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Help with gastroparesis ?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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Helenjmp

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Type 1
I'm t1 for over 30 years had lots of problems with my stomach recently and found out I am wheat and dairy intolerant and also have gastroparesis - just wondered if there was anyone who had similar any good advice ?? :confused:
 
Hi Helenjmp, welcome to the forum 🙂 We do have members who suffer from gastroparesis, so hopefully they will be along to share experiences. What insulin regime are you on? A pump can help a lot with keeping levels under control when digestion speed is erratic. Also, a Freestyle Libre sensor might be helpful in monitoring levels and spotting trends (although not yet available on the NHS).
 
Hi Helen welcome to the forum. I was diagnosed with gastroparesis five years ago after 39 years with diabetes. My doctor prescribes me Domperidone and erythromycin but said a year ago that she would prefer me to stop the erythromycin and only eat puréed food. Fortunately she let me continue withe erythromycin because I couldn't face only having puréed food. Having the pump made the most massive difference to me being able to control my gastroparesis BGS and my HBA1C is c.7.0 thanks to a six hour multi wave for my evening meal and giving myself extra basal between 2-4am to deal with the delayed food. Please do not hesitate to let me know if you have any questions.
 
Helenjmp said:
I'm t1 for over 30 years had lots of problems with my stomach recently and found out I am wheat and dairy intolerant and also have gastroparesis - just wondered if there was anyone who had similar any good advice ?? :confused:
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Hello Helen and welcome to the forum.
I'm gluten, wheat and lactose intolerant. Sticking to a GF diet is easy enough to do and so much healthier the lactose/ dairy is a pain but have found you can buy enzymes from health food shops with solve that problem as long as I don't go overboard with dairy products.
 
Hi just wondered if yr gastroparesis is looked after by yr gp or a specialist consultant? And do the tablets make a big difference. Thanks
 
Hi Helen
My gastroparesis is looked after by a diabetes consultant who specialises in gastroparesis. The medication helped lots for the first few years, bu it is a combination of good and bad days. I'm now finding that I can often only manage one meal a day without feeling very uncomfortable. If I didn't drink wine🙄 the weight would drop off of me.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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