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Hi anyone got experience of type 3c diabetes

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I agree with @Lily123 She is not diabetic, so her insulin production is not the issue. Her HbA1c would likely be over 100 to be getting those sort of symptoms from diabetes and 27 is a really good normal number.

You need to press for further testing to identify the cause of those symptoms but I would say that they are not caused by diabetes with an HbA1c that low.

Obviously, if she has been unable to digest her food then that will cause her to become very thin and it will take time for the Creon to allow her to build back up. Is she taking enough Creon? I understand that the worst that happens if you take too much is that you become constipated but too little and not only doesn't it work but I believe you have urgent explosive toilet visits.... if you are lucky enough to make it to the toilet. The right amount of Creon is very much trial and improvement from what I have read. Could the thirst be down to dehydration. Is she managing to eat and if so, what is she eating and does she take the Creon with every meal?

I can totally understand how worried you must be but unless her HbA1c and finger prick were done some time before these symptoms started happening then I think diabetes is a red herring, but that doesn't mean that these symptoms should not be investigated by your doctor as she is clearly unwell.
 
@rebrascora and @Lily123 - thanks for these thoughts.

Is there any possibility that 3c presents differently, or would these results rule it out? (I suspect so; just learning!)

Presumably something else is causing these symptoms which look similar to diabetes. She has been on Creon with every meal successfully for several months; knows how to use it well. She has always been good about drinking plenty of water throughout the day. A few days ago, she developed a huge thirst; no matter how much she drinks she is still craving water. Mouth and throat very dry; can't be helped no matter how much she drinks. This is new. Frequent urination (not surprisingly). Fatigue which was already present has got worse since these symptoms started. Even with Creon and eating well she can't gain weight.

I will talk further to GP next week. Thanks for all the information.
 
Bryonia said:
@rebrascora - Hb1Ac result has come in on my daughter's MyChart. It was 27, so well in the normal range. The 2 blood tests are normal, but we know the pancreas isn't working properly (pain and needs Creon every meal). In past few days, new symptoms of severe thirst, frequent urination, weakness, very thin and can't gain weight. Perhaps the next step is to ask GP next week to test level of insulin in blood?
Click to expand...

As those symptoms of thirst frequent urination & weakness have come on last few days I'd be seeing someone sooner than next week, meaning more like tonight or tomorrow at latest. Good luck.
 
Has the GP tested for ketones? These are chemicals that build up in the body when blood sugar is too high. These can be caused by other things as well
 
Bryonia said:
@rebrascora and @Lily123 - thanks for these thoughts.

Is there any possibility that 3c presents differently, or would these results rule it out? (I suspect so; just learning!)

Presumably something else is causing these symptoms which look similar to diabetes. She has been on Creon with every meal successfully for several months; knows how to use it well. She has always been good about drinking plenty of water throughout the day. A few days ago, she developed a huge thirst; no matter how much she drinks she is still craving water. Mouth and throat very dry; can't be helped no matter how much she drinks. This is new. Frequent urination (not surprisingly). Fatigue which was already present has got worse since these symptoms started. Even with Creon and eating well she can't gain weight.

I will talk further to GP next week. Thanks for all the information.
Click to expand...
It would be worth getting some ketone urine dip sticks from the pharmacy to test for ketones which would be an indicator of something not right and also retesting her blood glucose to see if high now.
Things can change quite quickly. I would ring 111 and ask for advice or go to A&E to get checked.
 
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