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Hi, new ( but actually returning )

FelicityLemon

FelicityLemon

New Member
Relationship to Diabetes
Carer/Partner
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She/Her
Hi , reintroducing myself under new profile and name. Haven’t posted for over 10 years and a few of you may remember me under my old name
My daughter was diagnosed T1 in 2010 when she was 11. She was misdiagnosed by GP for some time and by the time she was diagnosed she already had eye damage and needed cataract surgery when she was 13. She wasn’t supported by her school and we ended up home educating her from 13 to 16.
She’s 26 now!
The reason I’m back now is because I’ve had to become her carer since she had Covid in 2020, she has been diagnosed with post viral syndrome which for her means lots of different complications effecting her breathing and cognitive problems . In the last year she had also developed digestion issues which are suspected as Gastroparesis but we are still going through diagnosis a year after first reporting to the GP. I’m trying to find information on living with Gastroparesis, post viral syndrome and T1 as she currently is unable to work even from home in admin jobs, and mostly stays at home. Before Covid she was studying to go into drama but that has been on hold for 5 years now.

She uses the Libre 2plus which we find frustratingly inaccurate and MDI Tresiba and that old faithful (can you hear the sarcasm?) Novorapid. Oh she also has underactive thyroid ( and did I mention , a useless GP)
I found this forum a huge support when she was first diagnosed and when we had so much trouble with her school. Thanks for reading
 
Welcome back @FelicityLemon

Goodness! Sorry to hear what a difficult time your daughter has been having, and the ongoing effects of post-viral fatigue :(

That must be devastating for her, and you too.

Gastroparesis can be very tricky to manage. A member here @AJLang has been managing it amazingly for years, and may have some tips? I think the additional delivery options and flexibility of an insulin pump have helped her.
 
Last edited:
everydayupsanddowns said:
Welcome back @FelicityLemon

Goodness! Sorry to hear what a difficult time your daughter has been having, and the ongoing effects of post-viral fatigue :(

That much be devastating for her, and you too.

Gastroparesis can be very tricky to manage. A member here @AJLang has been managing it amazingly for years, and may have some tips? I think the additional delivery options and flexibility of an insulin pump have helped her.
Click to expand...
Hi Mike , thanks for the reply I will do a search for relevant posts.
 
FelicityLemon said:
Hi Mike , thanks for the reply I will do a search for relevant posts.
Click to expand...

Incidentally, if you can remember your old profile name/email I’ll happily merge it with your new account (or delete it) as our guidelines ask members to only have one account on the forum for clarity.

Feel free to send me a private message if you can remember your previous details 🙂
 
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