Hi everyone
Thanks for your messages and support. I was diagnosed in June 2006 after a period of being unwell which probably included undiagnosed Epstein Barr virus.
The usual happened - extreme and worrying weight loss, extreme thirst, craving for sweet or thirst quenching foods and drinks and stomach problems. T1 doesn't run in my family so I was referred to the colo-rectal department of my local hospital (my dad had bowel cancer at the time).
Fortunately, as luck would have it, I was seen by a Registrar who had T1 himself and did an impromptu blood glucose test with his own monitor! What are the chances of that happening? I scored over 40 and ended up in the Diabetes unit. One of the few times in life where a high score = bad.
After 4 years of injections I went onto the pump which I found life-changing and since followed up with CGMS which I pay for myself and is again life-enhancing. I had a bad hypo which caused me to go onto the CGMS, my husband had to trouble shoot when I was unconscious and not breathing properly on the sofa, and it scared us both.
Currently I feel very much on the diabetes treadmill, I think because I have started to have troubles with the Dawn phenomenon whereby I am very insulin resistant in the mornings. This has led to me giving up breakfast which I hope is a temporary solution! The insulin resistance is not every day, it seems to be hormonal, so I can't make big adjustments or predict it. However I've just had a banana with seemingly no ill effects so today is a good day!
I made a good friend on the DAFNE course who is my 'diabetes twin' - we were both diagnosed in our thirties and are the same age, living in London. She is a great support to me and we are planning to celebrate our 20 year diaversary together (that's 10 years each but sounds very good added up!).
I also enjoy reading blogs by other T1s as it normalises the whole experience. I know there are people out there like me who do the best they can and are able to locate their sense of humour when things get tough.
That's my story.