FelicityLemon
New Member
- Relationship to Diabetes
- Carer/Partner
- Pronouns
- She/Her
Hi , reintroducing myself under new profile and name. Haven’t posted for over 10 years and a few of you may remember me under my old name
My daughter was diagnosed T1 in 2010 when she was 11. She was misdiagnosed by GP for some time and by the time she was diagnosed she already had eye damage and needed cataract surgery when she was 13. She wasn’t supported by her school and we ended up home educating her from 13 to 16.
She’s 26 now!
The reason I’m back now is because I’ve had to become her carer since she had Covid in 2020, she has been diagnosed with post viral syndrome which for her means lots of different complications effecting her breathing and cognitive problems . In the last year she had also developed digestion issues which are suspected as Gastroparesis but we are still going through diagnosis a year after first reporting to the GP. I’m trying to find information on living with Gastroparesis, post viral syndrome and T1 as she currently is unable to work even from home in admin jobs, and mostly stays at home. Before Covid she was studying to go into drama but that has been on hold for 5 years now.
She uses the Libre 2plus which we find frustratingly inaccurate and MDI Tresiba and that old faithful (can you hear the sarcasm?) Novorapid. Oh she also has underactive thyroid ( and did I mention , a useless GP)
I found this forum a huge support when she was first diagnosed and when we had so much trouble with her school. Thanks for reading
My daughter was diagnosed T1 in 2010 when she was 11. She was misdiagnosed by GP for some time and by the time she was diagnosed she already had eye damage and needed cataract surgery when she was 13. She wasn’t supported by her school and we ended up home educating her from 13 to 16.
She’s 26 now!
The reason I’m back now is because I’ve had to become her carer since she had Covid in 2020, she has been diagnosed with post viral syndrome which for her means lots of different complications effecting her breathing and cognitive problems . In the last year she had also developed digestion issues which are suspected as Gastroparesis but we are still going through diagnosis a year after first reporting to the GP. I’m trying to find information on living with Gastroparesis, post viral syndrome and T1 as she currently is unable to work even from home in admin jobs, and mostly stays at home. Before Covid she was studying to go into drama but that has been on hold for 5 years now.
She uses the Libre 2plus which we find frustratingly inaccurate and MDI Tresiba and that old faithful (can you hear the sarcasm?) Novorapid. Oh she also has underactive thyroid ( and did I mention , a useless GP)
I found this forum a huge support when she was first diagnosed and when we had so much trouble with her school. Thanks for reading
