I don't know what I would do without this group. You are all so experienced and probably know more about diabetes than the GP. I did call the surgery today and got appointment with DN for Thursday. I will feedback to the group if you don't mind. Apparently I would have been invited to attend groups at the hospital with a dietition. However, I have unfortunately missed out on this due to the pandemic. I have to admit, I am really struggling.@Toffee1 if you really are curbing the carbs and testing around meals as suggested does not indicate a huge rise after eating, then you could have been misdiagnosed and could actually be slow onset Type 1. As others have said, the levels you are currently running are dangerous and apart from causing you distress with the itching and running to the loo, could be causing permanent damage.
The sooner you make that appointment the better. At the same time query your diagnosis.