• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Hello :)

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
jd89

jd89

Member
Relationship to Diabetes
Type 1
Hello, I have just joined..
I've had type 1 diabetes for 18 years, I don't know why I didn't join before!
 
Hello @jd89 welcome to the forum.

We don`t know either why you haven`t joined before but so glad you have.
Tell us a bit about yourself e.g. your insulin regime and any other medication
you are taking but only if you wish to.

You can use your experience to help others on the forum we look forward to it.
It works both ways so any problems just ask doesn`t have to be about the big D.
The Learning Zone is a great resource hope you find the forum as exciting as we do.
 
Hello. Better late than never. 🙂
 
ahh ok, so I've recently changed from novorapid to fiasp. I have had countless problems with my background insulin! Nothing seems to work, either I wake up in the 20s or I reduce the unit by 1 and I hypo all night. I'm now on degledec which I'm finding is slightly better than levemir but according to my freestyle libre I need a little boost around 4 hours after I go to sleep.
I've asked my doctor for a referral for the pump but she says I don't qualify for one. I'm a bit disappointed but also eager to find another way to conquer my nighttime troubles!
 
Welcome to the forum @jd89 Glad that you have joined us.

I was refused a pump the first time I asked. I raised them to explain why, and for a copy of the criteriathey were using. I then gathered data to address the issues that they raised. At my next review they agreed for me to have a pump.

The main reasons I argued were that
  • I was on small doses, so the pump allowed me to make finer adjustments
  • I was struggling to get hypo free during the night in spite of splitting my Levemir. With the pump I am able to programme it hour by hour
  • I was reluctant to exercise as much as it was proving difficult to make the necessary adjustments work.
I also got a copy of Pumping Insulin by John Walsh and read up on it all.

I hope that they will reconsider.
 
SB2015 said:
Welcome to the forum @jd89 Glad that you have joined us.

I was refused a pump the first time I asked. I raised them to explain why, and for a copy of the criteriathey were using. I then gathered data to address the issues that they raised. At my next review they agreed for me to have a pump.

The main reasons I argued were that
  • I was on small doses, so the pump allowed me to make finer adjustments
  • I was struggling to get hypo free during the night in spite of splitting my Levemir. With the pump I am able to programme it hour by hour
  • I was reluctant to exercise as much as it was proving difficult to make the necessary adjustments work.
I also got a copy of Pumping Insulin by John Walsh and read up on it all.

I hope that they will reconsider.
Click to expand...

I am exactly the same! Apart from I exercise excessively to try to keep my BGs down. I find that if I exercise for 1-2 hours per day my BG is much easier to manage than if I don't. The only problem is, Degledec takes a few days to adjust after you change the dose so I can't have 'days off' from exercise!
I've explained so many times to my consultant how I feel there is no background insulin that is right for me. I definitely prefer Degledec though, even though it doesn't have any flexibility. At the moment I just get up in the night to do a correctional dose (it has usually risen to around 16mmol), by morning it's never higher than 12. Which is much better than 20!
 
Welcome to the forum Jd89.
 
SB2015 said:
Welcome to the forum @jd89 Glad that you have joined us.

I was refused a pump the first time I asked. I raised them to explain why, and for a copy of the criteriathey were using. I then gathered data to address the issues that they raised. At my next review they agreed for me to have a pump.

The main reasons I argued were that
  • I was on small doses, so the pump allowed me to make finer adjustments
  • I was struggling to get hypo free during the night in spite of splitting my Levemir. With the pump I am able to programme it hour by hour
  • I was reluctant to exercise as much as it was proving difficult to make the necessary adjustments work.
I also got a copy of Pumping Insulin by John Walsh and read up on it all.

I hope that they will reconsider.
Click to expand...
Hello again, I just wanted to let you know that your post really helped me so thank you so much. I'm now on the waiting list for a pump!
 
jd89 said:
Hello again, I just wanted to let you know that your post really helped me so thank you so much. I'm now on the waiting list for a pump!
Click to expand...
That is excellent news @jd89
What pumps have you been offered ? There is bound to be someone on here on them so just ask any questions that you have. You might want to take a look at the book Pumping Insulin. Some of it wont make sense until you are on a pump but I found it very useful preparation.
 
SB2015 said:
That is excellent news @jd89
What pumps have you been offered ? There is bound to be someone on here on them so just ask any questions that you have. You might want to take a look at the book Pumping Insulin. Some of it wont make sense until you are on a pump but I found it very useful preparation.
Click to expand...
I’m getting the omnipod, I’m very excited! I’ll need to order that book, my nurse suggested it too
 
I look forward to hearing hw you get in @jd89
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top