• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Hi all

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Like @SB2015 I use BD Microfine 4mm needles and have heard others have problems with other brands and lengths etc x
 
Hi Anj and welcome to the forum from someone who is possibly MODY too. I have been struggling since diagnosis 20 months ago, I am rarely in single figures, and am normally between 10-15 most days. I am not on insulin. I asked to be referred to the hospital team back in October but they wouldn't do it at the time, they finally agreed to refer me in February and I have my first appointment at the hospital this Friday. I have never been officially diagnosed as MODY so am hoping I will get more answers after Friday.
 
SB2015 said:
Hi Anj

Firstly welcome to the forum. A good place to simply ask questions as there are a lot Of very knowledgable and helpful people around on here.

It is no surprise that you feel tired if you BG levels are running so high all the time. I am surprised that the private consultant told you to stop correction doses. Did he explain why?

You mention that you have a fixed dose for your quick acting insulin. Does that mean that you eat exactly the same number of carbs at every meal. I know mine change on a daily basis so getting the carb ratio right was very important, and this was not giong Otto be possible until I sorted my basal insulin, as that is dealing with the glucose that my body is releasing, whilst the quick acting is dealing with the carbs that I eat. I certainly find keeping a record of the carbs and insulin given, along with time and BG helps me to spot patterns.

With the pump, it is common for clinics to require people to do the DAFNE course first as it is the skills around carb counting, and adjusting basal rates, carb ratios and correction doses that you will need to understand in order to make effective use of the pump. There are also a lot of areas where they can no longer get access to DAFNE so I am pleased that you have that booked in.

The longer that you have diabetes the more resistant you can become to insulin, so doses and ratios need adjusting throughout. If you have been running high for a while this may also have had an impact.

I hope that you can get things sorted out.
Click to expand...
Hi, thanks for your message! No he didn't say why just said that I need to stick to a stable regime! I take my fast acting according to my ratio but it seems to make very little difference. I wonder if there maybe an underlying issue with my liver? It's frustrating as I was told I was on a waiting list for the pump and I wasn't. The next course isn't available until July and I am due to start uni in September so really wanted to get everything in place. I just feel exhausted all the time!
 
SB2015 said:
Ps
When on pens for my insulin, I used to inject left thigh for breakfast left tum for lunch, right tum for evening meal and right leg for bedtime. That way I moved things around and I also made sure that I kept moving the site on each of the places to avoid lumps and bruises.

Another thought is what needle length are using. I started on 8 mm which hurt quite often. I now use 4mm which are much better, and I make sure that they BD microfines (not GlucoX which the GP practice tried to swap me to which were nowhere near as good and smooth)

I hope that helps
Click to expand...
I also use 4mm BD and have had no problems previously so it's strange how this has just started!
 
sunny sanghera said:
Hello anj welcome to the forum it can be a overwhelming condition I have suffered from loads of low sugar levels getting bit better now tho I try to hard to get it in the middle so that's why this happens it's like fighting a war
Click to expand...
I totally agree it is like a daily battle! I'm so glad I am not alone! Just feels like I'm getting nowhere! Thanks for your message!
 
Stitch147 said:
Hi Anj and welcome to the forum from someone who is possibly MODY too. I have been struggling since diagnosis 20 months ago, I am rarely in single figures, and am normally between 10-15 most days. I am not on insulin. I asked to be referred to the hospital team back in October but they wouldn't do it at the time, they finally agreed to refer me in February and I have my first appointment at the hospital this Friday. I have never been officially diagnosed as MODY so am hoping I will get more answers after Friday.
Click to expand...
Hi, I'm the same they are unclear! I had a lot of blood test done last week, once I get somewhere I will let you know and maybe you can request similar tests! We should know as MODY from what I can understand is very different to other types! I hope you get sorted soon as this is really horrible to go through!
 
Welcome Anj to this forum. I have recently joined and received so much great knowledge and encouragement, it is certainly the place to be.
 
So sorry to see you are struggling anj - with being T2 I'm unable to help or advise you, I'm sorry - but you'll receive lots of information from the T1's and MOBY'S on here - I just wanted to wish you a warm welcome to our forum and to hope your diabetes issues are sorted out for you very soon, take care x
WL
 
wirralass said:
So sorry to see you are struggling anj - with being T2 I'm unable to help or advise you, I'm sorry - but you'll receive lots of information from the T1's and MOBY'S on here - I just wanted to wish you a warm welcome to our forum and to hope your diabetes issues are sorted out for you very soon, take care x
WL
Click to expand...
Ah thank you so much, that's very kind of you x
 
Hi Anj, with BG levels like that it's not surprising you're feeling rough.
I'm not a MODY so can't comment directly, but...
Your GP seemed surprised by your levels (as he should be - they're very high) but did he follow up with a referral to see your local Diabetes specialists? If not, who is going to review your test results?
I assume your GP is responsible for your prescription and your well being?
 
zx10pilot said:
Hi Anj, with BG levels like that it's not surprising you're feeling rough.
I'm not a MODY so can't comment directly, but...
Your GP seemed surprised by your levels (as he should be - they're very high) but did he follow up with a referral to see your local Diabetes specialists? If not, who is going to review your test results?
I assume your GP is responsible for your prescription and your well being?
Click to expand...
Hey, thanks for your message. I've been messed about by my community diabetic nurse so it's all been done a bit back to front! I've paid to see a consultant privately as a one off and am hoping to get an insulin pump, problem being that I am not booked onto DAFNE until July! I have had a load of blood tests done last week as I get the feeling he thinks something but be underlying. It's a horrible feeling, I see your HBA1C level has come down a lot! Did you also feel awful with the high sugars? At times I feel I am going a little insane!
 
I felt spectacularly rough - tired all the time, no energy, couldn't concentrate, blurred vision, permathirst and losing weight... all the typical hallmarks of D. Thankfully I've had loads of help and got more stable now but my diet is pretty boring. For me though, boring is predictable 🙂
I don't know the difference between MODY symptoms & what I had except that high levels must give similar effects?
 
Welcome to the forum 🙂
Sorry you're having such a rough time, I'm not surprised you feel so awful if your sugar levels are so high, I really hope you get some proper help.
 
zx10pilot said:
I felt spectacularly rough - tired all the time, no energy, couldn't concentrate, blurred vision, permathirst and losing weight... all the typical hallmarks of D. Thankfully I've had loads of help and got more stable now but my diet is pretty boring. For me though, boring is predictable 🙂
I don't know the difference between MODY symptoms & what I had except that high levels must give similar effects?
Click to expand...
That's exactly how I feel, just rotten and really out of sorts! I really need to get my health back on course! I hope in time my levels can reduce as yours have. They only told me last week that MODY has not been confirmed despite telling me for years that's what I have! I'm really trying to stay positive and hope things will get better! Thank you for message.
 
anj said:
I totally agree it is like a daily battle! I'm so glad I am not alone! Just feels like I'm getting nowhere! Thanks for your message!
Click to expand...
We all feel like that at times I treat it like a tug of war pulling one side then getting dragged the other side but no side is safe all you can do is try your best
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top