Hello ;)

thespider198686

New Member
Relationship to Diabetes
Type 1
Hi there , newbie on the forum but a type one diabetic of 29years!! Been through the mill with the diabetes but believe with good control comes a good standard of living . Been in a lot of pain with neuropathy lately but find myself in a struggle to get any help with the ongoing pandemic . Was admitted with DKA lately with a great new plan in place only for my path to progression halted due to covid , however regardless of it being my gp or specialist diabetic team i cant get any help or relief in my battle with neuropathy, even having my gp attempting to tell me better control will reverse all neuropathy effects which i believe to be untrue , so has any1 here had a problem.in gaining firstly a diagnosis and obviously suitable treatment, also any tips or ways in which i could help my situation as its been a year since symptoms began and i believe symptoms and neuropathy in general have gotten worse and yet i still am no further forward and have only witnessed each doctor i cross pass responsibilty......one doctor attempted to tell me i had soft tissue sports injury in the effected area ! I am almost about to give up hope of sorting this and consigning myself to a life where my mobility is seriously effected and given i've participated in martial arts most.of my life , the situation is seriously depressing , any help , advice or.info is greatly appreciated and again hi its nice to meet u all .
 

LucyDUK

Administrator
Staff member
Relationship to Diabetes
Parent
HI @thespider198686

Welcome to the forum, though sorry to read through the circumstances that have brought you here.

My understanding like you is that neuropathy will not be reversed by improved bgl but that will help to slow further progression.

What has been your experience with neuropathy so far? How long have you been in pain? What treatments have you tried so far?
 

Ditto

Well-Known Member
Relationship to Diabetes
Type 2

SB2015

Forum Host
Relationship to Diabetes
Type 1
Welcome to the forum @thespider198686 .

Sorry to read about the circumstances you are in with your neuropathy. Like you I do not think that the damage is reversible, but I hope that you are able to get support to manage the pain.

You mention that you have good management. What strategies do you use to manage your levels.
Do you use a pump or injections? What insulins are you using?
 

Inka

Well-Known Member
Relationship to Diabetes
Type 1
Welcome and sorry to hear about your troubles. Are you on any medication?

Are you taking any supplements to see if they have any effect? Alpha lipoic acid has been suggested as a possible help, for example.
 

KARNAK

Well-Known Member
Relationship to Diabetes
Type 1
Welcome to the forum @thespider198686.
I have done a lot of research into this subject because I suffer greatly
with DPN (Diabetic Peripheral Neuropathy). Can you explain exactly were
it is affecting you? It normally affects the lower legs and feet but the hands
can be a problem. You should be on medication if It is painful 24/7, come
back to the forum and tell us how you are getting on with the details I have
for. Help is at hand no pun intended, stay safe.
 

everydayupsanddowns

Administrator
Staff member
Relationship to Diabetes
Type 1
Welcome to the forum @thespider198686

Like others, the impression I have is that neuropathy will not recover, but that optimising your blood glucose management should slow any progress, and should also relieve symptoms, which seem to be exacerbated by high or erratic BG levels.

Hope you can get some more effective support with the symptoms you are experiencing from your GP and diabetes clinic.

In the meantime, feel free to ask the forum for any hints and tips around any aspect of diabetes management and BG juggling that you find particularly challenging.
 
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