low carb snacks like cheese or chicken or a few nuts. There is lots of great advice in the recipe/food section.
Once you get the meter it will really help as you will be able to see what is going on. There are some great links in the stickies at the top of this newbies thread, with amazing advice on how to use your meter most effectively.
I'd just like to add that I too was wrongly diagnosed Type 2 and ran blood sugars in the teens and twenties for 6 months before being sorted out. Whilst this is in no way ideal, I am lucky that I have had no adverse effects. I kept my sugars at this level by eating low carbs (around 20g a day). Now that I am sorted, I tend to eat around 100g a day. What I am trying to say, is that whilst being vigilant is important and if your husband's blood sugars remain high, despite cutting the carbs and taking medication, you need to go back to the doctor, these things do take a bit of time to sort, for the Metformin to kick in etc, so try not to panic too much and ask us if you have any questions. do let us know how you are getting on.
 
Hi Barb

All carbohydrates turn to sugar in your digestive system, which means all of them will raise blood sugar. So it's not just obvious sugar containing food that your hubby has to minimise his consumption of, but also bread, pasta, cereals, rice, potatoes etc. Even fruit contains lots of natural sugar, and as far as your pancreas is concerned there is no difference between the refined sugar in sweets and natural sugar in fruits. It shocks me that there are so many so-called medical people out there who don't seem to know this!

Please go back to your low carb diet, pile on the meat/fish/cheese/veg/eggs and cut down on everything else, at least until you can get a meter and start to see how different foods affect your husband. I'd also agree with the others on getting yourselves to hospital sharpish if his condition worsens.

Good luck 🙂
 
Thank you very much for all your replies. They partly confirmed what we thought, but some of it has also been eye-opening. Also, it has helped both of us that others felt the same. We had gone back to the low carb diet today (including low on fruit) and he has been much, much better. He will get a meter tomorrow, the meter will be free, but after the first test strips are used up, we'll have to pay :(. But we are happy to do this if it helps, although we will try again to get them free. He seems to be ok with a small amount of carbs, he had quinoa and rice (very small amount) included in a salad tonight and also a little bit of fruit - orange. Finally we can now start and trial and error.

The good news are though that the diet and the Metformin has brought his HbA1c down to 47 (in 3 weeks). The surgery still wants him to go onto the max. dosis of Metformin.

Once again, thanks a lot,

Barb23
 
Hi Barb
Carb wise, you might find he has a magic number, I certainly do, mine is 50g of carb in one go (bit less at lunch time for reasons known only to my body 🙄). I find the total amount of carb a day is irrelevant it's the amount I eat in one go that matters. So I could eat 150g in a day if I wanted and control my blood sugar very well, as long as I eat it in three batches. You'll find that easier to establish when you've got the meter. I still maintain that refusal to give people with type 2 test strips is exceptionally stupid at best, and I wonder how long it will be before someone sues the health service for denial of treatment. Maybe you could ask the doctor for a pot a month for say the first three months and see if they'll bite?
 
Good Barb ! actually it seems that for the average T2 the really helpful effects of Metformin on blood glucose are not terribly evident until 1500mg is established. Of course - your husband may not be average - there's only one way to establish that! (Test, LOL)

By the way - oranges are one of the most carb containing fruits there are! Berries are about the lowest but you still can't pig out on them LOL Pus of course, it's worth knowing that eating fat with carbs, slows the carb absorption down a bit - which can be helpful when you don't want them to hit your bloodstream like an express train. So eg boiled rice = Pendolino, fried rice = Stephenson's Rocket, sort of ! So a small portion of strawberries with a glug of cream ....... etc.
 
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