Hero to zero in three weeks

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Hi all, I returned from 6 week away & my weight was as all ways 83/5kg. A week later I started three visits to the loo, guzzling fresh orange & tonic. My mouth felt like a fur coat, I knew things were not good but felt well. I still feel great but have now been told I have Diabetes as yet unknown type one or two bummer. This all happened in three week which is a little concerning to be honest. My status now is I'm injecting ABASAGLAR once a day & my numbers have come down from 22.7 to averaging mid teens. I see the DB nurse just after Xmas & she seems happy. Any comments would be appreciated, but please keep it simple I just know what my blood meter tells me.
Many Thanks.
 
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No problem 🙂 Abasaglar is a long-acting insulin, as you probably know. People are usually started on less than they need and the dose is built up gradually as needed.

Have they done any extra blood tests to help work out which type of diabetes you have? Those tests would usually be the Type 1 antibodies and a C Peptide test.
 
So far I have seen the acute Doctor & he said that I'm looking at type 1, but at the time the reading were just under. It's early days in my journey & I would rather not be a DB but it's a fact I'm going to get on with. They are arranging a CT scan to see what's going on with my Pancreas, I assume this will be to see if I have any Cancer? Regarding the Abasaglar I am on 14? what ever. Thanks for the interest.
 
All the best @Oldandugly , it’s a trial but manageable.
which reading was just under?
If you are type 1 and you are not injecting for the food you’re eating and considering you are reading mid teens you might want to consider slowly reducing carbs.
I hope you get to see professionals before Xmas for support.
 
So far I have seen the acute Doctor & he said that I'm looking at type 1, but at the time the reading were just under. It's early days in my journey & I would rather not be a DB but it's a fact I'm going to get on with. They are arranging a CT scan to see what's going on with my Pancreas, I assume this will be to see if I have any Cancer? Regarding the Abasaglar I am on 14? what ever. Thanks for the interest.
Just as an aside, whilst a CT scan can show up any cancer in your pancreas, it can also show other things, like cysts, or even just a reassurance that there aren't any nasties.

On the upside, it looks like your medics are really checking you out.

It isn't ever easy being patient (or even being a patient), but stick with it.
 
Hi @Oldandugly. You’re not alone! I was diagnosed in August at the age of 56 completely out of the blue. We’d been away but I was peeing every hour, losing weight and extremely thirsty. The doctor did blood tests and my glucose was high 20s, HbA1c about 137 so was sent straight to the diabetes clinic. They gave me insulin and the relief was almost immediate. I’m now on 14 units basal insulin with Fiasp quick acting insulin to match carbs.

I was also sent for a CT scan and spent weeks thinking the worst. All clear - I’m not ashamed to admit I actually shed a tear.

It’s all a shock and is still taking time to get to terms with it all but each day gets easier. Please let us know how you get on and don’t be afraid to ask any questions.
 
Hi @Oldandugly , welcome to the forum.

Just echoing the sentiment of others' lovely replies - really hoping you get some support before the Christmas period.

Please do feel very welcome to check back in and let us know how you get on.

Once your doctors hopefully determine which type of diabetes you're living with, there's lots of information available on our Learning Zone (orange tab at the top of this page); our website, and the lived experiences of those on this forum, which can help empower you with learning about your diabetes. If you have any questions at all, feel free to ask! 🙂
 
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, I returned from 6 week away & my weight was as all ways 83/5kg. A week later I started three visits to the loo, guzzling fresh orange & tonic.
Just to say that fresh orange and tonic are not the best things for a person with diabetes to be drinking. Fresh orange is used by a lot of people with diabetes to correct low blood sugar. Tonic also contains sugar. They will both raise your sugar levels and that in turn will make you feel more thirsty. So try drinking water instead.
 
Many thanks all, I’ve never been in a club/ group before so having this much interest is wow. I will be posting again, on the side I had my first low reading today 7.4 result!
Hi @Oldandugly,
My intro to Diabetes was not standard and my knowledge and experience is limited. But reading through this thread and your 4 posts, what was your HbA1c reading when you were diagnosed? This will have probably been a number in excess of 47 and possibly a lot greater with the outcome of putting you straight onto Abasaglar.

My instinct is to agree very much with @mitchsi. Until you have a better defined diagnosis leading to refinement of your treatment plan I think, from my non-medical perspective, that you should be trying to reduce your current carb intake and so help your pancreas manage your blood glucose better. Your abasaglar is doing its bit in helping you manage your background glucose production - this comes from natural releases of glucose mainly by your liver and triggered by normal hormonal activity, such as adrenaline and cortisol; but background insulin would not normally help with glucose from food. But I would suggest just modest changes to your current diet by some reduction and not an all out curtailment of carbs. A dramatic change is simply not a good thing, so just more gentle tweaks with, say, portion sizes of high carb foods such as potato, rice and pasta as well as more obvious high glucose cakes, deserts and other things.

