Hi all I have been diagnosed with prediabetes and my husband with diabetes type 2 plus he has just received a probable diagnosis of motor neuropathy.

[Midsummer]

Does anyone have any experience of living with peripheral neuropathy?

Although my husband’s diabetes is controlled with medication and he attends all associated diabetes tests biannually, we’re shocked that this condition has been left undiagnosed for over nine months by our GPS despite frequent calls to our practice as he weakens. He is due to have an electromyography procedure and MRI on his spine. He has currently muscle wastage and nerve damage in hands feet arms legs with symmetry either side. I now shower and dress him daily and last week shaved him for the first time.

 

[trophywench]

Goodness! I don't know very much about such things but you and he must surely be able to claim disability benefits, carers allowance or whatever?

 

[Midsummer]

Thanks for your response. Our GPs did not pick up this despite 9 months of my husband getting weaker and weaker. I will look into what if anything we qualify for. At the moment I’m just thrilled we’ve had a stairlift fitted by Acorn a British manufacturer within 2 days or placing an order. I used to get excited with handbags and shoes but now it’s disabiliy aids!! The West Sussex Adult Community Neurological team have been fantastic as has our consultant who made this probable diagnosis within minutes of examining Steve!!!

 

[Docb]

The suggestion I make to anybody who becomes a carer is that they explore carer services in your county. Simply googling carer services and you LCC should turn up who is doing it in your area. It's a bit of a post code lottery (some CC's spend more than others) but if you are in a good area it could be a useful resource for you and give you a route for finding out what is available to you and what allowances you are entitled to.

 

[Midsummer]

The suggestion I make to anybody who becomes a carer is that they explore carer services in your county. Simply googling carer services and you LCC should turn up who is doing it in your area. It's a bit of a post code lottery (some CC's spend more than others) but if you are in a good area it could be a useful resource for you and give you a route for finding out what is available to you and what allowances you are entitled to.

Excellent advice as hadn’t thought of myself as carer! Thanks

 

[Docb]

Hope you get somewhere @Midsummer. As a bare minimum you should get a Carers Assessment which will help you work through the issues involved.

 

[everydayupsanddowns]

Sorry to hear about your husband’s nerve damage @Midsummer

Hope you are able to access some support to make things easier for you as a household.

Are you aware of his most recent HbA1c? And do you know which medications he is taking?

 

[mikeyB]

I think I have just sent a long message to your husband, who has braved the forum this morning. Have a read of my response, I’m the token severe motor neuropathy experiencer on the forum.