Hmmmm ... Nathan hates life

[Tina63]

Oh and re the counselling. My lad broke down at school one day a few months after diagnosis. I think we are really lucky having a school nurse (well only first aider really) who realised my son was in crisis and contacted his DSN directly, letting us know afterwards what she had done. He had started visiting her every day, then not wanting to leave the security of her office. Getting him out to school was difficult for a start, and I do wonder how things will go when he goes back after such a long break, but bless her, she realised he was struggling, so through the DSN they got the psychologist appointment sorted.

Through consultation with him they agreed to meet at school so that it could be totally private for him, and she did go back and visit him a second time at school. At our last clinic appointment (June) he was told she was there if he would like a chat, but whether embarrassed that I was there, or whether he genuinely didn't feel the need, he declined the offer. It certainly settled down his anxiety though and I have seen various pieces of literature she gave him. Whether he has read any of it is another thing altogether.....!

I just wonder if it is worth you making a private call to Nathan's DSN and spelling out how low he is at the moment and ask for some help. It certainly settled my boy down, and I appreciate things are different, but it got rid of lots of his anxiety after only a couple of sessions.

 

[Twitchy]

Hi All ... 🙂

As for support re carb counting, DAFNE course ... he/we dont carb count, never been taught, and as Nathans HBa1c has always been between 6.5 and 7.5 we were told it didnt need changing, Support for Nathan and his diabetes has never happened or we did apply for counselling and were told he didnt fit the criteria, even though it is proven that diabetics need this support. His main and only source of support has been me .. and till of late he could talk to my best friend, who sadly passed away. He has a didficult relationship with his dad .. we divorced when Nathan was 4 .. and he constantly lets him down ..
Heidi xx 🙂

Hi Heidi,

I'm so pleased you had a good day, and that Nathan is switched on enough to recognise for himself the link between eating 'proper' food & feeling well, those are so positive! 🙂

I can't believe you've been so badly let down by your diabetes team re carb counting etc though - that's appalling, and to me sounds like a cop out (just my opinion though!)! Ok, he might have a good hba1c now, but how the heck are you guys supposed to know what/how to tweak the next time he wants to take up a new exercise/sport, is ill, has a change of lifestyle pattern (ie maybe the changes between term control & hols control are why he's not feeling great at the mo?) or has a growth spurt?! I just wonder how the heck they think he is supposed to feel even remotely in control (& therefore positive about) his diabetes if they don't give him the tools to manage it effectively?? He's presumably going to need to know at some point...

Maybe it would be worth going back to his team, raising those points & asking them to help him? I know my attitude to my diabetes changed massively once I felt I could actually influence things a bit! 😱

Either way, I hope things settle positive for you both & he gets the results he wants, will be thinking of you both! xx