Just make sure that you let the DB nurse that you are seeing after Xmas that you have started on a reduction of carbs - so that nurse understands that any improvements from now on are not just because of the Abasaglar!
 
No problem 🙂 Abasaglar is a long-acting insulin, as you probably know. People are usually started on less than they need and the dose is built up gradually as needed.

Have they done any extra blood tests to help work out which type of diabetes you have? Those tests would usually be the Type 1 antibodies and a C Peptide test.
Hi all, I am on 14?? of ABASAGLAR, the acute doctor (we all love that word acute) stabbed me with 10? & my DB nurse upped it. On the upside I seem to be getting it down to 9 &13 during the day & 6 & 8 in the morning, so I think we are on the right road. I have today received a Freestyle 2 from the GP so tomorrow I will be going large with the technology, lets just hope a stray signal doesn't keep upping the central heating! PS what's & where is the HbA1c reading your all asking for?
 
Hi all, I am on 14?? of ABASAGLAR, the acute doctor (we all love that word acute) stabbed me with 10? & my DB nurse upped it.

Insulin is measured in ‘units’ @Oldandugly - not very descriptive, but it means insulin can be dispensed consistently even if it is different strengths. Most insulin is u100 (100 units per ml), but u200 and even stronger formulations are available, meaning the same number of ‘units’ can be administered in a fraction of the volume of liquid.

On the upside I seem to be getting it down to 9 &13 during the day & 6 & 8 in the morning, so I think we are on the right road.

Great to hear! Onwards and downwards 🙂

I have today received a Freestyle 2 from the GP so tomorrow I will be going large with the technology, lets just hope a stray signal doesn't keep upping the central heating!

Hope you get on well with it. There are lots of experienced sensor users on the forum, including @helli who penned this handy list of precautions and factors in interpreting sensor data that can be worth bearing in mind.

PS what's & where is the HbA1c reading your all asking for?

HbA1c is usually the result of a vial of blood taken from your arm. It measures changes in red blood cells depending on their exposure to glucose in the bloodstream. Since red blood cells last for approx 90-120 days, an HbA1c is a way of indicating general glucose concentrations 24hours a day, 7 days a week, over the past 3-4 months. Your surgery should give you your results (but may need a nudge!). You can also get results delivered to your NHS app (if you use a smartphone or tablet).

Generally HbA1c will be measured 6 monthly or perhaps 3 monthly in the early years.

Even after many years of diagnosis, it would usually form part of your annual diabetes review.
 
Hi all & thanks again for all your input. I have looked at my NHS app but don't see the numbers anywhere but will look again later. As you know I have the Freestyle fitted, the breakfast today was 1 Weetabix, 6 blueberries, 4 raspberries & a tea with semi milk. I understand that the body will process this & my numbers will rise, I assume this is normal & I don't need to do anything? My numbers went from 7 over night to 14 after my measly breakfast is this the norm ?
 
Hi all & thanks again for all your input. I have looked at my NHS app but don't see the numbers anywhere but will look again later. As you know I have the Freestyle fitted, the breakfast today was 1 Weetabix, 6 blueberries, 4 raspberries & a tea with semi milk. I understand that the body will process this & my numbers will rise, I assume this is normal & I don't need to do anything? My numbers went from 7 over night to 14 after my measly breakfast is this the norm ?
Morning @Oldandugly. Yes, it’s normal that numbers rise after a meal containing carbs - the Weetabix and milk will cause a rise but the berries will act more slowly as they have a low GI (glycaemic index). Once you are on fast acting (bolus) insulin, you will need to count the carbs and inject insulin appropriately. Personally, I have porridge, berries and a slice of toast with peanut butter which is about 69g carbs and I inject 5 units of Fiasp insulin. Depending on what then do, be active or sit on my backside at work, my blood glucose rises a little from about 6 to 9 mmol/l and back to normal after about 2-3 hours. This morning, however, same breakfast, same insulin but sat on my backside in a call and rose to 14. So, you’re not alone!! To manage it, I go for a 10 minute walk and it comes straight back down to 6-8 mmol/l. It’s a balance of current levels, carb intake, insulin injection and level of activity. At first, it’s enough to make your head roll off your shoulders but after a while it’s like an ongoing chemistry experiment. My wife calls it my superpower but I’m not sure I’m ready to accept that just yet. 🙂 Re your data, try logging onto Libre View as it’s a much better display of all your data and you can see trends and actions taken to help your understanding. It’s what your doctor and diabetes nurses will refer to every time you have an appointment. Keep going - it gets easier.
 
