• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Hello!

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
CarysAnnwenT1D

CarysAnnwenT1D

New Member
Relationship to Diabetes
Type 1
Hey everyone!
I’m Carys from Pembrokeshire , I’m 22 and have been a ‘Type- One’er’ since I was two!
I’ve struggled massively over the years wit ,an aging my condition but have seriously turned a corner in the last year or two!
Looking forward to making some new friends on here in the future
 
Welcome to the forum @CarysAnnwenT1D

Glad that you have found this forum. I have learnt most of what I know from others on here, often ahead of info from my hospital team. This has enabled me to ask for things early such as Libre, which I got after self funding for quite a while.

Is there anything particular that has helped you to get back on track recently?
 
Good to have you here @CarysAnnwenT1D

Look forward to hearing mire of your story.

What insulins and tech do you currently use to manage your T1?
 
SB2015 said:
Welcome to the forum @CarysAnnwenT1D

Glad that you have found this forum. I have learnt most of what I know from others on here, often ahead of info from my hospital team. This has enabled me to ask for things early such as Libre, which I got after self funding for quite a while.

Is there anything particular that has helped you to get back on track recently?
Click to expand...
Mostly motivation from my boyfriend (who is absolutely amazing and take this all in his stride), growing up a hell of a lot and the chance of getting an insulin pump
 
CarysAnnwenT1D said:
Mostly motivation from my boyfriend (who is absolutely amazing and take this all in his stride), growing up a hell of a lot and the chance of getting an insulin pump
Click to expand...
What have they said so far about getting a pump?
I was refused the first time, I then asked for the criteria and reasons I was refused. I then went away and gathered data to address each of the things that they had pointed to, and was then allowed a pump. This can show them the work that you are willing to do. Useful as the pump does require some work, to make it effective.
Keep in touch and keep the questions coming.
I know I have a lot more spare time at present!!
 
SB2015 said:
What have they said so far about getting a pump?
I was refused the first time, I then asked for the criteria and reasons I was refused. I then went away and gathered data to address each of the things that they had pointed to, and was then allowed a pump. This can show them the work that you are willing to do. Useful as the pump does require some work, to make it effective.
Keep in touch and keep the questions coming.
I know I have a lot more spare time at present!!
Click to expand...
I’ve wanted one for a long time, was on one at 14 but it just was not the righ time so had it taken off me and now that I’m more responsible towards testing blood sugar and my results are pretty good too they’ve said I can have one! Most;t because they can see I’ve turned a massive corner in regards to actually acknowledging I have this condition and what it involves! The thing I’m struggling with now is which one to get next step after that is a CGM
I can’t believe they just flat out said you couldn’t have one without even discussing it! Good for you though for going away and doing the research!
 
Welcome to the forum Carys, from a T2 five years in.
 
CarysAnnwenT1D said:
I’ve wanted one for a long time, was on one at 14 but it just was not the righ time so had it taken off me and now that I’m more responsible towards testing blood sugar and my results are pretty good too they’ve said I can have one! Most;t because they can see I’ve turned a massive corner in regards to actually acknowledging I have this condition and what it involves! The thing I’m struggling with now is which one to get next step after that is a CGM
I can’t believe they just flat out said you couldn’t have one without even discussing it! Good for you though for going away and doing the research!
Click to expand...
CGM. Is very rarely funded, so it may be a case of self funding if you want to go down that route. However it is amazing what difference a pump can make, since you have the facility to set an hourly basal rate to match what you need. It can also allow you to deliver the Bolus insulin in different ways to match the food. Have you decided which one you want, from those that are available in your area.
 
SB2015 said:
CGM. Is very rarely funded, so it may be a case of self funding if you want to go down that route. However it is amazing what difference a pump can make, since you have the facility to set an hourly basal rate to match what you need. It can also allow you to deliver the Bolus insulin in different ways to match the food. Have you decided which one you want, from those that are available in your area.
Click to expand...
Personally I think they should be available for all the people who do multiple daily tests! I was always told to watch out for nerve damage and after 21 years of finger pricks it’s inevitable. Hopefully one day on the not so distant future we will be able to have them funded ! Well, a girl can dream anyway
I think I the one I’m going on will be the Medtronic 640g although my start date has now been delayed because of the corona virus I’m actually.ly devastated!
 
CarysAnnwenT1D said:
Personally I think they should be available for all the people who do multiple daily tests! I was always told to watch out for nerve damage and after 21 years of finger pricks it’s inevitable. Hopefully one day on the not so distant future we will be able to have them funded ! Well, a girl can dream anyway
I think I the one I’m going on will be the Medtronic 640g although my start date has now been delayed because of the corona virus I’m actually.ly devastated!
Click to expand...
There is plenty of info on here about ways of making effective use of the Medtronic 640G. Get yourself clued up as much as you can beforehand and it will make the start of pumping a lot easier.

Sorry if you have told us this already, are you able to get the Libre? It is not a CGM as we have to actually swipe it to get a reading and take action ourselves, but it still helps when working out adjustments and tweaks to make on the pump. Those a re much more readily available than the sensors for CGM. Worth asking.
 
I’m making brainstorms, lists everything I can think of in order to gather as much u formation as possible on it but am so so so excited about eventually getting it!
Yes I have the Libre already and I think it’s such a great bit of kit!
 
CarysAnnwenT1D said:
I’m making brainstorms, lists everything I can think of in order to gather as much u formation as possible on it but am so so so excited about eventually getting it!
Yes I have the Libre already and I think it’s such a great bit of kit!
Click to expand...
The combination of the Libre and your new pump will give you so much information.
I look forward to hearing of your continued progress.

Books I used in preparation were
Think Like Pancreas
This cover more than just pumping and really helps to understand the functions of the pancreas and other organs that we have had to take on.
Pumping Insulin
Parts of this didn’t make total sense until I was actually on the pump, but it was still useful.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top