Hi all & thanks again for all your input. I have looked at my NHS app but don't see the numbers anywhere but will look again later. As you know I have the Freestyle fitted, the breakfast today was 1 Weetabix, 6 blueberries, 4 raspberries & a tea with semi milk. I understand that the body will process this & my numbers will rise, I assume this is normal & I don't need to do anything? My numbers went from 7 over night to 14 after my measly breakfast is this the norm ?
Hello again @Oldandugly,
I am keeping in mind that you don't yet have any confirmation of your diabetes Type and you are currently only in abasaglar insulin which is a basal or background insulin (if you are also taking oral meds I have missed that detail and if so please update (remind) me). I am also assuming your original blood test which gave you an HbA1c reading was high (ish) to necessitate starting you on a basal straightaway. So my reply has to be read with the caveat there is still a lot not known about your D status.

One further unknown is whether you also were given a finger prick test kit as soon as you were prescribed the insulin? Again I assume you were, since that would be normal for anyone prescribed Insulin. If you were given this modest aid - were you given any guidance on when and how often you were expected to test? Similarly when you were prescribed the Libre 2 Continuous Glucose Monitor (CGM) were you asked to review the Freestyle tutorials? Even having been through those tutorials here are limitations about the use of CGM; have you been alerted to those? These might seem a small raft of questions rather than an answer to your very relevant question - but understanding what you are already aware of in terms of testing, will help explain more about those results you are seeing.

As I said previously our bodies release glucose from the liver store for a number of different reasons, pretty well automatically triggered by natural enzymes and hormones and certainly most people are unaware this is happening - unless we are frequently finger pricking or in your case now able to see regular CGM readings and look back at daily graphs etc.

In the mornings many people experience an increase in BG even before they have touched a morsel of food. This can be in the late small hours and formally recognised as something called the Dawn Phenomena (DP) or as soon as you get out of bed and is described as the Foot on the Floor syndrome (FOTF). For those people who are prescribed Insulin, this raised BG is normally managed by a short acting insulin (known as a bolus insulin - which is NOT the same as your basal Abasaglar). Otherwise its managed by reduced carb eating, plus possibly exercise and activity. If this is confusing, (eg why isn't managed by basal?) I'm afraid it is because the DP and FOTF don't occur in everyone, nor do they necessarily occur every day and their frequent but irregular appearance need managing on those days when necessary - but not absolutely every day which your Abasaglar is intended for.

DP and FOTF have had extensive research over more than 30 years, but its probably fair to say they ate still not fully understood. Diabetes is Complicated, Confusing and Contradictory. You are already on the edge of this world with your current uncertainty about your type of Diabetes.

Your question
I understand that the body will process this & my numbers will rise, I assume this is normal & I don't need to do anything?
is fair: without you having a quick acting bolus insulin you don't have a medical way of treating such rises. However reasonable exercise and activity can and often does help most of us to push our BG down.

breakfast today was 1 Weetabix, 6 blueberries, 4 raspberries & a tea with semi milk.
One other way is to look for a much lower choice of breakfast items. 1 Weetabix and milk are not extremely high, but there are far lower carb possibilities. Eggs, mushrooms and cheese immediately spring to mind - so an omelette will be effectively zero carbs, as will bacon and scrambled eggs (but without any toast or bread). There are many low carb breakfast options.

Right now, because you have no other way of managing tour diabetes low carb food choices, if possible also with exercise and activity are your only sensible way forward - until you get a quick-acting or bolus insulin prescribed. BUT a word of caution here:

Because you already have a basal insulin if you go into a too low carb eating regime you have a potential vulnerability of your BG going too low and getting into a hypoglycemic state (officially a hypo is 3.5, but 4.0 is considered the low point, giving a tiny margin of tolerance) ("4 is the floor"). However if your Libre is used to best effect then you can (and in my opinion should) set the LOW alarm on your libre to 5.6 - which is the top of thepossible low settings. Then Libre alarm is rather more a low "Alert", giving you warning that your BG is falling (but still a decent way from a real low =4.0). Whatever you set on your alarm / alert you should always carry a hypo response snack, such as Dextrose, a small carton of orange juice or full carb Coke, or a few jelly babies (or similar; 3x JBs =15gm carbs, the recommended initial hypo response). Hypos are frequently avoidable with the tech available to us today.

I did say Diabetes is Complicated, Confusing and Contradictory.! Whether you end up diagnosed as T2 or T1 you will end up doing some juggling in the early stages as you get your mind around the what and whys of managing your D. There is a wealth of experience on this forum that will readily step forward to offer gentle advice and share those experiences. Alas such advice is frequently not found from the NHS presumably because of their overload - rather than wilful neglect of patients! Good luck.
 
Hi, as the fountain of all knowage, I understand that is early days & it's not as simple as I would like, but as you well know it is what it is. I have a call from the DB nurse on the 28th so until then I seem to be ok & I guess it will all become clear!
Does it matter much if my BG pop up to 10/12 for an hour or two, or should it really be within the margins 4-9?
I have Nova Rapid flexi pen which I have not been told to use, just on the Abasaglar once a day. I'm now eating three meals a day & my wife is trying to fatten me up, no idea what for, Christmas!
Any way again thanks for the info & help .
Alan
 
Hi, as the fountain of all knowage, I understand that is early days & it's not as simple as I would like, but as you well know it is what it is. I have a call from the DB nurse on the 28th so until then I seem to be ok & I guess it will all become clear!
Does it matter much if my BG pop up to 10/12 for an hour or two, or should it really be within the margins 4-9?
I have Nova Rapid flexi pen which I have not been told to use, just on the Abasaglar once a day. I'm now eating three meals a day & my wife is trying to fatten me up, no idea what for, Christmas!
Any way again thanks for the info & help .
Alan
Hi Alan. The target is 70% between 4 and 10 mmol/l so about 16 hours a day. It’s quite normal to be over that level but it’s advised to be no more than 10-13.3 for up to 20% of the time so about 4 hours a day. I’m often between 10 and 13 after a meal so don’t worry. The DB nurse will explain all.
 
Hi, as the fountain of all knowage,
Alan, very flattering, but absolutely not true! When I abruptly surrendered my panc'y I floundered for 9+ months then made it my business to know a certain amount more about my D and the what's and whys of it all. That gave me a better way of living than existing on a roller coaster of some very nasty hypos and seriously high highs.
I understand that is early days & it's not as simple as I would like, but as you well know it is what it is. I have a call from the DB nurse on the 28th so until then I seem to be ok & I guess it will all become clear!
You are absolutely right - it is what it is and we each somehow need to make the best out of something we wouldn't naturally choose as a lifestyle.

For the 28th I suggest you consider jotting down any questions and queries you encounter. It's surprisingly easy to forget something you really wanted help with, but in the adrenaline rush of the moment things slip out of mind (well they do for me).

One important question should be what exactly was your HbA1c? I don't understand why Health Care Professionals think it doesn't really matter and sometimes actively discourage patients from knowing. If the Nurse is reluctant to tell you, don't be fobbed off - it's your body, your data and you are entitled to be told.

If you turn out to be T2 your first HbA1c will not just be your academic / theoretical start point - but will be the target that you will want to improve on and give you (and if you choose to share with members of this forum) a sense of how far you have to go to get in a good place. An ideal place for T2 is achieving a degree of remission.​
If you are T1 your recent HBa1C will still be a marker for you, but with a decent insulin regime you should find that getting a lower HbA1c will naturally come from decent Time In Range (TIR). And you will feel good in knowing that you've made progress; remission from T1 can only be a theoretical wish today - unless there is an amazing discovery or totally unforeseen different treatment in the future.​
Does it matter much if my BG pop up to 10/12 for an hour or two, or should it really be within the margins 4-9?
@The_Bowlii has helpfully answered that. The reality is that today you are already in a better place than you were a few weeks ago, thanks to the introduction of Abasaglar and your own efforts with improved carb control. I'm less confident about whether the DB nurse will "explain" all. I really hope that does happen, but alas its not always so.
I have Nova Rapid flexi pen which I have not been told to use, just on the Abasaglar once a day.
Another question I suggest for the 28th: ask your DB nurse to give you the all clear to start using the NovoRapid when it is necessary.

From your perspective you are already getting used to the idea of once daily basal injections. To start taking the quicker acting bolus insulin might seem a further hindrance to your lifestyle, but if that extra insulin makes menu choices and concerns about BG responses after eating become less concerning then Multiple Daily Injections (MDI) should become a welcome step for you.

Should your final diagnosis be that you are T2, then you would be encouraged to stop MDI and oral medications will become your initial "nornal". As a T2 you will probably be already making enough insulin naturally and the problem is centred around getting your body to make better use of the natural insulin that is there and not adding to the excess of insulin you might already have.​
Should you be T1 then the extra insulin from both basal and bolus will, quite simply, be needed. As a T1 your production of insulin has become compromised and extra insulin becomes essential.​
I'm now eating three meals a day & my wife is trying to fatten me up, no idea what for, Christmas!
No problem with your wife trying to fatten you up, provided her catering for you just now is based around low carb and high protein choices - ie as if you are T2.
Any way again thanks for the info & help .
Alan
You are welcome and wishing you a smooth period through to the 28th. Good luck - and don't hesitate to ask if something else is concerning you.
 
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